Ovarian Cancer Community
For Sueg - Staffordshire
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This patient support community is for discussions relating to ovarian cancer, biopsy, chemotherapy, clinical trials, genetics, hysterectomy, immunotherapy, radiation therapy, screening, and staging.

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For Sueg - Staffordshire

Hi Sue, and everyone else, I'm glad to see you are using cream for your hands and feet - make sure you plaster them!   I must say I am greatly impressed with the results of the B6 I will try this as my hair is not coming in as thick or as fast as I would like, some people are never happy - the fact it is growing at all is miraculous I suppose.   I would be please to hear how you get on with the treatment as a friend of mine here is starting the same very soon and I don't want to tell her about my experience.   I do not think we should be shielded about things but positive thinking is much better for all of us and a success story is so nice to hear when things are pretty bad.   The folks up here throw my name about a bit so newly diagnosed patients are not too afraid when they hear the bad news.   I success I think is positive thinking, good food, an exceptionally good husband and a happy go lucky nature.   I first noticed something was wrong with me when I was could not make a quick spurt to beat my step grandson in a race.   I did not let them win to be nice but to encourage them and on that occassion I fell on my face when I tried to beat him.   I knew then something was up and in two months I was in hopsital having an operation as an emergency.   I never went through the agony of others who have some kind of warning - never had a days illness in my life and I was 52 years old - thought it was the change of life and totally ignored the fact something could be wrong, even when my tummy was swelling hugely.  Thats how it started.
Regards to all
Helen Jane.
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Wow- I can't imagine what you are going through!  My thoughts prayers will be with you.  Keep in touch
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Hi Helen,
I ws the same as you.Felt absolutely fine apart from a bit of constipation and 'stitch' when I was out walking.I'm 46,went to see my doc for a 'stick of dynamite' and he examined me and thought my colon was a bit enlarged so he sent me for an ultrasound-got one the next day-I was amazed,two days later saw a Gynae specialist,had the bloods and ct scan and hey presto-ovarian cancer stage 3c-shed bucket loads of tears for about a week,went through the 'why me' stage then got very angry and started fighting!Surgery followed,but they couldn't remove all the tumors,took away one ovary and my omentum,chemo from april to august,no evidence of disease after that, then pains in the stomach December another ct scan and my christmas present was the cancer was back.At the moment I've got an 8cm tumor on my right ovary,inoperable, that they are trying to shrink with Caelyx,had three cycles another ct scan and the tumor hadn't grown but it hadn't shrunk either so now I'm having another three cycles of the stuff,then another scan and we'll decide what to do then.CA125 is 125 at the moment down from the 800's.
Should have next chemo,Wednesday,but my bloods aren't usually too good and I'm often delayed.
Off to the hospital in a minute to see if my bloods are okay for tomorrow.
Have a lovely day,take care.
Sue x
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Hi Sue - Good Luck at the hospital hope the blood is OK - it's amazing how disappointed you feel when they say sorry your not good enough come back next week a real punch in the gut.   Take heart if your CA125 does not come right down the next treatment is topotecan and that is a cake walk in comparison to caylex.   Mine you I am having withdrawal symptons, or at least I hope that is what I am having as I will not hear the result of my CT scan till Thursday when I will see my oncologist at the radiotherapy department.  First treatment of radiotherapy today and did not feel a thing - am told my feel tired but what's new that we can cope with.
Kindest regards
Helen Jane
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Hi helen,
Just got back,white bloods were too low,chemo's rescheduled for next Monday now,if they haven't come up by then,then it will be lovely Neupogen again-wowee!
My oncologist mentioned radiotherapy for me after these next three cycles of caelyx-but I hadn't heard of anyone else having it for ovarian cancer-she told me to 'have a think about it'
Sue x
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