Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
This patient support community is for discussions relating to ovarian cancer, biopsy, chemotherapy, clinical trials, genetics, hysterectomy, immunotherapy, radiation therapy, screening, and staging.
Hi everyone, It's somewhat comforting to read some of the postings and see that there are others of you who struggle with this same disease,stage 4 and continue to go through chemo for a good number of years. For me, it has been scary having these recurrences, but now I am beginning to accept this as being a chronic disease. I was diagnosed in March of 2006 and after surgery and taxol/carboplatin was in remission for 8 months. Then I took doxil for a few months, but it stopped working. After that, I was on a clinical trial of topotekan and oxiliplatin and that stopped working after 41/2 months. So now I will soon be starting Avastin and cytoxanCytoxan Cytoxan lyophilized. If anyone has any knowledge about these drugs or any info about anything else that is working for them, I would appreciate the info.
I have two friends currently on Avastin and cytoxin, one is on every two weeks, the other every three weeks. Both have there CA coming down. It has been about 4 months for both now.
I am on Avastin and Cytoxan. I have taken a little break, while I waited for my CT results - I have to pay out of pocket for the drugs and wanted to make sure they were working before I continued on! I will now be recieving the Avastin (10mg/kilogram) every three weeks, and I continue to take my daily cytoxan pill, 50mg. I haven't really had problems with either. The pill doesn't bother me at all, and the Avastin just makes me a little tired for a couple days after the infusion. My blood pressure jumps a little for a few days after, but manages to come back down on it's own. I am having good results - after three treatments, one of my tumors went from 4.5x3.2 to 2.5x2. Everything else showed a reduction in size as well. Does your insurance cover these drugs?
Take care,
Becky
forgot to add....my CA125 isn't a useful marker for me. I found out it's still 18. It was 18 after I finished chemo the second time, also when I had my recurrence. It never went up as my cancer grew and has stayed the same, even though my cancer is shrinking!
Take care,
Becky