This patient support community is for discussions relating to ostomy, colostomy, diet and nutrition, gastrostomy ileostomy, jejunostomy, ostomy reversal, sex and relationships, stoma, urostomy, and wound care.
Hoping someone has some words of wisdom or advice.
A quick summary first of all... I'm a 38 year old mum of 2 and competitive runner and triathlete. Was training for an Ironman triathlon last year then it all went a bit pearshaped!
June 2010 - rushed into hospital with peritonitis. Burst diverticulitis (didn't even know I had it) which they eventually decided I'd been born with. laprascopic surgery and IV antibiotics - hoped it would settle
August 2010 - partial colectomy (anterior resection) to remove massive abscess. Formation of temporary loop ileostomy
September 2010 - got fit enough to run local 10k.
October 2010 - reversal of ileostomy - didn't go to well. Paralytic ileus and huge bloating. Hospital 7 days.
Since then have struggled with massive bloating, constipation, weight gain (12 lbs) nausea etc. Struggling to sleep or eat as it's so bloated and uncomfortable. Basically feels like nothing is working. Despite high fibre, water, exercise, coffee blah blah blah. Feels like there is no motility in the colon and no muscle tone. I haven't worn a pair of jeans for 7 months as just so bloated all the time.. Doc has now put me on movicol, but need to take 4-5 sachets just to see a bit of action and doesn't do much for the bloating. Right now I'm struggling badly and all I can eat is a virtual liquid/soft mush diet and any action I do see is (sorry to be gross) like ribbons or worms.. Am seeing consultant tomorrow, but thinking it must be something like colonic inertia or a partial obstruction. Am seriously fed up and it's affecting my life, job etc. Right now I just wish I had the bag back...
Be really good to hear from anyone who's had a similar experience or has any advice...
I have the same problem and I wear a bag. we need to exchange numbers. my story as well as yours is very long. too long to type. I, as well, walk and go to the gym and eat healthy. It has affected my life tremendously. I can very much relate. 3 blockages and lots of issues to this date. and Supposedly in the best hospitals around.
Probiotics, you can get these over the counter, can help as well as an anti-acid with the bloating. I tried all types of prescription antacids and the OTC type that I chew up works the best for me. Fluid intake as well as fiber is important to prevent constipation. Often glycerin suppositoies help if your physician says it is ok.
Post op, slow motility is seen a lot but you are 7 months post op? Anestesia and pain medications are often the culprit. If you are on any pain medications, cutting down or getting off of them can help as constipation is a number one complaint with narcotic pain relievers.
It does sound like u may have a stricture when u say ribbon like stools. Have they done a colonoscopy to check and be sure all is open and not narrowed at some point in your intestine?
I believe exercise helps recovery after a certain amount of time and when your physician says ok. It helps prevent constipation and keep things moving plus it helps anxiety and depression.
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