... okay ... let's see if this can be done 'in a nutshell' ...
I have enchondromatosis (Ollier's disease). I have multiple enchondroma, multiple pains, etc. Already one leg has been amputated because of a chondrosarcoma ... anyway ...
For quite some time now, I've had (sometimes) excruciating pain in the left shoulder. It does NOT trigger pain when that shoulder is used. It hurts mainly when at rest, when not being used, when trying to get to sleep, sometimes waking me up at night. I've been for 'physical therapy' which did not trigger/cause or result in any useful outcome - nor did it help.
Now the pain radiates from the upper/center of my back out to both shoulders and upper arms. Sometimes there are very sharp points of pain in the same location of each upper arm. The pain in my upper back/lower neck (there is a 'clump of bones' I can feel in that area - is that the t1/t2 area?) is getting steadily worse. Sometimes just swallowing causes a strange pain in that back/neck area.
Sitting back in a chair, causing pressure in that area will trigger the pains described.
It was bad enough one afternoon that I went to an 'urgent care' clinic - who prescribed a 'Prednisone dose pack', and mild muscle relaxers (Zanaflex). The prednisone seemed to work at first - but it's all coming back (three months later) and I do NOT want to take that stuff on a regular basis (with my body's 'ability' to grow 'things' I am very apprehensive about using steroids).They diagnosed it as a 'wry neck' - which I think is wrong.
I am going to get an MRI on that area next week ... I want to know your opinion.
With my bone disease - several doctors basically have shrugged their shoulders, adding "I don't know. You are kind of a rare case."