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B6 Toxicity
This is more of a comment than a question, but I would welcome info from anyone who has any experience with this situation. I took a prescription called Folcaps (which had 25 mgs of pyridoxine in it) for a year. In February of 06 I began experiencing symptoms which have now been diagnosed as Pyridoxine (b6) Toxicity Induced Neuropathy. I did not get this diagnosis until August 15, after four MRIs, several specialists and balance testing. My b6 blood level was 81 - the maximum safe level in this test was 32. When reading about b6 toxicity one reads about tingling hands and feet and being "wobbly on your feet" and things of that nature. It can be much more than that. Be careful with Vitamin b6. It's not known if the neurological damage is reversible. Some studies show it is, some show it is not. The damage I have suffered extends to my thyroid, my blood pressure has been lowered (to an unsafe level - it was healthy before), my balance has been damaged - I don't know where my right foot is in space, I've had insomnia, my symptoms are too lengthy to list here. The fatigue that I have been experiencing for the past several months has started to lift now that I've stopped taking the medication, but it is still profound...another hallmark symptom of b6 poisoning. This is a serious toxic situation and one that is not understood by the medical community. I am waiting to find out how much of my life I will get back. I am rebuilding my stamina & neuropathways with an optimistic outlook. And getting the word out. MD's don't know about vitamins. Work with nutritionists. Don't go it solo
Hello. I am new to this site. I have all of the common symptoms described by most of you, twitching and jerks caused by misfiring nerves (according to the tests the neurologist conducted), fatigue, muscle aches, trigeminal neurologia, peripheral neuropathy, gastroenterology issues, fibromyalgia, and dizziness. The neurologist conducted many tests to determine the reasons and he found two possibilities: Mixed ConnectiveTissue Disease (which was confirmed by a rheumotologist) and B6 toxicity At the time of the tests my B6 was 38 on a scale provided by my lab as 1 to 21 as normal. Since my B6 was just mildly high, we just preceded with treatment for the Mixed Connective Tissue Disease. My GP followed up and now I have a score of 84, which is more than double. Here is my issue: I am not taking any supplements or vitamins at all. I can not for the life of me figure out where I am getting the B6. I don't eat cereal or hight amounts of spinach. Everything I read says you have to ingest the B6 in order to get toxic levels but that does not seem to be the case for me. Any ideas as to what my next step should be? It seems to me likely that both the autoimmune disease and the B6 are causing my problems so I should probably get this resolved. Who should I see in order to figure out the source of the B6?
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Have a look at tables of which foods are high in B6 (egg yolks and pistachios are examples; red peppers also). Scrutinize the ingredients of your beverages and processed foods. It gets added to far too many foods, which is crazy for those of us who have toxicity.
What changes did you make to your diet?
Does anyone have a diet that is low in B6?
I noticed that you wrote this paragraph in 2006. How are you feeling now?
It seems like you might have overall problems absorbing and metabolizing phosphate chemicals in general. B6 is a phosphate chemical.
Try going on a low phosphate diet. I did and it helped me. (I will get dizzy if I drink sodas, or eat soy products or drink coffee or black tea or green tea, or eat oatmeal, or eat beans or lentils or soy sauce///// all of these foods are high in phosphates.... and you might be having a B6 issue just because you can't absorb and metabolize phosphates very well. (also avoid eggs and mayonnaise and vegannaise which is high in soy)
Here is what I eat and you could try eating and see if it helps. (all of these foods are low in phosphates/phosphorus)
organic potatoes, organic olive oil and coconut oil.
lean beef or bison (not more than 3 oz per day. Its the only part of my diet that is high in phosphorus, but it seems to "pay for itself" eg help itself be absorbed because it is so high in amino acids to help make the absorbing and metabolizing digestive enzymes.
I also eat romaine lettuce salads with olive oil and avocadoes.
and I eat oranges, bananas, Odwalla oj, raspberries, and mangoes. I know this diet is sparse, but since I have been on it, no more dizzyness or nausea or fatigue or pain.
Try this and see how it works and if you seem to feel better and phosphates are the issue, you could then work in this powdered magnesium carbonate product called CALM and take about 1/4 tsp bef each meal because that will help absorb excess phosphate that might be in any food you eat.
(Also avoid msg and msg chemicals like the plague)
You might think I'm crazy, but try this. It worked for me. It is easy, inexpensive and not any type of diet a doctor would have any problem with.
If you try it, let me know how it works for you.
An easy and quick way to see if I'm on the right track with this for you is to try drinking some dr. pepper and if you feel dizzy or anxious or have to pee alot after doing so. Bingo. that's it. you are not very able to absorb and metabolize phosphate chemicals.
