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Endometreosis along with constant nausea, constipation and pain.
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Endometreosis along with constant nausea, constipation and pain.

I have had endometreosis since I was 18.  The kind that grows on the outside of the uterus. I have had one pregnancy and two yrs ago had to have my left ovary and fallopian tube removed due to the scar tissue developed by the endometreosis which had strangled my falopian tube and caused my left ovary to grow 10 times in size with cysts as well.  I was in constant sever pain for a year before I had this done.  When my Dr did this surgery he had to cut me oppen from hip bone to hip bone because the Laperoscopy showed a massive entanglement of scar tissue and cysts around my other organs such as intestines (nearly kinking them) and had drug my colon to my pelvic bone.  He lazered out the scar tissue telling me it would eventually come back and tested cysts. He said they were not cancerous.  I now have very sever constipation and feel very full even after a few bites of food.  Even bending over can make me nearly vomit. I am not loosing weight as some do who have described these symptoms.  I do not know if my colon is strangled again and can not function properly or if my endometriosis is back and I need the other side out.  Is this a case for a gasterologist or a gyno? I don't get the sever pain I had before my partial hysterectomy and the pain I do get is higher about an inch and a half down from my rib cage. I know my bowels are not emptying and I know I have endometrosis but I don't know which doctor to see first.
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13 Comments
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Avatar_f_tn
Hey there,
You know, I don't have any experience in your arena; still, if I was in your spot, I would definately start with my gynocologist. You have a history with your reproductive organs and it could very easily be a repeat of the past.  I don't think I would put it off, either.
I hope you get answers quickly, and find Peace.   dian
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119341_tn?1232567357
I have the same symptoms, and I also have endo. I went to both my gyn and Primary Physician. The primary eliminated gallbladder and pancreas, ulcer and alot of other stuff. My gyn found cyst on my right ovary, and told me the cyst wasn't the cause of all my other pain. that I should see a gastroentologist (sp). I have an appoitment tomorrow. As of now I don't know what to think.
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Avatar_n_tn
What Phelps is staging through sounds about right.  Unfortunately, it comes of as passing the buck, but each practitioner is specialized in knowing specific things.  They rule out and/or diagnose the things they have experience with and allow someone else to check out your other parts.  Sure would make things simpler if they would scrap the cheap ultrasounds and go straight for the CT and MRI! I agree that you should go to the gyno first (unless your insurance if you have any, requires a referral-what a crock).  Then you'll probably be referred back you your primary/GP and then to gastro.

About your feeling full and decreased bowel movment. This is obviosuly not a good sign.  Have you ever tried a stool softener, like docusate sodium (you can buy over the counter)?  I would stay far away from stimulant or bulk forming laxatives as they may complicate a bowel impaction.  This happens when your poo gets stuck (due to adhesions, kinking, perforation or simple constipation).  Usually only water is able to come out.  If this is the case, it is an emergency.

DUe to the endometriosis causing a congregation of your body's cells and fluids in you abdomen to try to clean up in there, I imagine constipation is not uncommon.  I don't have specific experience with it and you should see your doc.  Personal info:  You should have a bowel movement (hopefully not bloody, watery or painful) at least every 3 days.  If not, call the doc.  Any fever should be reported to your doc.  Hope your appointment goes well and you feel better soon!  

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Avatar_n_tn
Thank you for your comments. I do have serious constipation and it will go on for three weeks at a time with only a couple of pebble droppings to show in the entire three weeks.  Then I get seriously nauseated and shooting pains in my back, abdomen and sides along with a fever. Needless to say there is much heartburn and gas.  I am always bloated but during these times my stomach is rock hard and looks as if I were pregnant.  The only way I can reduce this terrible feeling is with laxatives but they make me cramp and I worry that in taking them my rectal muscle will stop trying to do its job because of all the laxatives. So I hold off on the laxatives and the cycle starts all over again.

In studying about the endometrium implants that cause endometriosis I found that they can implant in your intestines and colon along with many other organ tissues then when they are activated by your period they bleed internally which then turns into scaring.  My scaring was a narled mass that drug my colon down to the bottom of my pelic bone.  My doctor is very thorough and lazered off all the scar tissue on my female organs and surrounding organs but if the scar tissue caused a blockage inside my intestine he really can't do anything there.  So I have made an appointment with the gastro. to see if something can be done for this serious constipation and nausea.  I realize eventually I will need a full hystorectomy (right now it's just my left ovary and tube that are gone) but I would like to hang on to them a little while longer as I am only 35.
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Avatar_n_tn
I am scheduled to get my tubes done and I have since been reading about endometriosis.  I seem to have pain all the time..like I have cramps...  Bloated.. nausea...my bowel movements are either one extreme or the other. One week I go..go..go..and the next week I don't go.  As I said, I just started reading about this endometriosis..I was wondering ..without being diagnosed...when they do my surgery if they will see if I have this problem or not?
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Avatar_f_tn
Talk to your doctor about this. He or she can do an exploratory laproscopic procedure at the smae time they do the tubes, to look for endo. If endo id found they can probably remove what is seen, but frankly if it is bad endo the best treatment is complete hysterectomy.

