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Complex cyst - mass located near ovary
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Complex cyst - mass located near ovary

Hi,

I am 28 years old.  Since 2001 I have had bladder symptoms of UTI with no infection present.  In April of 2007 I was finally diagnosed with IC through cystoscopy.  
Around a year ago, my breast started leaking breast milk.  My hormones were checked and everything came back normal, so nothing was done.  
In Feb 2007, my symptoms seemed to change from just that of bladder symptoms - frequency, urgency, lower abdominal pain, burning ect to also gyno symptoms.  I always had pelvic pain, which my doctors attributed to IC.  But I started having extreme bloating.  I look like I am four months pregnant. I am a small woman 5'5 around 120lbs so it is very noticable.  Since feb, I have gained 10 lbs and it looks to be around my mid section.  I am constantly retaining fluid, I can not get my wedding rings on in the mornings.  My bowel alternates between diarhea (diarrhea) and constipation weekly.  I have been having naseau since last fall, to the point I have taken numerous pregnancy tests convinced I am pregnant. I am gassy, if I lie down I can feel the bubbles burst and rise in my belly.  Feels like when you are pregnant and you feel the first movements of the baby - that bubbles feeling...My periods have went from being once every 30 days having a 2 day bleed to having three periods a month.  I also bleed when we have sex.  I also have abdominal pain and lower back pain that is intense.  In my ovaries and in my bladder areas.  It goes right through to my back.  I am also dizzy at times, and feel like I am carrying a sack of potatoes in my belly.  I also have a heaviness? in my upper thighs at times.

Anyway alot of my symptoms were attributed to IC>  But in Feb, my doctor sent me for an ultrasound on my ovaries and uterus.  Feb 15, 2007, a normal cyst was seen on my left ovary...nothing on my right.  He was not satisfied and sent me for a CT scan on May 28, 2007.  A complex cyst with septated sections was found on my right ovary - 2.4 cm X 2.1 cm, that was not on my ultrasound in Feb.  The radiologist referred me for a ultrasound .  I went yesterday for my ultrasound.  They did a abdominal first.  There was a nusing student in with the ultrasonographer, he said I had a mass near my right ovary to her.  He then asked me to change because he was going to do a transvaginal ultrasound to get a better look.  When I went to the bathroom, I noticed I was bleeding - probably from the pressure of my full bladder.  But I got the transvaginal done anyway.  He told the nursing student that upon the transvaginal he could see the mass was attached by a blood vessel to the right ovary.  He said that in the abdominal it looked like it wasn't even attached.  He put the screen in color to show her.  HE said resistance in flow to the mass was low.  He also said looked like good blood flow through the right ovary.  

I asked him if it could be a clump of functional csysts...like my doctor said it could be, and he said no.  It was def. a solid mass.  He was very kind to me.  Both him and the nusre looked worried...but I am trying not to read into it.  Actually the young nurse looked horrified.  But maybe it was a confused look lol...Anyway. 7 days before the results get back to my doctor.

Ok my questions...

1. what do you think it is?  If it is not on the ovary can it still be a cyst?  IF not what other type of mass could it be?
2. Is good blood flow a good thing?
3. Since it was not there in Feb, and now it is there...have I caught it early?  Could it have been there last year just really really small causing symptoms?
4. Should I demand they take it out?  My doctor before the ultrasound was saying that if it looks ok, they may take a wait and see approach...

Anyway, my risk factors...I have had one child at 24 years.  I breastfed him for seven weeks.  I was on the pill from the age of 13 - 23 (I had horrendous periods and bleeding).  I do not smoke, drink, do drugs, I have always exercised etc...I know this doesn't matter, but I am just saying I am healthy besides this and the IC. My mom has IC as well.
My aunt, uncle and grandfather on my mom's side have had colon cancer.  My grandmother on my mom's has had endometrial cancer.  My great grand mother on my mom's side had colon cancer. So both her parents and a brother and sister have had cancer.  My aunt on my dad's side had breast cancer.  

Thanks,

Carrie

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5 Comments
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158061_tn?1202681926
I don't know the answer to the majority of your questions, here is what I do konw, it does not take 7 days for results of a test to get to the Dr's office.  I had an ultrasound on a Wed. and saw the Dr. on a Fri and he had the results.  After what occurred call the office and make waves with the physician and do not take no for an answer.  Then you want a referral to a GYN/ONC, not because I am saying it is cancer, but no matter what it is, you want the person with the additional education in women's health taking care of you.  You will get the best treatment from them.  
1. what do you think it is? If it is not on the ovary can it still be a cyst? IF not what other type of mass could it be?
2. Is good blood flow a good thing?

3. Since it was not there in Feb, and now it is there...have I caught it early? Could it have been there last year just really really small causing symptoms?  Difficult to say, it could have been there for a year and not visualized because it was too small, or hidden by other stuff.

