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fused ulna and hand problems

hi, all is there anyone on this site that has fused ulna bones the proper name for it is radio- ulna  systosis my 2 year old grandson was diagnosed with it last year, i live in england, london  and the ortherpedic that he saw said there is no operation for it and it is very rare, i have found very little reading on it , can any one tell me if they have heard of it, or can the doctor tell me  thanks sandy
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562599 tn?1217008125
http://www.ejbjs.org/cgi/reprint/51/6/1118.pdf
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Avatar universal
Hello, my name is Theresa and I am 21 years old, and I was born with radi-ulna systosis, and ot f all the years I've had it, it has recently  started to give me problems. My hands are alway cramping, and shaking. I don't know what to do. Can someone help me or talk to me.
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