I don't have ovarian cancer, but other sights haven't been able to help.
5 years ago at 20 I ended up in the emergancy room with severe abdominal pain. I was told I was constipated and sent home. 4 days later I was admitted for a cyst rupture that had torn my ovary and was hemmoraging. This cyst was 2 cm. So anyone (including doctors) who say little cysts aren't anything to worry about are NUTS! I'll sum up the next years to give you a good idea of where I am and what help I am looking for.
I was diagnosed with endometriosis when I was 21, chronic cyst rupture and chronic pain the same time. I was put on depot lupron to control it. Hormonal Chemotherapy. I was pain free for this time, but I became depressed, mood swingy and gained about 90 pounds. Since then I have had 2 other laproscopic surgeries the last they found a cyst so large they really couldn't be sure. I saw a picture and it took up 1/2 of my abdomin, larger than my liver. If that one would have rutured, I probably wouldn't be too healthy right now. No cyst is too large to remove, I'm proof. I'm on regular birth control, but it doesn't help my symptoms. Now to the fun stuff.
Lately I have been having bowel problems. Constipation, nausea and vomiting. I have had all the tests, blood, colonoscopy...everything looks good. I can deal with the daily pain, I have for years, but this is hard. I can't eat anything with out getting sick. I vomit at least once a day. Doctor's can't seem to find what is wrong. If anyone out there has any info that might help, I would appreciate it so much.
I have lost about 50 pounds since I got off the lupron. I started at 203 and now I'm down to about 156. My doctor's said this was reasonable becuse the meds basicall shut off my metabolism. Since I have been ill lately, I really don't eat much at all and I'm constantly dehydrated. I drink a lot of water and powerade when it's really bad. I take a lot of vitamins too, that seems to help, but I'm constantly tired. It is really frustrating, since every year it's something else. I had so much damage from my first rupture ( my left ovary was stuck to my back with scar tissue and my right looked like Pac Man), that my doctor didn't know how they would recover and if I'd ever be able to have kids. I guess its hope that keeps me from having the hyst. I don't see my gyno for about 3 months. Fear keeps me away. Everytime I go in...it's hyst talk. At 26 and newly married I don't want to hear that. My husband is completely supportive, he's been with me basically since this started, so that is a great help.
All of my cysts have been fluid filled. Nothing solid, thank goodness. the first rupture (left) was about 2 cm. The right they do not know it ruptured a five days before my first lap. I really don't understand why my ovaries "have" been left. they didn't even take my right one last time and with the size of the cyst, the doctor's didn't know how I could walk. We've talked about removing part (ovaries, uterus...etc) and leaving the rest for the possibility of invetro or other. With the damage that my parts have sustained, I don't even know if it's worth it to continue with the hope of having kids. Is it better to be healthy? It's something so large to think about giving up, but I think I would do it for 1 week of feeling good when I wake up in the morning. I have seen a gastrontologist and had the colonoscopy, the whole time he asked if I thought my symptoms were related to my ovarian problems. I guess I don't understand how they could. I haven't had any specialized testing done other than basic lab work and everything looks okay except for my liver was malfunctioning a little, but "nothing to worry about".
thank you so much for you comments. It's nice to hear from someone else that was in my situation. I'm sorry that I omitting info. I have so much that I tend to leave some out. Just to clarify...My cyst rupture and endo are the cause of all my ovarian damage, I have had a leep procedure to take out moderate dysplasia in my cervix, the pain in my side keeps me on pain killers daily and they aslo attribute to my stomach problems. Basically...the damage done by my first hemmoragic cysts caused damage to the point that my first gyno (older male that hit on me in his office) told me that I might not be able to have kids. Depending mostly on how they healed. My right ovary, before this massive cyst, looked good. My left (the onle twisted and stuck to my back, is stretched and flattened. They still have blood flow, so my tubes aren't blocked. Which is great! But, there is always that doubt. What worries me most is that my period is so strange. I basically have cramps all month and when "my week" comes, it's "clotty" not normal bleeding. It looks like what you are left with after a nose bleed. It took me 8 months to do through 2 boxes of tampons. I have been tested for anemia and everything under then sun. I'm apparently a medical mystery. My doctor now (female with a daughter with similar problems) told me that if I wanted to have children, I'd have to have them soon. Basically, the longer I wait...the less chance. My husband and I are torn on the subject. We really want a family, but so new in our marriage and careers that we know it's not financially possible. Not that you are ever ready for children. We have already talked about adoption. My husband says that it doesn't matter where our kids come from...they'll be his. Now I'm getting wordy, hope this information helps you to help me. Thanks
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