hi there I have been really I'll for over a year now and am no closer to finding out what going on . basically it all started with joints and muscles swelling leaving me stuck in bed for 3 months since theny body has changed so much and I've lost all strength . I get numerous kidney infections ear infection sinus infection. basically right now I have a whistling in left ear with pain my nose burns and itches like crazy and feels like it's changing shape, my neck is full of lumps and really sore as in muscles at back feels like someone continuously pulling head back which causes major pain down shoulder blades .my voice box always sore and feels difficult to sing shout or swallow and sometimes my voice goes high.my sternoclavicular joint protudes right out so does other ribs n bones on chest wall.I have been bleeding from below for 3 months continuous and have big tubular lump in abdomen that gets bigger when cramping.I have inflamed tendons in arms and bony lumps on hands and wrists .I he muscle atrophy of the hands and my left thumb stuck bent upwards like literally looks like it out of socket this freaks people out and complete weakness of the hands my biceps ate always pumped.and aching feels like I'm carrying ton weight all the time .my shoulder blades.stick right out and hurt so bad.I'm having gyno problems too but I struggle to put into words what happening it like my vaginal.wall disappearing and pressure. my knees have lost all.fat no can feel bones I never knew I had I wake up at night and it feels like someone tipping burning water on ok knees they so weak and keep locking really hurt going upstairs.also my feet have lumps n bumps and right foot can't move toes and feels like foot dropping.I also keep getting bleeds in the eye which don't hurt too much but look horrendous also freaks people people out I have huge swelling on left tmj which has dislocated twice this last year .I have seen numerous specialist who all agree something wrong just don't know what then they refer me on .during investigations I have been dx tmd ,pcos and bicornate uterus.ct scan of aabdomen showed nodularity throughout lungs.only thing doc has confirmed is this is def inflammatory.I am getting arm splints and I already have teeth splints. was.due to start dmard.therapy.but can't due.to low lung function and always been on antibiotics for various infections.please help.as.I'm so scared as I have 2 young d daughters who need me and I already relie on family due to loss of movement and strength .if you have any ideas or advice I would really appreciate thanks x
Well, without a detailed clinical evaluation it would be difficult to determine the cause of your symptoms. Possibilities that may need to be considered include GU/ URT infections with reactive arthritis, primary joint issues, neuro-muscular causes such as degeneration, hormonal/ endocrine abnormalities, inadequate dietary intake, micronutrient deficiencies, a few autoimmune conditions etc. The symptoms described are more likely to be due to multiple causes rather than a single cause. I would suggest getting this evaluated by an internist initially and depending on the cause diagnosed/ suspected, it can be managed accordingly or specialist care may be sought.
Hope this is helpful.
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