4. Should I demand they take it out? My doctor before the ultrasound was saying that if it looks ok, they may take a wait and see approach...  This goes to  GO TO A GYN/ONCOLOGIST.  They have 3 additonial years of education in women's health when they are not delivering babies and only doing surgery and taking care of women with GYN issues.

CALL THE OFFICE - DEMAND FOR SOME ACTION AND DO IT TODAY.  You will be in my thoughts, keep me posted
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Avatar_n_tn
The report has to go to the radiologist in a town an hour away.  Yes I do not think it should take 7 days, but in the past that has been the average.  I am hoping that if it is urgent, that it would not take that long.  We recently had a radiologist scandall.  The radiologist who was reading the reports made gross errors...100 women who were told they did not have breast cancer, actually did have cancer and went without treatment.  There is a class action lawsuit againts the government for it (public health care, I live in Canada).  So I called my Doctor, and they do not work on fridays so the office is closed.  Right now, I figure the report will get to him by next thursday which is the 21st, and I think when he reads it he will refer me onto a gyno, so I probably will have an appointment the following week....the 25th is a holiday, so maybe the 26th or 27th?  So basically since something showed up on the CT scan it would be a full month till I see someone about the mass.....And this is fast! compared to regular times.  I figure she will say we need to book surgery, and book it for the following week if she thinks it is cancer, or the week after that - so looking at mid July for surgery......just my thoughts....
The private care is much much faster from what I understand.  That is the thing about public health care....it's free but the wait times are horrendous compared to the US.  My sister in law was waiting for six months for a surgery to remove fibroids from her uterus, she went to a private clinic and got them removed the next day - (British Columbia and Alberta have private as well as public systems, where I live - Atlantic provinces we only have a public system....

I do agree, I need them to check it out right away...Not only that but I am extrememly upset and stressed which has kicked up my IC ten notches...I am peeing every ten minutes!....

Thanks for your advice....

Carrie
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158061_tn?1202681926
Call on Monday, do you know if they have digital X-rays? in which case the image is sent over the internet and yes they can have someone in the office pick up the phone and make the call for the results.  The next thing to say, is that they may have ignored symptoms for a year so you want an immedicate referral to a GYN.  I know it works a little different in Canada.  It would seem to me, if you let them know about the breast cancer class action suit, they might listen a little better, but then maybe not.  With my cancer recurrance it was discovered in Feb and I did not have surgery until April, don't know if that helps or not.

There is a woman who posts her, who dealt with the Canada system, send a message to Tybear and ask for some advice.  
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Avatar_f_tn
Hello Carrie.....I must admit I am not understanding what you mean by IC.....I had ovarian cancer and was staged at IC......in that area I am confused.  You asked about blood flow to the "cyst".....no....that is not a good thing.  You also said you will be referred to a gyn.....that is a definate "NO".....you need to be referred to a gyn/oncologist for surgery and you need it now.....YOU HAVE ONLY ONE CHANCE TO GET IT RIGHT THE FIRST TIME.....your prognosis depends on the skills your surgeon possesses.....please do listen to rmarie and me.....we have been on the other side of the looking glass....please stay in touch.....by the way....my ultrasound results were read by my gyn minures after I was re-clothed....I refused to leave until they were reviewed and I spoke to the gyn within minutes....actually he needed a minute to figure out how to tell me it looked like ovarian cancer......be pro-active in your medical treatment....these people are not gods....you are not a helpless little woman who will go home with a "pat on the head"....they need to pay attention to you
"now".....I am not trying to scare yu but you have quite the family history and the "wait and see" game could be dangerous given your history.
Peace.
dian
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Avatar_n_tn

Hi,

IC is interstitial Cystitis, it is a bladder disease - it has alot of the same symptoms as Ovarian Cancer.  Since I had the ultrasound in Feb and there was nothing on my ovary, and after that is when my symptoms changed...I am hoping that is when the cyst came.

I thought it was not a good sign - good blood flow to the cyst.  I do not think there is a gynocologist/onocologist in my province, Im not sure how the system works for transferring to another province.  Our health care system works provincially, so our province pays for our health care...out of province you may not be covered.

Health care is very, very different from the US.  No gyno is there when you do an ultrasound.  It has to be sent to a radiologist to be read.  I know they are not gods, believe me, I have pushed and pushed to get IC diagnosed.  I am calling my family doctor today to see when the results will be in.  We have such a shortage of doctors and specialists that even if you kick up a fuss, there is not much they can do because of the shortage.  Average wait time to see a family doctor is a month...Average wait time at a walk in clinic is five hours....Average wait time for a CT scan is four months...Average wait time for a mamogram (mammogram) is a year...Average wait time for heart surgery can be up to year...The system sucks big time.


I am calling today and trying to figure out what they are going to do....There is a health science centre - teaching hospital about nine hours away with a onocologist section.  So I think I am going to be asked to be referred in there rather than to my nearest hospital - an hour away.  

Thanks,

I will keep you updated.

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