This post made my day and it is only 7am! Let's hope Doxil is the answer for Mom.
Sharon
Finally, the nurse called back, and said she would update the paperwork...and that she was leaving for vacation tomorrow, and if I could come today she would do it, otherwise I would have to wait 3 weeks until she came back. Luckily,my work is a little flexible, and I made tot he hospital in time to meet her.
How completely unnecessary. Its just zapped the last of my energy and patience--doing around the clock care, keeping up with the paperwork, household stuff, and then she had to throw pins in my tires. Anyways, problem resolved.
Thank you all for your support and helpful suggestions. Bohan, referencing I had talked a disability examiner really made the difference I think--thank you! And, tank you for the information on the Topotecan and other chemos. I think we'll advocate to start with Doxil. I'll make a new post about that.
OMG, I can't believe that you have to go through this. It is so wrong for this B&$%H to put you through additional stress.
No word yet? Time for the big guns!
I am currently on topotecan and it definitely causes exhaustion. Chemo week (5 days in a row) is not too bad. I can do things in the morning and get chemo in the afternoon. However, the 2nd week, the exhaustion sets in and I MUST take a LONG nap every afternoon. The third week is not too bad, but I would NOT have the energy to be on my feet all day. Her red count will definitely go down .. and so goes her energy.
It's no skin off the nurse's nose if your Mom gets disability ... she's just lazy.
Hope you don't have to just go in there! What an avoidable hassle!
Okay, just left the nurse a message...and hoping for the best. Will let you know. (I was so nervous!)
Thanks so much Bohan! I will let her know this information, in a very nice way. I have to say, it causes me so much stress to deal with her becasue I truly feel like she is just trying to be difficult and give us the least she professionally can. I will post what happens.
It's awful to be sick and have someone working against you rather than for you. Fight! And right the Nursing Association and your Senators and Reps.
You can tell her that you talked to a social security disability examiner ( I used to be one ) and were told that recurrent ovarian cancer is automatically approved for benefits. She has no right to cause your poor mom more stress and anxiety than she already has in her life. It will be a fine line to walk not to antagonize this b%tch, make sure you are ready with the facts and calm when you speak to her. The doctor should be notified if she continues to give mom trouble.
Sharon