Let me start by saying i am very very worried about my mom, she was having pain in her lower sides for a while now about a month, and a little brown discharge which only came every 2 oe 3 days, she has been urinating more that usual and feeling tired more than usual which i have read are all the signs of ovarian cancer, im terrifed and writting this in tears, i was with her in the doctors office today for her ultrasound result and he said this is what we found, you have a cyst on your left ovary about 8 centemeters and we are going to send you for a blood test to check your ovaries called a ca 125 well i happen to know that is a cancer test and not an ovarian test, doesnt that look like hes trying to hie something from her? something else i found funny was he told her a cyst on your ovary, on the paper he gave her it says large mass IN ovary, is that the same or is it something he is not saying? has anyone had these axact symptoms which turned out not to be cancer? what are the chances of a good recovery if you get a total hysterctomy? wouldnt that remove everything? its really scaring me that he wasnt honest about the test and he said and wrote 2 different things (cyst on ovary & large mass in ovary), are there any comforting words for me at all or its just wait and see, i nkow we have no choice but to wait but sometimes you read things that put your mind at ease and thats what im hoping to hear, please tell me anythnig that you can, also when she gets a reply for her ca 125 what should normal results say? what number should i be worried about? Im so scared, please help
Im so sorry to hear about your mom. I was on here a 2 weeks ago with the same post as you, about my Mom as well. As other say, dont worry now, wait for the blood test which is not always accurate and after surgery of the removal of the mass. Be strong for your mom as I am now for mine. I also was and still am in tears almost every day, but that doesnt help the situation at all. She needs you right now the most, strong and right by her side. What ever the outcome is, remember its not the end & everything is treatable just stay positive and seek for the best doctors who care. Stay strong, take care of your mom, your self and yours.
As far as I have been able to tell, a mass and a cyst mean the same thing. The CA 125 test is used to detect cancer cells, BUT as I am learning it is highly unreliable. The normal range is generally considered 0-37. From what I have experienced oncologists (cancer doctors) usually become concerned with a CA 125 over 60. But, check this out - my range was 38,then 48 then 58 then 95 over a two month time span. I just had it checked again - it is 16. There is no good explanation for this , no matter how many medical people you ask (and believe me, I have asked many). I am sorry you are so worried about your mom,but it makes sense that you are scared.One thing that has helped me in my own panic is to make lists of questions to ask the doctor, then write down the answers when they give them to you. They are easier to remember that way. I will send good wishes your moms way.. Take Care
First you need to calm yourself; take a deep breath and let it out slowly. There is no sense in my telling you not to worry, but, I will tell you now is not the time to panic. This is just the beginning of your journey, no matter what the surgery ends up telling you and your mom.
I am 55 and was in good health except for pressure on the rectum, pressure on the bladder, a little lower back trouble and sometimes a pain in my leg; nothing worth mentioning. Besides, I just figured it was normal because I am "not a spring chicken" anymore. April 25, after a transvaginal ultrasound, I found out I had ovarian cancer. Two days later I had a complelte hysterectomy and I am very glad I did. Six weeks later my chemo began (carbo and taxol for 5 hours every three weeks). Shortly after that my hair fell out. I felt lousy for about a week following the chemo and then began a gradual re-strenghtening. Then the whole thing started over. My chemo ended October 13; my strength and stamina continue to improve and my hair is comming back ( I am getting brave enough to go out in public as "myself" without the disguise of the wig but not all the time; besides it has come back totally white!)
It is a tough thing to go through, but NOT impossible. We are women, afterall, and if we have to do this, we can and will!
You and your mother have eachother and together you will deal with this. Once you find out what is going on, you will be able to develope a plan with the help and advice of your gyn/oncologist surgeon. The best advice anyone can give you right now is to make certain your mom's surgery is done by a surgeon who specializes in gyn/oncology. That is so important I cannot stress that enough.
The CA125 is a test that will give you comfort in the future because it will allow you and your mom to measure the progress your mom and her doctors are making. I get comfort knowing my CA125 is down to 3.9; my oncologist says anything below 35 is in the "normal" range. However, the CA125 can be affected by even a sinus infection; or so I have been told. All I know is that it is a marker showing that something is going on somewher, and there is strength in knowledge.
Take it slow; take one step at a time. You are not even certain what you are dealing with yet. Once you know then you can decide what to do....until then just try to celebrate life with your mom and find strength in eachother. Be strong and may Peace be with you and your mom. dian
I have been so upset about this i even forgot to mention that the doctor also told her she had a fibroid on her uterus, do you think they are linked to one another or is it something totally different?
I am so scared and have so many questions i just cant stop posting them, something else i want to know is at about what stage of cancer would it start making you tired and giving you all those symtoms of indigestion and that?
Does anyone know if a benign cyst will also cause you to urinate more often and also make you tired cuz i cant seem to find that no matter how much i search but i do find it everytime i see the the symptoms of ovarian cancer, my mom has been feeling more tired and urinationg alot more, another question i had was my mom has been going for regular pap tests and biopsys for the last few years and they have always been good do you think if there was cancer it would show on the biopsy? (they were biopsys of her cervix) or do you think it wouldnt go down there? im hoping that if it was cancer they would have seen it on those pap tests or biopsys or do you think it wouldnt hsow up on there? Im holding my breath!
Thank you guys so much for all your replies, i appreciate it alot!
Speaking as a mom, who has had a very difficult time medically the last couple of years, I'd like to hopefully give you some insight. I hope I'm being clear. I feel we all have a duty to each other in the family. They need to be able to express their feelings, fears, etc., and so do I, and how we react and interact during this time makes that work, or not.
