Piriformis release led to iliotibial band syndrome?

I had bilateral SI fixation with right fusion in 2006. This helped my severe SI instability but led to piriformis syndrome. I had sciatic decompression on the right with piriformis release in 2007. Three weeks post-op I developed severe pain in my outer thigh that ran from my outer hip to just below my knee on the right side. It progressed in the following weeks to the left side as well. The leg pain and tightness causes my toes to go numb. EMG results have not showed anything significant. I have had hip MRI and X-Rays that showed nothing as well. My SI fusion has healed normally. No one can seem to figure out why I am in so much pain. It was diagnosed by one orthopedist as iliotibial band syndrome. I have had months of PT, trigger point injections, steroid injections etc. I can not stand or walk for extended periods of time due to pain. The pain is also starting to affect my driving ability. I have trouble laying on either side due to the pain in the sides of my legs. I now use opiates, muscle relaxants, TENS, and a muscle stimulator to function. I went from a medical professional working full time to disabled. Do you have any ideas or do you know what medical community would be best for me to seek help from? I have exhausted all resources in my area and all my docs have thrown in the towel. Thanks in advance for your time.