For Barney22 and EchoUK

[catmungo]

Hi - just caught up with your response to last post.  This is for Barney22 - I am interested in your comment that you had a PE and am pleased that you have had no problems with your lungs since.  What treatment did you have for it and did you have to have follow up care for the PE.  I was put on high dose Clexane injections (blood thinners) and this was reduced after the operation to 40ml per day.  I am fighting at the moment to come off these as I have been on them for 9 months but they want me to go on Warfarin - NO WAY!!  So I am preparing a battle for Wednesday and would be really interested in your experiences.  Like I say I feel and am very fit at the moment and Warfarin is not an option.  As regards travel insurance I am going to start researching soon but one highly recommended site seems to be Meditravel Cover who list recent cases they have insured and some are much worse than my case.  Take care and speak soon.

[catmungo]

Hello there - interesting comments on your case.  I had fluid in both lungs but the Norfolk and Norwich only drained my right lung - they sent me home although my breathing was dreadful.  After about a month and one further course of chemo I got a chest infection and as I was in the dodgy stage of chemo the doctor came round.  He checked my stats and they were reading 75 ( really low) so I was sent to the local hospital where they diagnosed fluid on my left lung.  I had a scan and that showed up blood clots which was why I was put on Clexane.  I would think that the blood clots are the reason they want to put me on Warfarin but as the diagnosis was that the cancer/chemo caused the clots and now all that has gone/finished I think Warfarin is mad.  Did you have blood clots or just the fluid but if you had a PE then you would have had the clots.  So tomorrow I want to see if they will let me have aspirin especially as a recent report said that one aspirin per day could stop a reaccurence of ovarian cancer - so I want to go onto that pill.  Fingers crossed - speak soon

[Barney22]

Hello there - I didn't really have any special treatment for the pleural effusion, just the drainage during surgery and then chemo seemed to clear it up.  I had it again a bit with my first recurrence but the chemo got rid of it pretty quickly.  They gave me a number of x-rays and listened to my chest during that time but nothing else when they couldn't find anything.  I ask for my CT scans to cover my chest as well as abdo and pelvis, but nothing has shown up since thank goodness.  I think I've maybe been lucky.  Why would they suggest warfarin?  Have you got heart problems?  Good luck Wednesday!  Cheers Jenny