Thank you for posting with this information. I had been wracking my brain to think of anything that may have caused this other than a presence of a tumor. The Mastocytosis was the most traumatic thing that she has ever been diagnosed with so I wanted to get some information to see if that dianosis could be a factor in these findings. Thank you again. Our next step is with an pediatric ortho doctor and my hope is that this is not of the most serious of issues due to the fact that she isn't complaining of constant pain and is very active with the energy of what seems like ten 6 year olds. Thank you again for your post.
Mdawn
Hello!
Mastocytosis is a disorder with mast cell growth and accumulation within various organs, most commonly the skin.
The skeletal, blood & bone marrow, gastrointestinal, heart, pulmonary, and central nervous systems may be involved directly, via mast cell infiltration, or indirectly, via mast cell mediator release.
The major criterion for diagnosis is multiple dense infiltrates of mast cells observed in bone marrow biopsy specimens and mast cells stained for tryptase in biopsy specimens from other organs including her skeletal tissue.
You should go for a biopsy for confirmation and this can also be a tumour of her hip bone without mastocytocis
Take care!