Gemzar, Fallopian MMMT, and my mother...

I am reposting this as the last time I got some odd off-topic remarks about nutrition (I am not sure something isn't wrong with the forum...

Does anyone have any experience with gemzar for MMMT? My mother just had her first dose the other day. They gave her some atavan and steriods which made her feel good that day. Today, 2 days later she has a fever and feels a bit under the weather. Nothing like the neuropathy from taxol though.

Her chest CT showed "innumerable" lung mets. Her liver met grew from 1.3cm to 3.4cm in 2 WEEKS! This thing seems very aggressive. She is coughing a bit today. I am assuming that has something to do with the cancer, not the gemzar???

[Tybear]

I'm not sure about the Gemzar.. I don't know if there is anyone else on here with MMMT. I can't believe how aggressive it is... I hope your mom will be ok.
I saw the comments after your post and couldn't figure out what they were talking about - I noticed it said c23, which is the 23rd comment - obviously they are talking about something that belongs on another forum!
I hope someone can answer your question for you...
Becky

[Mark4124]

Yeah... how you been?

[rmarie]

I have no experience with receiving gemzar, however from receiving chemo, I did get very tired 2 days after receiving chemo.  How were your mom's white blood cell counts going into the chemo?  With the fever and cough, I would be concerned she has a possible lung infection.  You might want to call the physician to see what they want to do.  Having just checked the web, flu like symptoms including a fever are listed as side effects of gemzar.  They should have told you, if this was a possibilty.  Call them.  This is not a nice disease she is dealing with.  Hope it works.  How are you doing?

[Mark4124]

I'm well but the rapidness of the progression has been a bit of a surprize... I knew after the MMMT result we were in some trouble, even moreso after the liver met. After the lung scan though... Wow. Those are really nutty results. The cough could be the gemzar, but if not I would hazard a guess that it is related to the lung mets. If the gemzar does not work or does not work well she will soon have to face increasing lung complications... pluersy and that sort of thing.

[rmarie]

How high is her temperature?  that is what concerns me?  That and if is part of gemzar's side effects they should have told you.  I still say call them, a physician must be on call.

[Mark4124]

Fever is a common gemzar side effect. Up to 100.5 is considered normal. So far she has not gone about that. She has stayed 100 or less.

[Tybear]

I always get feverish after my taxol/carbo treatments and I also get a really flushed face. I'm doing my last treatment this Thursday, but only the carboplatin - I can't handle the side effects of Taxol anymore. My tumors aren't responding to them anyway... so I'm off to Toronto to start a clinical trial. It's specific to my diagnosis (MPSC) - I sympathize with your mom's diagnosis. It's bad enough having ov/ca, but it's worse when it's something relatively rare.

[Mark4124]

Whats the clinical trial? My mother couldn't deal with taxol... she had really bad neuropathy.