Ehler's Danlos Hypermobility type Ortho advice
Hi, 40 year old female with provisional diagnosis of EDS Hypermobility type with what was reported by my physician to be extreme. I dislocate and sublux fingers, wrists, shoulder, (collar bone once by leaning down and stretching out behind a desk for a fallen book), spine, TMJ, hips, knees (awaiting R knee reconstruction) ankles (had one reconstructed with tendon wrapped around and attached to fibula by drilling and sewing) and toes. My orthopaedic surgeon was very curious about my hypermobility, now I have a diagnosis, I need to get advice on how to proceed to prevent all these painful dislocations. I also have worsening autonomic nervous system problems, I've long had POTS but also having heart problems (functional insufficiency of L ventricle) and exercise induced hyperthermia and hypertension. It is rife through my fathers family and really need advice. Does any one have experience in this field? Thanks, BeeR70
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