It is sad news. I hope the appointment with the oncologist today gave you more ideas to go on. In case it will help, I'd like to relay the experience of my mom's good friend.
She had I guess it was colon cancer but detected at the point that the liver and pancreas were involved. The newer drugs were much more effective that we'd ever expected for those types, and she lived with the chemo for two more wonderful years that she got to spend with her family and without the chemo being too terrible. Her husband was 20 years her senior and heavily dependent on her, not really all there all the time and a bit of a drinker socially. Yet after she passed on and on their anniversary he made the decision to go on, and he's doing fine now. He misses her, but spends time with his grandchildren, and his interests. I know it's scary for your husband, but he may do better than he expects. When the turn did come, I was surprised at how quickly it goes so that it was really only two weeks where it was very difficult. You commented on how young your grandchild is. My mom lost her's at age 10, and yet for all she doesn't remember about her childhood (never did), she still gets a big smile when you mention her grandmother and can relay stories about her even from when she was 4 and 5 years old.
I hope the news is that there are new treatments out there to try. Whatever your decision is on what's best for you, at least you know how much you are loved especially by your family.
Yvonne, you sound like a wonderful woman who cares very much for your family. This decision belongs only to you. Do what your heart is telling you. You are God's child and he will be with you no matter what you decide. May He bless you and give you the strength you need for your decision.
Take good care of yourself - do something special this week just for you. I will keep you in my prayers.
My prayers are with you during this difficult time. I don't have OC and I don't know anyone that has gone through it personally. I have read about it alot though. No one can make a decision like this for you. No one knows what is going through your mind but you. You have to do what you feel is right. Trust that God will steer you in the right direction. I know family and friends want you around. I sort of went through that last year when I lost my Mom to a heart infection. We had to make a decision. They told us if she were to continue on life support her quality of life might not be good if she were to have brain damage. My siblings made the decision to take her off of it. I didn't speak to them for a year. I thought she wanted to fight it because she almost died 2 times and came back to us. But now I feel that it was her time to go and she is at peace. I hope I'm not making you upset. I just want you to know how family members feel, what they go through. We are not thinking of what you may be going through or will have to go through unfortunately. We are thinking about how it will be for us if and when you are not here. I hope you have a good support network around you and maybe you can talk to a counselor or someone that has knowledge about what you are dealing with. Maybe your loved ones should consider that as well. It sure would have been helpful for me. Also have you considered looking into clinical trials? You never know, maybe something may actually be helpful. The website is clinicaltrials.gov. Again I will keep you and your family in my prayers. You take care and hang in there.
Bird
Yvonne - I always wish for the right words to say, but, they don't exist. We will all support you in whatever decision you make. I recently lost a friend to this dreaded disease. She was on chemo and in hospice until the end, the chemo that she was on was to help with the ascites and pain which it did do, with minimal side effects. There are drugs out there that may not kill the cancer cells, but, may stablize the disease that aren't as hard on the body. Have you thought of a 2nd opinion, sometimes other doctors will have other suggestions.
My thoughts are with you and your family. Please let us know how you are doing.
I want you to know that I am thinking of you and hoping you find peace. I was diagnosed with stage IV in April and I am feeling well today but I do know what the future holds... In this black hole we all share may you find peace....
I wish you the best. Im praying cause I got an ultraound done cause I have a enlarge urerus Im bloated out, and frequent urination afraid its cancer......Im very scared. Did you have these signs and symptons before you got diagnosed of cancer.......Im freaking out Im only 43 years old.......
You guys are so awesome. My children ae split on chemo. My son who lives 600 miles away and wasn't here when I had chemo before says do it, my daughter who watched every day doesn't want me too. The other son hasn't said anything. My husband is the hardest. He says he will support me, but he is so upset, he keeps me upset. It is not always good to make someone you whole life like he has done me. Again, I thank you all for your support and my prayers are they find a cure and all of us get well! However, I am a Christian, and I know to be absence in the body is to be in the presence of Jesus. I don't know how someone who doesn't have that can make it. Love you!
Dear Yvonne, I am so sorry to hear your news. My mum is battling with ovca and thought you might appreciate a daughters thoughts. Helen is right, I want my mum to do more chemo so she will be around for longer, but at the same time I hate to see my mum suffer. I visit my mum almost every day and she is a shadow of her former self, I am hoping this is just a 'blip' and she will be fighting this awful disease again soon. My mum says that if it wasn't for family she wouldn't do chemo, she would go away somewhere and that would be it. If you are feeling well now, enjoy the good days with your family. I pray for those good days to come back so I can do the little things with my mum like go for a coffee and go shopping together, and for her to enjoy her grandchildren again. Every day is a gift. I would give chemo a go, if you find it too much you can stop. But you never know, you have to have hope. Thats the only way I am surviving is having a glimmer of hope. Godbless, love Sam x
Dear Yvonne... Your report is very sad, and I feel so sorry for what you have gone/and going through. It's not an easy position to be in, and I guess we will all face it sometime in the future. All I can say is, go with your 'gut' feeling... what you feel you'd prefer to do, but at the same time, give yourself every chance of extending life, and if that means doing some more chemo, perhaps you could consider that. Discussing with your family is a fair way of dealing with it, but knowing how I would feel if I was your child... I would want you to do more chemo, so you would be around longer, so maybe you could look at that aspect. Anyhow Yvonne... I wish you all the best, and I'm sure you will make the right decision that you will be comfortable with.. Just want to say... a lady here went into Hospice care, as she felt she was losing the battle, but it's been some months now, and she is still doing well.......so don't give up Yvonne. Sending you warm Aussie hugs....Helen..
I am so sorry for you, it is a tough decision you are making. Someday, I too may be in the same position as you are in and I comteplate what decision I would make, part of me would call it quits and opt for no chemo, then the scary takes over and I think I would want chemo. I guess until a person gets there they have to make the decision considering all options and conferences with all physicians, if possible. I will be thinking off you in this decision, I think what is most important is to get everyone in your family on board with the decision, talk, and listen to each other. Keep us posted we are here for you.