Granloza Cancer

[MAYADA]

Hi doctor,

Before three months i make a surgery to remove the right ovarian because of granloza tumor, I did not take any further cure like chemo ,,, should i do any tests now or CT
im 32 yrs,,married for three years no kids and two miscarrieges

[ChrisP2236]

I am not a dr but I am a granulosa cell tumor survivor.  You should be seeing a gyn/oncologist who is familiar with granulosa cell.  It is fairly rare so ask  how many women he has treated with gct and find a gyn/onc who has treated it before.  I was seen every three months for the first two years and am now seen every six months.  I have a CT scan every other year, but many women have one every year. It depends on your stage and your dr.  You should ask to have your Inhibin A & B levels checked regularly.  Granulosa cell tumor has a history of late recurrance - meaning it can recur even as far as 30 years after original diagnosis, so you will need to be followed for the rest of your life.  You will need to take control and be your own advocate and make sure they take you seriously as uninformed drs think that it won't come back.  It can and too often does come back.  You can check the OvCa.net website's discussion board - they have a very informative granulosa tumor thread.  Best wishes, Chris P

[MAYADA]

Thank you very much for your answer,,today i have a CT and blood test Inhibin A & B, wish me luck,,the doctor told me the same thing you said which i must do my tests every three months,,until now im holding my self i wish i will stay strong on the future.

i will tell you my result,,thanks again

[ChrisP2236]

Good luck.  You will be strong - it's the best way to fight this disease. Make sure your dr answers your questions until you understand him/her.  It's good to take someone with you or take a tape recorder so you have a back-up for anything that is said to you. Chris P

[MAYADA]

I Had my results and all is good,,thank god
im taking now nonpregnancy pills to set my period,,then after 3 months i will try to get pregnant naturaly for two months only then i will make a IVF

IS that plan good from ur opinion,,,i will be glad to here from you soon

Thanks so much

[megandboys]

This is the same story I am hearing from my doctors too. I had both ovaries removed, but I have two children already.  No chemo for me either. Docs say this type of tumor doesn't respond well to it.  I am also 32.   I have also heard that it can lie dormant fro a long time. He said he had a patient get it again after 15 years.  So, keep getting the inhibins and CA125 checked.  It is exciting to think of a future pregnancy for you. Best of luck to you!  Megan

[MAYADA]

thank you megan,,,yes my doctor also says it might appear again after 15-20 year,,is it enough to make the tests inhibins and altrasounds once each three months?

so i hope i get pregnant soon,,wish me luck

im so glad i heared from you,,,thanks