Genetic testing question

[babeblue94]

Has anyone has the genetic testing done?  If it comes out positive for the mutation, can the insurance companies refuse to treat you going forward?

[Angie1992]

http://ornl.gov/sci/techresources/Human_Genome/medicine/genetest.shtml   has a lot of information and many links.  http://www.ncsl.org/IssuesResearch/Health/GeneticNondiscriminationinHealthInsuranceLaws/tabid/14374/Default.aspx  has all states listed and the laws they have to protect people against insurance companies.

I have had it and with medical advances, they are finding drugs to use against specific genes  (such as PARP inhibitors), I think it will be a huge benefit.   They are working on blanket legislation to protect everyone, I haven't been negatively effected in PA. Do your research for your state because things change and I hope you find the help you need.  If the links above don't work for you. let me know.  Take care, Angie

[Ramsay14]

I don't think so.  Just because you have a gene mutation doesn't mean you have a pre-existing condition.

[babeblue94]

Thank you for your reply and the website information.  Did your insurance company cover your test and do you have the gene?  

[Angie1992]

You welcome.  My insurance paid for the test and I have the BRAC1 gene.  The genetic counselor wrote a letter to the insurance company so they would pay for it and they gave me a one month window in which they would pay as long as I had it done during that month.  I was at Magee Women's Hospital, which is run by UPMC.  My insurance was UPMC too, so that helped.

If you have anymore questions, let me know,

Sending hugs, Angie

[Ormsby]

I had testing - negative for braca 1 and 2. Still got ovarian!  I feel there are genes that are to be discovered!  Good  luck.

[JC145]

I had the BRCA 1 .. no ovarian or breast gene .. .however, I am primary peritoneal (treated and looks like ovarian) .. insurance company paid for it.