This forum is for questions and support regarding ovarian cancer issues, such as: Biopsy, Chemotherapy, Clinical Trials, Genetics, Hysterectomy, Immunotherapy, Ovarian Cancer Types, Radiation Therapy, Risk Factors, Screening, Staging, Surgery.
Hi - please could you advise what would generally be considered a very high CA125 level in advanced endometriosis? I was thought to have ovarian cancer upon vaginal ultrasound but it turned out to be advanced endometriosis with a large chocolate cyst which developed in its entirity in after a hysterectomy and BSO and going on HRT for 4 years (oestradial only). The count was apparently the highest ever returned from the lab at 'well over 1000'. It could not all be 'removed safely' and I have cyclical symptoms still and can tell it is growing again. I am 53 yrs old and post menopausal. All my adult life I had horrendous symptoms at ovulation then gradually for most of second half of cycle when I was completely struck down by a sort of total brain malfunction (blurred vision, dizziness, complete short term memory loss, confusion, dysequilibrium and overwhelming head pain and fatigue - I was utterly decapacitated by it.) I also had so many infections that I was on antibiotics every 2-3 months for 20 years. Whilst taking HRT the symptoms were permanent and frankly I thought I would die but as I had a really bad ear infection that would not resolve the symptoms were thought to be due to that. It seems I might have had an autoimmune response to my own oestrogen causing these symptoms in which my body responded to oestrogen (and oestradial) as a toxin. Could this be why the CA125 was so high - my immune system had nothing left to fight the antigens with? Many thanks for any help in explaining .
You should see a gyn oncologist. The Ca 125 can be quite elevated in endometriosis. the cure for severe endometriosis is the removal of the uterus, tubes, and ovaries. This can be among the technically hardest surgeries there are. That is why I suggest a gyn oncologist as they do technically difficult surgery all the time.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.