As you all know I just finished fighting the shingles and I am happy to say that they are the same as gone. I still have a little pain and some eye irritation but that is all.
I went for chemo yesterday and spoke to my Dr. I was really hoping that the shingles were to blame for my recent CA125 rise, but he feels that it probably is not. He explained that an infection in the body could cause a CA rise but as shingles is contained in a nerve, that it would not be the same. I did recieve the Avastin alone yesterday, but he also ordered another check of my CA and a CT scan. When I go back in 2 weeks we will talk about what is going on and what the next steps will be, whether to change chemo completely and whether he feels that I need another liver ablation.
For the time being I refuse to worry, and will deal with things when the time comes. I do worry about running out of options as far as chemo is concerned as that is basically what is keeping the cancer at bay. But there are still several that we have not tried yet. I will recieve the CA results tomorrow and I plan on asking what the CT showed though I do not know if they will tell me on the phone. As soon as I know I will let you all know. I am still feeling fine and think that is what matters the most.
I wish all of you going through rough times right now, the very best. Hang in there!
I hope you get some good news regarding your tests. I am glad the shingles are gone. From what I hear they can be pretty painful. Let us know about your tests....Like Kelly said above you hang in there too.
Chris .. you mentioned your eyes. Do you think you should see an optomologist or retina specialist to be sure all is OK with your eyes. Just a thought. I also had shingles in 11/06 .. and then this spring (4/08) found out I have uveitis which is an auto immune disease tied in Behcet's Disease, we think. I doubt the 2 are related, but I just wouldn't want anything to go unchecked since you mentioned your eyes hurting. I will pray extra hard the CA takes a nose dive and the CT shows good results. Judy
I'm glad the shingles are gone. Hearing that you feel fine is good. I know there are things to worry about but you are taking a great stance to wait and see. Worry won't change that. You're such a trooper! ((hugs))
I hope that you get some good reports back. Stay strong. I'm imaging your smiling face right now.
Shingles are miserable....glad they are gone....I remember wearing my father's tee-shirt....anything on my body was painful....I also got something called hand/foot and mouth disease, reminded of shingles...blisters, painful, on my hands feet and in my mouth...it was a strange exam when the dentist asked me to take off my shoes...hehe.
Love your attitude, Chris...you are right...don't waste a good panic...worry when there is something to worry about. You feel good, that is what counts. There are lots and lots of chemos out there.
Stay strong, keep fighting.
I too wish everyone the best, it has been rough lately reading the board. You are all in my thoughts, ALWAYS.
I was going to send this to you in a Private message, but the more I thought about it, I thought that it would be best to share this on the board... just a sign of the times of how we really are just one big family.
Chris, I woke up on Sunday morning and I said to myself, "Oh my gosh... I just had a dream about CHRIS!"
I did. It was unreal. Yet, it was so real as you know dreams can be. We have never met in person, nor have we spoken on the phone, but clear as day, there you were! You had come to visit me and for some reason, I was in the Mid section of the country and not in Minnesota at the time. I wondered if this was a sign that I should have gone to Springfield after all!
Anyway, we had a great visit, but for some reason, it was shortened because I had to go out of town... in fact, I had to fly across the Country to California, or at least somewhere near there, but there were severe storm warnings (Hurricane-type warnings) and you were concerned for me. We somehow got to an airport and we raced around looking for a plane that would go through the safest route so that my plane could avoid the storms...
Chris - I'm sorry that you are going through so much right now. You are right not to stress yourself out or worry, it's not good for us. Take each day at a time and I will be praying for you and your scan results.
Keep a smile on your face - with love, Deandra
The MOST important thing is that you are feeling good. If only we could somehow block out the part of the brain that does the worrying... at least for a day or two.
Yesterday, my mom told me not to ask what my CA 125 results are - yeah right! I kind of see her point tho. No sense fretting about it as it won't change it.
I am sorry you are having to worry about the CA results and the CT scan. You are finally getting the shingles under control and now you have to worry about this too. I am praying that you will get good results and that the CA has actually gone down this time. Let us know, always praying for you! Colleen
I don't want to second guess the results, but that seems like too big a jump. Has anyone seen that large an increase so quickly? I'm interested to hear your CT results. I'm praying for you, Chris. We all are.
Unfortunately that is not uncommon for me when the chemo I am on stops working.
My liver is my big problem area so I figure something is going on there as that is usually the case. My onc did mention that if this was the case then I would probably have to go in and have another ablation done. That is fine if they can get me on a chemo to keep it from coming right back.
Hi Chris, I am so sorry that your CA125 has gone up. You are such a strong woman with a wonderful attitude. I KNOW you are going to find a chemo that works. I am also glad that the Shingles are gone. I am hoping to get to Ill some time in the next month or two and was hoping we could meet up for lunch or something. I've missed you and all of the other gals. Please know that you can call me anytime you want to or if you need to vent or talk. Love you!! Kasie
Chris -- good luck and don't worry about running out of options yet -- they keep coming up with different stuff to try -- I hear patupoline is soon to be added to the arsenal, my doc keeps talking about navelbine, and there are clinical trials in stage II with Dastanib that appear to show some promise ---- I know it stinks because I've already had three bouts and am not in remission just keeping it at bay but as the arsenal grows so does our length of survival --- You have a great attitude and are strong -- I just hope your shingles don't leave any lasting effects and that you have good test results
All the best
Thank you to all of you for the well wishes boosts of encouragement.
I did contact my onc on Thurs and ask about the CT scan and to voice my concerns about waiting 2 more weeks to see him.
The CT show no major changes, and that things still seem to be holding steady. He agreed to not waiting 2 more weeks and wants me to come in Mon. He will go over the CT results and discuss the rising CA and then I am assuming we will decide the next step as far as chemo goes.
Sorry I did not let you know sooner, but I took a few days to get my thoughts back together. I will let you know what decisions we come to on Mon.
I'm glad your scan did not show any major growth going on..that is such a relief!!! I'm also happy to hear you will be seeing your Onc sooner rather than later. I so admire your strength...you have been on chemo forever it seems and yet you are so happy and confident....you truly amaze me. Good luck I'll be thinking of you..(((hugz))~~~Joanne
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