Try going on a low phosphate diet. I did and it helped me. (I will get dizzy if I drink sodas, or eat soy products or drink coffee or black tea or green tea, or eat oatmeal, or eat beans or lentils or soy sauce///// all of these foods are high in phosphates.... and you might be having a B6 issue just because you can't absorb and metabolize phosphates very well. (also avoid eggs and mayonnaise and vegannaise which is high in soy)
Here is what I eat and you could try eating and see if it helps. (all of these foods are low in phosphates/phosphorus)
organic potatoes, organic olive oil and coconut oil.
lean beef or bison (not more than 3 oz per day. Its the only part of my diet that is high in phosphorus, but it seems to "pay for itself" eg help itself be absorbed because it is so high in amino acids to help make the absorbing and metabolizing digestive enzymes.
I also eat romaine lettuce salads with olive oil and avocadoes.
and I eat oranges, bananas, Odwalla oj, raspberries, and mangoes. I know this diet is sparse, but since I have been on it, no more dizzyness or nausea or fatigue or pain.
Try this and see how it works and if you seem to feel better and phosphates are the issue, you could then work in this powdered magnesium carbonate product called CALM and take about 1/4 tsp bef each meal because that will help absorb excess phosphate that might be in any food you eat.
(Also avoid msg and msg chemicals like the plague)
You might think I'm crazy, but try this. It worked for me. It is easy, inexpensive and not any type of diet a doctor would have any problem with.
If you try it, let me know how it works for you.
An easy and quick way to see if I'm on the right track with this for you is to try drinking some dr. pepper and if you feel dizzy or anxious or have to pee alot after doing so. Bingo. that's it. you are not very able to absorb and metabolize phosphate chemicals.
Are you taking any magnesium? and if so, what kind? It takes magnesium to help process B vitamins and so taking too much B vitamins can deplete your magnesium. B6 is also a phosphate chemical, so if you have been taking too much, your phosphate levels can go too high and the brain fog etc is all linked to too high phosphate levels. Our bodies can only absorb so much phosphate at a time and if you put more than that in your body, you could get aches, pains, blurry vision, dizzyness, and brain fog.
According to Dr. Robert Thompson, who wrote The Calcium Lie: What Your Doctor Doesn't Know Could Kill You, if you are magnesium (and other minerals) deficient, you will not be able to properly absorb any vitamins. So it is best to get some sea salt (good balance of all minerals) and take Magnesium Chloride (Trace Minerals Research "Mega Mag" ionic liquid magnesium chloride is a good brand), and start taking these two things before taking any vitamins, since without proper mineral and esp. magnesium levels, you won't be able to properly absorb vitamins, esp B complex vitamins and they, then could cause problems.
Also, if you have a CBS mutation, that can make you sensitive to sulphur/ phosphates and so epsom salts, which are magnesium sulfate, might not be good for you.
I would suggest, til you get over your symptoms, to avoid foods high in phosphates: Coffee, Black Tea, Green Tea, all sodas (esp colas and dr. pepper), legumes (beans, peas, lentils, peanuts), oatmeal and corn.
Also avoid foods high in sulfur chemicals: onions, garlic, eggs, lunch meats (with sulfites)
If you eat these things, you might notice a rise in symptoms.
The best to eat for right now would be:
lean meat (buffalo is good) cooked w/ olive oil or coconut oil, Romaine lettuce and oranges and oj (all high in Folate), mangoes, bananas, organic potatoes, raspberries, zucchini, crook neck squash, okra, avocados.
According to Dr. Robert Thompson, who wrote The Calcium Lie: What Your Doctor Doesn't Know Could Kill You, if you are magnesium (and other minerals) deficient, you will not be able to properly absorb any vitamins. So it is best to get some sea salt (good balance of all minerals) and take Magnesium Chloride (Trace Minerals Research "Mega Mag" ionic liquid magnesium chloride is a good brand), and start taking these two things before taking any vitamins, since without proper mineral and esp. magnesium levels, you won't be able to properly absorb vitamins, esp B complex vitamins and they, then could cause problems.
Also, if you have a CBS mutation, that can make you sensitive to sulphur/ phosphates and so epsom salts, which are magnesium sulfate, might not be good for you.
I would suggest, til you get over your symptoms, to avoid foods high in phosphates: Coffee, Black Tea, Green Tea, all sodas (esp colas and dr. pepper), legumes (beans, peas, lentils, peanuts), oatmeal and corn.
Also avoid foods high in sulfur chemicals: onions, garlic, eggs, lunch meats (with sulfites)
If you eat these things, you might notice a rise in symptoms.
The best to eat for right now would be:
lean meat (buffalo is good) cooked w/ olive oil or coconut oil, Romaine lettuce and oranges and oj (all high in Folate), mangoes, bananas, organic potatoes, raspberries, zucchini, crook neck squash, okra, avocados.
1 Comments
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