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Bone/Joint Damage post Accutane

I was on Accutane for 6 months @ 20mg daily.  I have been off for 7 months and the pain in my joints and bones has only gotten worse!  I'm worried the drug is still in my body as I'm STILL suffering all the symptoms (dry eyes, dry/itchy scalp, joint/bone pain).  PLEASE help me!  I used to be an athelete.  I had to quit all physical activity including my waitressing job because I simply cannot move.  A stroll in the park leaves me stiff and aching.  What is wrong with me and where to do I go from here?  My next derm. appt. is 4 months from now.  I used to be flexible but I'm now in excruciating pain 24/7.  I'm a 21 yr. old but feel like I'm in a 90 yr. old's body.   What is going in inside of me and what types of testing should I get done?  I'm thinking about going on the master cleanse and the liver & gallbladder cleanse in hopes of getting rid of some of these toxins that I KNOW are in my body.  HELP!
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Avatar universal
Oh my gosh, I am dealing with this exactly. Please if you got any answers please email me at ***@**** I have serious muscle joint bone pain. 9 months off the drug as well. Please if you know what may be wrong withme.
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I will tell you what s wrong! No need to continue wasting time going to the doctors, or thinking you have an autoimmune disease...your body is damaged from the accutane drug. Simple as that! The drug is designed to kill your oil glands so you will stop breaking out. In turn, you lose lubrication, and your joints, bones, and everything that needs this lubrication, suffers. I know this, because I used Accutane 10 years ago, and still have joint issues. All my joints pop, and crack, and easily tire and ache( especially my knees). Life is not the same! The best thing to do is to eat healthy, and take safe supplements for lubrication.  
Read my comment in the original post
I cant find your previous comment that you told me to look for. I can tell everything in my body has been damaged no one believes me. My joints bones muscles. They did a blood test and said there is no inflammation in my body. I need help. I cant live like this anymore. Where can I contact you? Email?  
I'm having the same problems three years later, what's your email? HOw are things now?
Avatar universal
Thank you so kindly for your reply!  I have done extensive research as to what I can take and do to alleviate some pain.  I have been taking a Yucca supplement from a health food store and was told it would help-it has not.  I have not done too much besides drinking milk and taking a vitamin D3 supplement.  Instead of doing things that may mask the pain for a while, I believe that our problem as well as all others who are still experiencing the side effects months/years after being on the treatment is that the drug is still in the body!  It's a fat soluble vitamin (A) which stays in your liver, fat and organs for a really long time.  I hope and pray daily-it's constantly in my mind and I just want it out of my body.  Have you considered doing a detox diet?  I've been drinking green tea a few times daily and it doesn't seem to help.  I'm gathering the ingredients and will go on the 10 day master cleanse.  Look into it!
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I know this is an old post but can you tell me if the problems are solved for you now, and how? I'm feeling exact same way 3 years after being on accutane. I have gone to my doctors so many times and he can't find what is wrong with me, and doesn't believe that I have really bad pain. He also has absolutely no idea about the side effects of accutane. I'm only 22 and it feels like I'm 60 years in my body. This is so bad..
I know this is an old post but can you tell me if the problem is solved for you now, and how? I'm feeling exact same way 3 years after being on accutane. I have gone to my doctors so many times and he can't find what is wrong with me, and has absolutely no idea about the side effects of accutane. I'm 22 and it feels like I'm 60 years in my body. This is so bad..
You are dealig with exactly what I am. Can you please contact me? No one knows what is wrong with me. My email ***@**** please please contact me... i am loosing my mind. Im in so much pain. Iv been off the accutane for 9 months. My ribs bones muscles everything.
I'm having the same problems three years later, what's your email? HOw are things now?
Avatar universal
Im 24 years old and felt exactly like you...i took accutane for three months.. just recently stopped... i was on 20mg twice daily. on my second month i have started having back pains and on third month  severe joint pains, knee pains and few days back i started having shoulder pains. my derm told me that they are "temporary" and will go away after the 6 month therapy. i was willing to go through the pains until i did some research related to joint pains, in some cases they could be permanent.... i decided to quit, because my whole body was and is in pain.
earlier i was on antibiotics and then took accutane...from Feb 2011 to May 2011 i was on doxycycline (and then whn i had another severe acne break out) from Sept 2011 to Dec 2011 i was taking azithromycin and from Jan 2012 to March 2012 i was on tane... i m not ready to take oral medications any more... for nearly past two and a half years i was on antibiotics. my stomach is a complete mess now. COMPLETE MESS!!
Now the SOLUTION i have found!(which is working but slowly)
My mom told me to try something herbal. My mom had joint pains and was taking aloe vera, orally (i mean the gel that is inside tht green plant)
i know that's slimy, but if it works one should give it a try! (another alternative is u can take aloe vera juice) here is a link

http:/****.com/can-aloe-vera-cure-help-treat-or-prevent_Joint-Pain.php

i just take aloe vera (fresh grown in my garden) once daily before going to bed. believe me my knee pains are much better. and and so is my back pain. Though its still there and its better. (probably i will start taking it three times as mentioned in the link. btw you can also search aloe vera and joint pains on google. and get to know how it works. )

Secondly I am drinking lots of water. to get this toxin out of my body.
I pray everyone who is suffering from accutane side effects can get their healthy lives back. because its not worth suffering body pains for the rest of your life to get clear skin!

Advice for those who are going to take accutane! it might be a wonder drug for some people but also on the other hand it might not work for some. if you are feeling any pains(or side effects) due to the drug. don't neglect them. because pain is the symptom telling you that something is going  wrong in your body!

BEST OF LUCK!
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1 Comments
I'm having the same problems three years later, what's your email? How are things now?
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