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This patient support community is for discussions relating to ostomy, colostomy, diet and nutrition, gastrostomy ileostomy, jejunostomy, ostomy reversal, sex and relationships, stoma, urostomy, and wound care.
sounds as tho the j-pouch is not working for u..pouchitis is common and complications do occur..it is one of the reasons they usually give someone an ilestomy in the first place if the j pouch works it is a great thing..but ileostomies are not horrible..the stool have very little if any odor..little gas if any and i u get a good stoma no one will ever know u have it...let me know if u need any help.i am an ostomy nurse and help people with their pouches etc all the time
Thanks for the advice. I finally got to meet someone, for the first time last week, that actually has an ileostomy. I have an appt. at the Mayo on Friday with a surgeon and I am nervous, but I know there is no fixing my j-pouch and I just keep prolonging the inevitable. I will take you up on your offer for help if I keep the courage to follow through with surgery this summer.
Darla
DKinMN
Darla
DKinMN