How old are you and are you willing to have a hysterectomy if there is endo?

If not it will most likely return.

But please, discuss your concerns with your doctor, so he can help guide you for proper treatment.

Good luck!
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Avatar_f_tn
I have been thru the ringer with the same ol same ol as everyone of you. I went to the ER with PAIN in lower abdomen. After mulitple tests they said I had vaginosis (treated with antibiotics)and referred me to my OBGYN. She found bladder and kidney infection (treated with more antibiotics) but after taking all the antibiotics, I got very sick and could not stop vomiting.  The doc then said to stop taking antibiotics and gave me a shot for nausea. I ended up in the same boat and back at the ER, they did a CT scan but still nothing showed up. End result, doc said I might have endo and gave me pain meds.  Now, I take pain meds, nausea meds and birth control and still am in the same boat.  I have NO INSURANCE and am at my wits end. Any suggestions?
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Avatar_f_tn
Something is definately not right, so try to find a doctor who will look into a cause. I have not heard of endo causing severe nausea, but i'm no expert. It will cause constipation and pain and bleeding, but you don't always have to have the severe bleeding or all symptoms.

Look for a pelvic pain or endo specialist:
http://www.pelvicpain.org/providers/find_provider.aspx
http://www.geocities.com/endovictims/endodocs.html

Good luck
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196469_tn?1365391575
I have had SEVERE Endo since I was a teen............. I am almost 39 now.

I did have nausea as well.  Every Dr played it off as IBS.  I have terrible adhesions and scar tissue resulting in 4 laparascopies and 2 laparotomies.  All of my parts were out of place due to the scar tissue and etc.  My colon had severe adhesions and a specialist did the removal of Endo there.  All of my "female" parts are gone now and had a an elevated CA125 but it turned out ok in the end.  I haven't felt this good in so long! Despite the post op complications I had, it didn't even compare to the pain I was in constantly w/the Endo.  I am on HRT and it helps w/ the menopause stuff.  I know this good feeling won't last forever because of the scar tissue and adhesions I will always battle.  I am grateful to have found the right Dr to help me.

Talk to your Dr's and if you don't feel they are listening to your concerns, keep looking for the right fit for you.  Good luck and good health!
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Avatar_n_tn
I have endo also.  Actually I just got back today from seeing my doctor with the results from my surgery last week.  He is a specialist in infertility and a gynocologist.  He is putting me on a drug called lupron which will trick my body into menopause for 6 months to stop the endo implants from growing.  Hopefully the endo will stop growing and my  fallopian tubes will be able to open after I am done taking it and I will be able to get pregnant.
   I have SEVERE  scar tissue everywhere.  I am 33 years old and I have just been diagnosed with having endo.  My symptom was severe lower back pain when I had my period.  I do not bleed heavy, and actually only lasts for 2 days at the most.  I do not have cramps either, and have never had them.  Looking back now I have always had a problem with being constipated, and have always had lower back pain.   My neice has endo also, and has had 2 surgeries.  She has totally different symptoms than I do.
This goes out to anybody who reads this, if you think you have endometreosis, please see a specialist, DO NOT wait.  I am paying a huge price right now, and a gamble on ever being able to get pregnant, because I didnt know.
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196469_tn?1365391575
I did 2 rounds of Lupron shots.  After the 1st round, I had a laparoscopy and again after the 2nd round.  The Lupron was only a temp fix for me and I didn't react well to the side effects.  I know alot of people that the treatment really helped, one got pregnant with twins shortly after her 1st round.  Good luck to you............
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178345_tn?1242539846
I too have been an endo sufferer for many years..I had a full hysterectory last year at the age of 40 ...I never experienced nausea unless I had my period...I did experience so much pain...Endo can defintely affect your bowels so I would defintely start with the gyn and have an ultrasound...alot of times they have to do exploratory surgery to see whats going on..l had so much scar tissue from having endo since I was much younger that therre was no saving anything...I  also had to large cysts plus a endometrioma and a fibroid..it is better to be safe than sorry so make and appointment and take it from ther..keep us posted and good luck..Gia :)
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Avatar_n_tn
For those of you with constipation from endo, I have had constipation severely for 2 1/2 years.  I tried all sorts of laxatives.  About 4 months ago my mother told me to take Fish Oil pills.  They work, I am regular now!!!!!!!!!    It is much better than living on Laxatives. I would recommend at least trying them.
  I've also had the Lupron Depot shot.  I believe it helped quite a bit, it was AWESOME not having such horrible periods, back pains, headaches.  
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Avatar_f_tn
i have had endo since i was 15 i just turned 18 two weeks ago..i had the endo removed in september of this year im starting to have pains their again. they have ruled out kidney and bladder infections does it sound like its possible that its back already? they told me it would take a while to grow back depending on how bad it was they said it was bad cuz i had had it for so long.. im out of options ive made an appointment with my family doctor but should i just go to my gyno instead? pleasr answer back with any information or helpful answers you might have
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