Has anyone heard from Becky today?

[fungirl1011]

I was just wondering if anyone has heard form Becky today.  I know she had an appointment with the surgeons and was wondering what she found out.  If anyone has any information, I would love to know how she is doing.  Thanks, Kasie

[JC145]

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[Tybear]

Thanks for worrying about me...I had quite the day yesterday. I'm just going to cut and paste from my blog because it's too much to write all over again...(if anyone wants the address for my blog, plase PM me - I don't want to post it for everyone to see)


So, I had my meeting with Dr.B yesterday and, for all that he threw at me, I guess I could say it went well. He said yes to surgery and, as excited as I was about that, there are some major and serious items to be considered before I go ahead and say yes myself.
I have to meet with the orthopedic surgeon first to discuss the tumor on my tailbone. He already looked at my MRI and after saying "that's a lot of tumors" also said he felt the one on my tailbone was feasible. He did warn Dr.B that there would be a risk that I could lose some motor function in my legs simply because the tailbone is where all of the nerves from the spine end. If he thought there was a risk I would be paralyzed he wouldn't try to remove it...thank God.
I also have to meet with the plastic surgeon beforehand to talk about what will be left of my abdomen and stomach when it's all said and done. Bottom line - I'm going to look grotesque and be covered in scars (my words, not his). They have to literally cut out several tumors from my stomach and then try and sew me all back together, like a puzzle. I also have to meet with the urologist (next Monday) to discuss my left kidney, the one with the nephrostomy. He said my ureter is "shot" so there's no hope he can fix it and it's just a question now of do we keep your nephrostomy permanent or do we remove your kidney all together. I'll have to wait and see what my urologist thinks would be best.
He did tell me that, while this surgery is no doubt a really big undertaking, the other option I have isn't so appealing. If I don't do surgery, he's given me a year, maybe less. That's it. There's plenty of chemo I could try but the likely hood that any of it would actually work is slim to none - and to think I thought having a slow growing cancer was a good thing...it isn't when it doesn't respond to chemo.
He said that after I speak with these other three surgeons myself, he and I will meet again August 11th to discuss boundaries - as in, if I don't want them to take my bladder, but it's covered in cancer, they won't take it because I told them not to. If I don't want to risk losing the use of my legs and they can't guarantee that once they're in there, then they won't try and remove the tumor on my tailbone. I'm actually really happy I'll have some sort of say in all of this...it makes me feel like it's not totally out of my control. He said the recovery from this will be long - months even. I will most likely be taken to the ICU from surgery for a few days until I'm well enough to go to a post surgical room. I could be in for a long, long recovery both mentally and physically. I heard everything that he was saying but as he was talking to me I couldn't help but feel he was stressed out about this - he was wringing his hands and just looked uncomfortable. Adam's trying to tell me that no doctor would want to have this sort of discussion with his patients but I wonder if he really wants to do this or if he feels he has to because there's nothing else for me. Who knows...
So, there you have it. I have a lot of reading and research to do to decide what I can live with and what I can't. One thing's for sure - I will do anything to be here. I will not leave my son without a Mommy...
Becky xx

[TrudieC]

Becky, such big decisions.  But there is hope now and more time for you.  I think it is wonderful that they let you make the decisions here.  I will keep you and all these surgeons in my prayers.  

[nyc lady]

Becky - they are such big decisions.....but do you really have a choice!!!!!  Know that we are all here for you and I so wish that I lived close enough to give you a big hug and help with taking care of Ty while you are recouping.  

You are always in my thoughts,
Love,
Pam

[butterflytc]

Wow, so sorry Becky, so many things must now be weighing heavily on your mind..I hope between all of you, something can be done. I will keep you in my prayers.

always
Tc

[jane65]

Dear Becky,
We all have our arms around you, and we're praying for the right decision that will give you peace, and let you be the Mommy to your little one that you were meant to be.
God Love you and watch over you.
Jane

[bohan54]

WOW
I am speechless and those who know me know that's a rarity.  I feel for you my friend.
Sharon

[justscore]

That's what you need in your life.............more drama!!!! :)
It sounds like the Dr's are optimistic about your options, or atleast they are giving YOU the power of decision making.  I can't even imagine what you are feeling, your head must be spinning.............
Be on the lookout for a package in your mailbox from Texas!  :)  I wish there was something I could do or say to help............
Hugs
Heidi

[cirella]

Becky, this is very difficult to read!  You are facing such uncertainty and your determination is fierce.  I pray that you are led to the answers you need to make a decision that you are comfortable with.  No doubt this is very hard for your doctors to tell you.  You're just too damn young.  Stay strong my friend.

[marie3B]

I will be in the belly scar club before you.  I know you have alot to think about.  I know what you mean about the doc looking uncomfortable.  Mine was the same way.  He is going to try his best for me because when the chemos fail, surgery is it.  I want the surgery to work for you just as much as I want it to work for me.  I want all of us to get what we need to stick around.  My thoughts are with you.  Marie

[lucymullis]

I have been waiting to hear what happened.  It breaks my heart that you continue to go thru such difficult times.  

[ireneo]

That is a lot to digest. You have some time to ride this emotional roller coaster before you make the big decisions. Wish I could hold your hand. I don't know what else to say.

love and hugs,   irene

[Mary 53]

I read this earlier on your blog and I am still looking for the right words to say. You know that none of us would ever say the wrong thing... and, no one wrote the book on just what to say. Just know we are here for you... we love you... I do agree that it must feel nice to know you do have some say in this, and I like Adam's take on the whole matter. I also get the sense that the doctor WANTS to do this and that this is not just grasping at straws. Optimist or not (and you all know that I am) I have a very good feeling about this. My instincts are usually pretty good, by the way. I just wish the process did not have to be so long and drawn out, so to speak.

But, as my Dad always said, there will be a day when you look back and the time spent in a particular situation (I know that is not the right word for this...) will be way behind you and you'll wonder where the time went. And, btw, my Dad was a VERY smart person.

Here is to future celebrations with you, Becky. Love, Love, Love to you... and, HUGS from Minnesota!

Mary

[fungirl1011]

Wow, Becky, i am so very sorry that you have such a HUGE decision to make.  I am so glad that your docotr is caring enough to let you have some say in what is going on.  I can't imaging how you must feel with all that needs to be digested.  I will be praying for you.  I love you girl and will be here if you ever need to talk.  We are behind you 100 percent.  Love, Kasie

[Burnzie]

Becky,
I wish I could give you a big hug right now.  I can't add much that hasn't already been said; just that it will take time to mull this around in your mind and thats okay. I wish the very best for you, as everyone does.

Karen XO XO

[JC145]

Oh, Becky, my heart is breaking for you.  So much to think about .. so many decisions.  I just don't know what to say.   You are in my heart and my prayers.

Judy

[Angie_Lou]

Dear Becky,

My prayers are with you, too.  Angie

[Sandymac]

Becky,

All I can say is that my heart goes out to you along with prayers.. Sandy

[Ramsay14]

Hi Becky,

Have they discussed with you what kind of treatment they will have you on after the surgery?  You are low-grade histology and hormone receptor positive aren't you?  Have they mentioned anything to you about the use of aromatase inhibitors for treatment after the surgery?

Lauren

P.S.  In regards to your last two sentences...I feel exactly the same way.