B6 Toxicity

[chimey]

This is more of a comment than a question, but I would welcome info from anyone who has any experience with this situation. I took a prescription called Folcaps (which had 25 mgs of pyridoxine in it) for a year. In February of 06 I began experiencing symptoms which have now been diagnosed as Pyridoxine (b6) Toxicity Induced Neuropathy. I did not get this diagnosis until August 15, after four MRIs, several specialists and balance testing. My b6 blood level was 81 - the maximum safe level in this test was 32. When reading about b6 toxicity one reads about tingling hands and feet and being "wobbly on your feet" and things of that nature. It can be much more than that. Be careful with Vitamin b6. It's not known if the neurological damage is reversible. Some studies show it is, some show it is not. The damage I have suffered extends to my thyroid, my blood pressure has been lowered (to an unsafe level - it was healthy before), my balance has been damaged - I don't know where my right foot is in space, I've had insomnia, my symptoms are too lengthy to list here. The fatigue that I have been experiencing for the past several months has started to lift now that I've stopped taking the medication, but it is still profound...another hallmark symptom of b6 poisoning. This is a serious toxic situation and one that is not understood by the medical community. I am waiting to find out how much of my life I will get back. I am rebuilding my stamina & neuropathways with an optimistic outlook. And getting the word out. MD's don't know about vitamins. Work with nutritionists. Don't go it solo

[smorris0312]

I would strongly recommend a good probiotic. I would recommend Dr Mercola's brand. You can google it on the internet. It is important to start with the gut. You probably have intestinal dysbiosis. Eliminate dairy, spicy foods and wheat. Try this for one month and see what happens. Take your probiotic at night just before bedtime. I know this is hard, but it will be worth it. You can find plenty of gluten and dairy free products at the health food store.
I would recommend this to anyone suffering with food sensitivities.
Could you possibly have MTHFR? See if your dr is willing to do the test. My insurance covered the cost. He used Spectracell. Very thorough test and revealed alot. Now I am working with Dr Ben Lynch along with my family dr.
Hope this helps.......Good Luck!

[xxxtina]

Make that 100 mg not gm, and 6mg not gm

[xxxtina]

Can everyone describe in detail what they felt before and after stopping the B6?  I've been having:
electric shocks, random pricks all over my body, pins and needles in my left hand, pricks in my leg, weird skin sensations (sensitive skin like I have a sunburn) in different spots on different days, weakness in left hand, weakness in both legs, was at one point unable to walk.  Now i have severe fatigue and generalized weakness, like I have the flu.

I was told by an MD that its B6 toxicity.  She was very confident it was that and not MS. B6 blood levels are still pending.  
It makes sense, since I was taking b100 complex (100gm), plus a multivitamin(6gm), and on many days I think I was taking them twice a day.  

What is everyone referring to when they say coming off the B6 is a nightmare?  What are the symptoms?  

[krissyj11]

Hi. My name is Kristin....I have posted several posts this summer on my b6 toxicity symptoms etc...I read your posts and wanted to tell u that my whole body is completely over sensitive since the onset of the b6 toxicity. I all of a sudden have become dairy intolerant...and my eyes are always red and itchy like allergies.  I have cut dairy out of my diet but other things must be causing me to have these allergic type symptoms. I've never had them before the b6 toxicity. Also my skin gets itchy in various spots and turns red.  Some days are good and some days are bad. The muscle weakness gets better and them it comes back. Its a long road I guess. I am seven weeks into the recovery. How are u doing??
.

[queenbeetv]

black tea is high in phosphorous. You should stay away from foods high in phosphorous like coffee, tea, cola drinks, Dr. Pepper, fizzy soda, eggs, legumes. Your kidneys might have a genetically hard time of absorbing and getting rid of phosphorous. Check out the teachings of Dr. St. Amand a UCLA research doctor who works on cases of people who genetically cant get rid of phosphorous through their kidneys.
Also stay away from any foods in aluminum containers

[queenbeetv]

Look up Dr. St. Amand. The foods you listed are all high in phosphorous. Dr. St. Amand is a research doctor at UCLA and he does research on people whose kidneys cannot absorb and then get rid of phosphorous. Since the kidneys cannot absorb it, it builds up in the blood/tissues. Also since it cannot get into the kidneys, it cannot be used by the kidneys to help metabolize proteins, so there is protein deficiency in the individual in addition to the phosphorous build up in the soft tissues which causes pain because phosphorous magnetizes calcium to it, so calcium builds up in the soft tissues and calcium causes overfiring of nerves which causes muscular contractions and pain. B6 is pyroxidal 5 phosphate so it too is some sort of phosphate chemical and so the two might be related. Dr. St. Amand has a practice in Marina Del Ray in S. Calif. He would be good to contact regarding this.