The last two years, I've been poked and prodded, diagnosed, misdiagnosed, relieved and scared, hospitalized, surgeries, pills, injections, and on and on. I can tell you, when my girls panic, usually along with me, I'd end up not talking to them much about things at all. I didn't want to burden them, scare them, give them anymore to deal with. Then when it came down to some kind of scary serious surgery stuff that had to take place, because I hadn't shared much, they were terrified. My girls are younger - 21, 16 and 14 - plus we have some real history concerning their father who is an extremely abusive drug addict and alcoholic. Because I didn't talk much anymore, they used their imaginations and the two younger girls imaginations took them all the way to ending up living with their father again because they were sure, I was going to die. Since we had that little episode, I've done my best to keep them informed as to what is going on, as truthfully as I can, but I really have to fight clamming up when they get scared or panic or get upset. That is so unhealthy, for us all.
What I'm trying to say, I think, is that everyone does better if the panic level is kept as low as possible. And I know I really appreciate when my girls don't flip out when each day seems to bring some new revelation as to my health to them, and I know it helps them if I'm not panicking with each new revelation. I hope this is making sense. We all need to support each other. I need to know I can talk with them about things, not hide things. If they seem to be devastated, I'm not as likely to do that, just like if I'm devastated when I'm trying to share it makes things harder for them.
I was tired, bloated (to the point of going up 2 whole sizes of pants), suffering from indigestion, intestinal gas, and upset stomach (including nausea), having migraine-type headaches, suffering discomfort in my side, and was diagnosed at my ultrasound with having a large "complex cyst with solid components" ...all of which are very scary symptoms of ovca. Yet, my cyst (which at times waslabeled as a "complex cyst" and also as a "complex mass", and at one point as a "solid ovarian mass") was still found to be benign at surgery.
If I recall your original post correctly, then initial imaging indicates that the mass affecting your mother might still be inside the ovary. If this is true, then this is truly good news as if the mass is indeed found to be malignant, and if it is still contained inside the ovary, then it is very likely that it would be a very early stage of cancer.
Perhaps you should speak to your doctor about some mild medication to calm your nerves. Even if your mother's condition is not cancer, she will still need your assistance, whether physically or emotionally, in dealing with her recovery from surgery. I had to rely on friends and family to help me a great deal, especially for that first week after surgery. If you worry your self sick, then you will not be able to help!
I posted earlier to you, Im going through the same with my mom as well, except she's already been diagnosed last week. If you wanna chat, Im signed up w. Yahoo. Give me your name & tomorrow when Im on I'll pm you, But for now stay calm & take care of your self & your mom.
my mom has been told that she has a mass on her ovary and has got to go for a vaginal ultrasound scan, this was picked up after a scan on her gall bladder. no symptoms associated to ovarian cancer except loss of weight, but she had been dieting recently and sweats at night. i.m really concerned, anyone give me any words of reassurance?
I was originally told I had a mass on my ovary too but that is just another word for a cyst. Cysts happen a lot - take a look at the cysts 101 post on the health pages. Knowledge is power. It is more than likely that your Mom has a benign cyst. The sweats are just a part of the peri-menoposal state. With my cyst I put on weight due to the size of it plus a uteran fibroid. Hope all goes well for her.
How old is she and is there any family histoy of ovarian cancer? It is lucky she had the gall bladder test so this was found and can be dealt with. Most ovarian cysts are benign, but in case it is cancer she will be able to treat it now and get well. Let us know what she finds out. It is good to have a gyn/oncologist involved in surgery, just in case. Take care, Marie
The post you responded to is an old one. In the future you can post here with a new question. Good luck.
Need advice on how to help my husband deal with his mother's ovarian cancer. She's about 65...him 38 and he's the youngest of 3 (has two older sisters). She was diagnosed with ovarian cancer in mid March 2008 after a routine exam showed a 7 cm tumor on an ovary. I believe she had a hysterectomy years ago. She had surgery the day after Easter, but I'm not sure if they just took cells for testing & how to best treat it or if they also took the ovaries. She didn't start chemo for about 2 months I think after the surgery and just had her last treatment 3 days ago. His dad told him about 6 weeks ago that they didn't think the chemo was working and he went on a drinking beer rampage...he cannot handle stress, back pain, or this and uses the beer to drown his sorrows. I myself lost my mother to originating breast cancer that had spread to her hip & lungs almost 20 years ago when I was 15 (and lost my dad 2 yrs ago to enteroccus--forgot correct spelling). There is very severe cancer in my family, but my mom's gene mutated when she was conceived (Creighton University has been researching my family for over 35 years)...anyway, I didn't have a good relationship with my mom because of her verbal abuse & anger from getting cancer at 57 & dying at 59. I'm the youngest of 14 and live 1500 miles from most of my family. I also don't have a good relationship (no communication & I'm not treated like one-of-the-family) with my in-laws, more specifically, my mother-in-law, who is fighting this ovarian cancer. I'm here for my husband, but how do I help him? He does need alcohol counseling and grief counseling, but his inability to deal & cowardness to drown his feelings with beer is only going to put more stress on our relationship & our almost-5 & 1 yr old boys. He said something a few weeks ago that it's a way of being macho to hide and/or not speak about how he feels.
I would suggest that you get counseling. You cannot change your husband, but you can change how you react to him. It sounds like you have a lot of family issues on both sides and a skilled therapist could help you sort things out and help you choose to live the life you want to live: one that is healthy in the way you deal with yourself and others. And it may take several trys to find a therapist you like who can work with you.
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