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167426 tn?1254086235

Getting back to the real roots of this forum

What is this forum for?    I came here for information about a disease I knew nothing about.
Many come frightened by symptomatic changes in their bodies.
Some come after they are dx'ed and need help on how to deal with the many avenues open to them.
Many come to offer support back to the forum about their own experinces.
Many remain because they have developed friendships.

Paraphrasing  JFK,  "Ask not what you can do for yourself  , but what you can do for others."

If something has been lost,  how do we find it?    What has been lost?  The total feeling of togetherness  to inform, support and gain a positive outlook on the many lives that are touched through this method of communication.

Share with everyone, asking a question , the answers they are looking for.  Answer to the best of your ability, as women, we are all anatomically the same, but physically and mentally very different.  

Just as we are all different, so are all the cancer problems we face.  There is no blanket to cover it all.

As an "outsider"  I have gained from all of your posts, I use some and discard others. What I discard may, perhaps, be used by others ,  But all information is important to someone.  To misuse this forum for our own gratification  and  
posturizing  is futile.

I would like to ask you all to help regain the quality and integrity of the forum, so that we can all benefit  from what it is intended to offer , knowledge, support and friendship.

How to do this?   I believe in the Golden Rule, "Do unto others, what you would have them do unto you."   The cysterhood of women, is a bond, that is so strong, it can conquer  all obstacles when applied together. That is why I love the song, "I am Woman, hear me roar."   Lets put a clean sheet of paper in our forum and start a new vibrant day.

I am more than willing to offer what little I can, I know I gain more than I give, from the dedicated women that offer up so much to others.  So I say to all, ask your questions, offer up the answers and become friends.   Marty
8 Responses
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178345 tn?1242536246
I have chose to answer some of you privately...but so you all know I personally would prefer to put my energy into helping the women on here that need my help...I came on here to be here for whoever needs it and that is what I intend to continue to do...so to all my friends....I am here for you...lets focus on helping each other and if anyone wants to continue this feel free to do it through private messages....I for one do not want to waste any more space on this public forum with this nonsense..especially when these women on here are dealing with more important issues....stay strong everybody and lets continue what we do best ....being there for one another....Gia :)
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360216 tn?1218743000
Amen.  Hugs, Chris P
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176401 tn?1339369307
You're not the only one not knowing what the heck is going on.  This is a pattern on this board...lots on innuendos get referred to without any real info.  It's been like this since I joined and I have no idea what the posts are referring to.  I just try to ignore it and focus on the core purpose of the group.  Helping get thru having the diagnosis of ovarian cancer is enough drama for me.
Helpful - 0
349465 tn?1289081764
I have no idea what is going on and I read this message board every day.  I appreciate everyone who has, does and will participate with posts.  Life is too precious and short for squabbling. (If that is what is going on here.)  There is no drama for me.  Thank you to all of you for being there when I first needed you. Please continue to be here for anyone who falls into this forum. If you want to laugh, look at my hair and that will get you in a better mood. ;-)
Teresa
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272338 tn?1252280404
  I have always heard that we tend to lash out to those we are closest to. I feel that follows through here, on the forum. Though most of us have never met, we have a closeness between us that we cannot find elsewhere. I know that all forums have their ups and downs, and we should be no different. But we need to stop and remember occaisionally why we are all here in the first place. Each of us found this forum for what ever the reason may be, but we were all looking for the same thing. A place where we could come to express our fears, celebrate our joys, agonize our sorrows, and find some answers. We did all that and more. We found a home away from home. We found women going through the same things we were and found that regardless of what we thought, that we were not alone after all. We found a closeness that enables us to have our occasional spats and then to go on. We could not do that with just anyone. We all go through our bad times with this crazy disease, but isn't it nice to know that you have a place you can turn to where people actually understand?
  We all found this forum and we all stayed, so we must have liked what we found here. In bad times we need to take a minute and stop and think, and remember what drew us here in the first place. We are all here for pretty much the same reason and that is ovarian cancer. Whether we have it ourselves, or we are a caregiver, maybe we just had an ov ca scare, but in one way or another, ov ca has touched us. And we are here for each other. And for the new ones goping through what we ourselves went through just a short time ago. We cannot lose our focus, and that is ovarian cancer, and what we can do for our fellow women fighting this same battle. I will be the first to admit that it is a hell of a battle to be fighting, but with the care and support of the wonderful women I found here, it has made that battle a little easier to fight. We are here for each other! So no matter what happens we need to remember that first.  We must not let our little day to day spats take away the true meaning of what we are all about. We can have our spats and would not be normal if we didn't, but we cannot let them over run the closeness and support that we all share.
  Myself, I love each and every one of you and value all you have done for me in my fight against this beast. May we all be here for many more years to carry on the suport that we first found here.
  Love Chris
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Avatar universal
The post that I was referring to is been taken down.. I still mean what I said about helping not hurting...
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Avatar universal
Okay thats enough...I have sat back and never gotten involved but I am about to and if anyone doesn't like it well than have me banned.. If you don't like what someone has to say than ignore them... I came to this forum 13 months ago diagnosed with stage IV and was scared, helpless and felt hopless... and needed advice and you know what thats what I found...NYC was the first to answer my posts and I have made many more friends. and have learned to deal with dying... BUT now I dread coming here and I even stayed away for a couple months hoping this nonsense would stop...

In the real world no one likes everyone and everyone doesn't like me or you or anyone else... thats not the point... educating and helping people is what a forum is supposed to be about.. this one has ceased to be...
There is battle between you and someone don't inflame... I am sorry but I am just going to have sit back and email my friends...and I won't put myself through dreading yeah dreading coming to a forum I once loved... The selfishness and spitefulness has gone on long enough..

You all need to grow up... Have you all forgotten there are a lot of sick and lonely and sad women here... They need our help not the continual snide remarks every day...This post is not directed just at one person... but Gia you don't like Marty than don't answer when she posts.. I happen to really like her wisdom and kindness..  Now if you want to curse me... do it privately... I am tired... Ronni

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483733 tn?1326798446
Well said!
Helpful - 0
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