Aa
A
A
Close
Avatar universal
twitching and shaking
So recently I have had problems with my left hand twitching and shaking. I'm starting to get concerned. I currently take 300mg Dilantin daily for epilepsy. I have a strange kind of epilepsy in addition to grand mal seizures, I have what have been defined as "reflex epilepsy". Meaning when I go from sitting to standing, walking to running, for things similar... Normally, I have to wait a few seconds till my brain stops misfiring and I can control my legs.I've had it as a child and both my brothers have it, same exact kind. My sister does not. My dad said he had it but it went away. The doctors did not know what it was for years till I had a grand mal seizure... they treated it the grand mal seizure with Dilantin and the other issure went away. my brothers all got on Dilantin and they no longer deal with the same issure.  I say this because I think the twitching might be related, so I'm going to try to up my dosage and see if it fixes the issue.

but I'm worried I might have MS. My stomach mussels were twitching yesterday, My hand was shaking and twitching more then normal too. Sleep seemed to fix the issues, but while I was sleeping my eye mussels were twitching, my leg mussels, my stomach, all slightly twitching. It all made me tired.

I do drink too. and the night before I had a bit to drink.

I notice my body starts to shake really bad (unusually) if I'm even slightly cold.
Lastly, for many years when I lye down to sleep, I always feel the need to move my legs a lot before I fall asleep... don't know if its related.
Is the shaking and twitching related to my epilepsy? how do I know if I have something worse like Parkinson's Disease or MS?
Cancel
1 Answers
1 Answers
Page 1 of 1
Avatar universal
I have been on Dilantin for 4 months following a craniotomy, am am currently getting weaned off it.  I have also had most of the same symptoms since my surgery, and after a bit of investigating online I found that many of these can be caused by Dilantin.  Since I've dropped my dose, I've noticed an improvement.  Also, in all that I read it said not to drink alcohol while taking Dilantin-maybe this is exacerbating your symptoms?  Hope this helps.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
1780921 tn?1416842066
Blank
flipper336
Chandler, AZ
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
209987 tn?1451939065
Blank
tschock
AB
4760166 tn?1398360913
Blank
The_beat_goes_on
TX