typical vs. atypical MS symptoms

  : : Hello, Doctor.  I have seen an MS specialist who says based on my initial examination and labwork that she does not believe I have MS.  I am not so sure, as everything else has been ruled out.  She says if I develop "typical" symptoms of MS, to come back and re-evaluated.  I am curious what exactly the most common typical symptoms are, as the symptoms I've read seem to match mine:
  : : urinary urgency/incontinence
  : : constant facial pain
  : : constant pain on soles of feet
  : : numb fingers that come and go (can last for up to a minute)
  : : painful muscles,  particularly in legs
  : : proven neurogenic bladder
  : : frequent lightheaded feeling (although I do have very low blood pressure)
  : : constant fatigue
  : : I just don't understand what the typical symptoms are, and why these symptoms are not called "typical".  Almost everything I've read lists these symptoms.
  : : Please help me sort through this.  I don't want to pester her with unnecessary office visits, but wonder what types of symptoms I would need to have in order to make it a worthwhile office visit with her.
  : : Thank you for helping!
  : : Char
  : :  
  : Char, I am not a doctor, but I've had MS for 16 years, now, diagnosed through both a spinal tap and an MRI.  Except for your bladder problems, none of the rest of the things you list are typical for MS.  I don't know where you've gotten your sources, but....
  : MS pain is usually more over-all soreness and achiness of muscles being used improperly because others aren't working; not site-specific, like you list, facial pain,and constant pain on soles of feet.  More usually people with MS get numb legs, tingling legs, a numbness and tingling that doesn't go away (lasts MUCH more than a minute). I'd bet the lightheadedness is part of your low blood pressure problem more than with MS -- there are instances of vertigo (dizziness) with MS, but it isn't all that common, either.  And the fatigue certainly is part of MS, but is part of a lot of OTHER things, too.
  : Go visit your doctor when: you have pain in your eyes and/or blurriness -- signs of optic neuritis.  Or when you stumble around a lot because one or both legs don't seem to hold you up.  Or when you cannot feel your leg or legs. Or when a tingling starts in your feet and works its way up your legs.
  : Go visit another doctor to find out what REALLY is going on with you, but I think going down the path of MS is confusing the issue.
  Facial pain is very much part of my MS. MS pain can be neuralgia like or muscular as Ann describes. One persons MS is individual to them. Nobody else with MS is ever the same. I also have the pain on soles of feet as part of MS, have had for over two years.
Dear JT:
Yes, you are correct, I have patients with pain as part of their symptoms who have MS.  However, all of these patients have the classical findings of MS, a positive MRI, and CSF findings.  They also have more than just pain.  There is muscle strength loss, co-ordination loss etc.  However, as you say so correctly, MS is individual.  I hope that your MS is and will remain in remission.
Sincerely,
CCF Neuro[P] MD, RPS