OVARIAN CANCER COMMUNITY
Grateful06

Grateful06

This is Den. My wife is scheduled to have an appointment with her doctor today. just as the first time we saw a obgyn, we are still afraid of what he is going to say to us this time.
About a little over a year ago, my wife was diagnosed as having a borderline mucinous ovarian tumor and the doctor was talking about appendix and some good news that it was actually more of benign than malignant. it was taken out when she gave birth to our first son, Andres. she was then asked to have a regular checked up every six months. just this year, they found another cysts in her right ovary. Rose, my wife just had a series of exams and now we are about to discuss what they have found out. hwoever just a week ago my wife was tested positive that we are again having another baby.
we are crossing our fingers that everything will be fine and that my wife wont be having a hard time dealing with it.
I just posted this because i want to hear from anyone of you who has a similar situation.
i need to hear from you the soonest. i believe we are a very beautiful couple having a beautiful family. we want to stay this way until we reach our golden age... tahnk you

.... i was asked that u have a similar situation as my wife.  can i hear from u?..den
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Avatar_n_tn
what to ask the doctor? my wife's appntment is 3:30pm.
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Avatar_n_tn
in about an hour or so we will be heading to the doctor.. i wish we know what to ask the doctor... anyway i am posting this message so that people may kknow that we need their prayers...
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Avatar_n_tn
the meeting with the doctor was not that good.  first the doctor we were supposed to see wasnt there.  we met different ob/gyn doctor. but we knew my wife's doctor was just there within the vicinity.  
actually we just moved from northern california to here in Los Angeles.  we were asked to submit papers to give them the permission to get her medical records from her previous hospital (the same insurance/hospital provider though).  and we did that 2 months ago. it turned out this current doctor/hospital wasnt able to ger her record.  for a reason we dont know.  just today they were anxious to get in touch with her previous hospital.  I really dont know what to react with that situation.  my wife and i were just silent about it.
anyway, the ct scan and even the ultrasound came out the same result.  her right ovary has 4x4 cm, and her left 3x3 cm.  and the doctor was talking about surgery.  but we asked if we can just do that with her delivery simultaneously since my wife is pregnant.
since they still dont have her med record from previous hospital, we need to wait until next week. by then, we hope that they can give a definite but good recommendation.
thanks all for your support and prayers...
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Avatar_n_tn


I hope all goes well for you and your wife.

Every best wish to you both.

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Avatar_n_tn
Hi there, I'm sorry I didn't see this sooner, I just saw the one above and thought, hey that sounds like me!
I think you should definitely see a gyn/onc and have them in on the decision.  You don't know if this new cyst is going to be borderline or not, it might just be straight benign.  
I know some women have surgery during pregnancy, but I would think that you could just have ultrasounds along with checking the babies development, and then plan a c-section and have the tumor removed then, OR have a natural delivery if safe, and have the tumor removed later.  
If it is borderline it will grow SLOW I think, I mean mine didn't change size during the whole pregnancy.  
If you have specific questions about this kind of tumor I can tell you what my gyn/onc says, she says it is benign with a very low potential of becoming cancerous (less than 1%), and a complete cure is removing the tumor.  At some point when your child bearing years are over, you can think about a hysterectomy, OR you can just keep being monitored and hold on to those ovaries for as long as possible, because surgical menopause through hysterectomy is very difficult too, there are other health issues to consider, and keeping your ovaries IF POSSIBLE for as long as possible is what she recommends.
She says there is no reason to just have a hysterectomy, like what used to be recommended.
These tumors are not really understood.  I ended up having another one in my other ovary and the ovary was removed last week, and I'm recovering.
Tell your wife she is LUCKY all in all to have a manageable diagnosis, and I don't see why she can't be watched closely during the pregnancy by a gynecologist-oncologist, and I know personally I would be loathe to do surgery during pregnancy unless that gyn/onc could give me concrete reasons why.
Do not talk in terms of death here, that is just not the case with these tumors, OK?  Your wife will not be dying from a borderline tumor, and I say that emphatically because a few months ago I was the one writing goodbye letters to my three children.  I understand the absolute fear, especially during pregnancy.
Take a deep breath, and get that consult with a gyn/onc, and have them follow you through the pregnancy, and then that tumor can be taken care of then.  My guess is that it will not grow more than 1 cm during the whole pregnancy, that is just my guess.
I wonder if pregnancy induces these?  I have so many questions about borderline tumors, and so few answers.  That is our lot, but be assured that this is NOT a dangerous or emergent situation for your wife right now.  Although I am not a doctor, of course, but I have sure been through it.
Wish we could talk by phone so I could help more, but there is no way to swap personal info here.
Take care and try to get information but focus on the JOY of the pregnancy.  Alot of harm can be done to a baby in utero through stress, and this is just not a situation to have active stress over, so your wife has to relax, and grow a beautiful baby!
Ask me more specific questions if you want.
Dr. Goodman, on the other forum, has answered very specifically about these tumors, and says basically the same thing as my gyn/onc, but she does consider it to be more of a subset of a malignancy, and my gyn/onc says "This is NOT cancer" but as benign as benign can be, with an asterix, which is this "potential" it could turn cancerous.
Johns Hopkins has a great site where they talk about this tumor and they say that the term "borderline" should be done away with, because for all intents and purposes, these tumors ACT benign, and therefore should be labeled benign.  Anyway, you are all going to be OK!
Sorry about the verbosity, brevity was never my strong point.
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Avatar_n_tn
Oh, more info, my pregnancy borderline tumor was about 5cm by 4cm, and caused no pain.  The reason I say you MUST consult a gyn/onc is because the OB/GYN was not experienced in these matters and during an emergency c-section, she tried to remove the tumor and burst it in to my abdomen.  Surprisingly, my gyn/onc says this has never been shown to make anyone's prognosis worse, since it is a benign tumor, but of course I panic about it.
So please see a specialist, you have two things going on, you have a pregnancy that any OB can handle, but you have this cyst/tumor that needs a specialist, and I would personally search for the BEST gyn/onc in the state and pay to go to them, at least for a consult.  
Ask me anything, I will help you the best I can!
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