Endometriosis?

[Justina20]

i have been having SEVER problems with my lower stomach area from my belly botton to my vagina. to start i have cramping on each end of my overies every month i feel like i am having cramps for my period, but there sever cramps. also my pelivc has sever pain, i cant pee without it hurting i cant poop with out it hurting i can feel like something stabing me in the overies when i try to poop. i have sever blooting in my stomach i look like i am 7 months pregant  (but im not pregant) when i walk it hurts in my overies when i sit it hurts when i stand it hurts i get bloody noses when it starts to be that time of the month. i gained like 20 pounds in the last month and i dont really eat alot.  when i get my period i lay in bed crying because it hurts so so much i cant move i just kick and punch my bed nothing works no midol, tylenol, anything. do you have any idea what this could be?? i have a doctors appointment tomorrow. but the last time i went to this doctor she took blood and did a pap and she said everything looked fine, but i think its something worst. please let me know what you think so i can say something to the doctor. thank you.

[D-fly]

Tina,

Today (Wednesday) is a big day for me as well, I'm getting ready to go into the hospital to have a procedure done that will hopefully shed some light onto my symptoms...I'll keep you posted.

I was surprised to read that your doctor knew you had endo just by your labs.  My doctor claims the only way to reveal endo is via a laproscopy as it doesn't show up on u/s and there's no blood tests to diagnosis it.  Odd that it doesn't show up on an u/s...but I'm no doctor (just one in training with all this medical **** I'm dealin' with!)

Endo is really painful and according to my doctor there's no options left for me to treat it if indeed it ends up that I have it...oh great, just shoot me now!

Take care and keep in touch.


Ravenlady,

I'm so glad you are here.  You posted to another one of my messages and I think your support is fantastic.  Even when you don't suffer from the exact ailment, you always know what to say to encourage other members.  You are terrific!  :o)

D-fly

[Justina20]

D-fly, you are such a sweet person thank you so much. well i just got back from the doctor and she didnt really help me at all, but i am going to a obgyn dr tomorrow. i told her how i was feeling and that im not getting better just worst.  she said she feels i have Endometriosis but all she gave me where pills to help me poop , birthcontrol pills and 800mg motrion. same thing all the other dr's gave me. my husband  was very upset with the dr and told her thanks for nothing, all i did was sit there and cry. so now all i have to look forward to is the dr tomorrow, well im off to another day of work and pain :(

[D-fly]

Hi Tina,

My heart goes out to you.  Please post what the doctor tells you is going on as your symptoms are very similiar to mine.

D-fly :o)

[Justina20]

Dian, i cant thank you enough just reading what you wrote me made me feel better. i was crying, good tears tho :) i hope everything goes well tomorrow i just need to get to the bottom of this i need some answers. ill let you know how everything goes! again thank you~~ tina

[D-fly]

Hi Tina,

Hang in there.  I can tell you that I have travelled the same long and frustrating road that you are on.  We're in this together.  Last week I had an abdominal u/s and a pelvic u/s...I don't know the results of the abdominal one but the pelvic one again showed the same problematic small cyst on my right ovary.  I went through a colonscopy because the pooping problems are the same here...nothing.  As of now the only thing my doctor can find is a small cyst and possibly endometerosis.  He claims the only way to diagnosis endo is through laproscopy yet he keeps putting it off and I am still in pain.

I have tried other options, birth control is no longer an option as I have high blood pressure due to kidney disease.  I did high doses of vitamin B12 and still nothing.  My CA-125 is elevated but whoo hoo, that can be because of a million things and my doctor isn't concerned with the elevation.  My doctor also offered a drug that will put me into menopause for 3 months, yeah right, on top of everything else in life you want to shut down my ovaries, no thanks!

Tomorrow I go for a cystoscopy to rule out any bladder problems causing my pain.  I will keep you posted if any conclusions are drawn on my case and you do the same.  Thankfully you have your husband by your side, just hang in there...atleast you know there are other women out there with the same symptoms and the same doctors who don't seem to understand how uncomfortable we are.  I'm about to grab my doctors privates and let him feel the pain I deal with! :op

I hope the Ob/Gyn is more compassionate at investigating your symptoms.  Have you had any tests to rule things out?

Hugs,
D-fly  :o)

[Justina20]

hi D-fly,
i just got out of work and i just ate dinner now im getting ready for my second job. my day went well just not fast enough! i wish it could be tomorrow already. well the dr did do some test but she didnt really tell me what they were she just said everything came back normal but i do remember they drew alot of blood, i had to pee in a cup and they did a pap. then she said now i know you my have Endometriosis i was like ookk... than she really didnt do anything else. i took the motrion today and i still have pain i took miralax (its a drink to make you poop) but 10 hours later still no poop. now i just ate and my belly looks like i am 7 months pregant :( it hurts. but i can go on and on.. i just want to say thank you for yall's comments it really does make me feel better i feel like someone is finally listening. so thank you alot! have a wonderful day/night :)  *hugs*    ~~tina

RavenLady,
i know what you mean about the dr tomorrow tho im going to one of the biggest hospitals in the east coast(in maryland) so i am praying that i get a good dr and they will help me and listen to me. i hope you are doing ok and you have wonderful day/night :)   ~~tina



~~tomorrow is a big day for me im nervous~~  :ox

[dian07]

It sounds like you are comming from a scary place; I would be scared too. You need to slow down a little bit; take a number of deep breathes and make your shoulders drop down from around your ears!
This is definately a tough time in your life but you can handle it.
Tomorrow, when you see your physician, let him/her know how concerned you are and that you need him to sit down and talk with you. If you were to say, "hey, help me understand what is going on with me", a physician worth his salt will take the time to answer your questions and give you some re-assurances.
If he or she does not then find another physician.
You definately have something going on and you must get someone to listen to you.
Don't ever think your physician is superior to you; he or she is not. Do not give your power to them; they are working for you. Just like they can do things you cannot; you can do things they cannot. Mutual respect is the key to a good working relationship between you and them.
They owe you explanations until you understand what is going on with you.  After all, how can you fight something you don't understand?
Don't give up; don't you ever give up; and, somehow try to not be afraid. I'll be watching for you, kid.  dian