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I too have been wondering how Marie is doing. With being gone off and on I have not heard anything lately and I am concerned because I just do not see anything out of her . Could someone let me know what is going on with her and how she is?
Chris
I was thinking about Marie last week and sent a note to her, but didn't hear back. I just chaulked it up to me being new to the forum, but I hope she is okay!!
So many of the regularsRegular insulin are in contact with each other off the board. Is there no one that knows how to get in touch with her? I do hope she's just taking a break.
Spoke to Marie today. She checked in recently only to discover that Terrin passed away. She is not responding to treatment as well as she would like. It takes a great toll on her but she is blessed with a newbornNewborn jaundice granddaughter and this keeps her going. She cares about everyone's progress but just can't quite make it to the forum for now. I gave her our love and she gave us hers.
Marie, if you do check in, do know that we love you and miss you and are keeping you in our prayers. Congratulations on the new granddaughter. Love, Trudie
Thank you Sharon for the update. I can only imagine how difficult it is to be fighting this disease and read about the loss of friends that were just fighting beside you. I'm so happy to hear about her new granddaughter. LittleLittle noses decongestant Little tummys ones always light up our lives. I hope she's getting plenty of baby hugs and snuggles each day.
Thanks for the update Sharon. I often wonder about Marie. I am so happy for her new baby granddaughter. Hopefully it will lift her spirits during these hard times. Marie, if you read this, I just want you to know that I am praying for you and love you, Kasie
Don't worry about posting all the time or having "much to offer." This is a chance for everyone to offer something to you. Giving goes both ways, ya know?
I am sorry to hear of the tumor behind your liver....The other part of your post regarding the good news on the rectal area sounds promising....I hope you are gaining strength...we really miss you.......I have been thinking of you and of course you are always in my prayers........Love, Dawnlyn
I am going to ask that my chemo be held a week on the 22nd. Not recovered much from the last treatment. I know the break will help more than it will hurt me. I keep thinking of westajul. She handled the chemo I am on so well. That is one tough cookie!!!! This chemo has knocked me back pretty hard. I want so much to be here more. I just get so drained of all energy. Nothing much left most days. I will try to do better. No one outside of this forum really gets me. Love, Marie
Thank you so much for updating all of us. I'm really sorry about the progression of your disease...
Don't compare yourself to others when it comes to chemo...we all handle it differently. I remember going on and on (and on) about how tired Avastin made me and someone else came on here and said it didn't make her tired at all - I started to wonder if it was all in my head! Our bodies react in different ways to different drugs...don't be so hard on yourself.
Congrats on your new baby grand daughter :) I hope she's bringing you lot's of smiles...
Becky
Marie,
I was so happy to hear from you. I am sorry that you are not feeling well and dealing with the chemo. Know that I think of you so much and hope that things will get better.
Chris
I have been worried, too. Have not had a chance to be on MedHelp as much as I'd like recently, but I was checking this forum to see what news Sharon (thank you, Sharon!) had to give. Sorry to hear this has been more of a struggle than you'd anticipated.
Saw my onc yesterday. No more chemo. The growth of the tumor behind the liver shows that it is not working. I should be saddened to hear the chemo isn't working, but I am too relieved I don't have to do it anymore that I can't feel too upset. The chemo was not something I could do for much longer. The plan now is to see a surgeon next week. I will let the chemo leave my system then go in for surgery to get my nasty gallbladder out and hopefully the tumor, if he feels he can get it. My onc wants me to rest for 6 weeks before surgery. I now weigh in in the 120s. Have not seen those numbers in a while. I was about 158 when chemo started! She wants me stronger before the surgery and to get the Avastin out of my system. I am looking forward to this 6 week break. I was not able to enjoy the summer on that chemo combination. I plan on eating ice cream and swimming as soon as the oxaliplatin is gone from my body. That cold sensitivity is no fun. Love, Marie
I'm sorry the chemo is not working. But it sounds like a break is what you need. I hope you get the chemo out of your system soon, and you can start enjoying your summer, and new grandbaby! Thoughts and prayers are going out to you, as always.
Hi Marie,
We haven't "met" yet. I am fairly new to the forum, but I had been lurking for quite some time, so I am very familiar with your story. I am sorry about your recurrence and am very hopeful that the surgeon will be able to get all of the tumor. I find it amazing how many of us ovarian cancer survivors have gallbladder disease.
Lauren
Marie,
I am glad that you will get a break. I wish the tumor was gone, but hopefully, the surgeon can get it. Let us know when the surgery is planned. Enjoy your break and the ice cream as soon as you can eat it. Many hugs, Colleen
Marie, so glad your break from chemo is during the summer - so much easier to enjoy and build yourself up at this time of year. Do enjoy yourself and thank you so much for the update.
I can only imagine how good it will be to get back to feeling "normal" again. You have had such a horrible time with this chemo, so not having it will be good for your spirit and your body since it wasn't working anyway. I wish you well with your surgery and hopefully he can get that tumor out at the same time. I have a similar tumor around or behind or somewhere by my liver. It did not respond to Carbo/taxotere, so am trying topotecan. I'll know if it's working in about a month.
Enjoy your family, have a swim, and make the most of your "freedom".
I haven't forgotten you. I did write a note but it slipped away into the ethernet or something. Taking a break sounds like a good idea, let your body recover a little from the chemo. If you indulge in all that summer ice cream, you may gain back some weight. Wish I could send you some of mine. :-)
Please let us know when the surgery is scheduled. I wrote the approximate date on my calendar so I'll be checking up on you. Rest up.
Teresa
Karen
Sharon
Marie - I'm sending you a hug as well. I'm not as cute and I probably don't smell as good but the love is still there. :-)
irene
Sandy
Don't worry about posting all the time or having "much to offer." This is a chance for everyone to offer something to you. Giving goes both ways, ya know?
Wishing you some good news on the 22nd.
hugs, irene
Judy
Love Angie
We're so glad to hear from you, we've been thinking about you.
Please come here to post and just chat with us. The connection to the ladies who understand how you're feeling, is so necessary.
Good health to you,
Jane
Don't compare yourself to others when it comes to chemo...we all handle it differently. I remember going on and on (and on) about how tired Avastin made me and someone else came on here and said it didn't make her tired at all - I started to wonder if it was all in my head! Our bodies react in different ways to different drugs...don't be so hard on yourself.
Congrats on your new baby grand daughter :) I hope she's bringing you lot's of smiles...
Becky
I was so happy to hear from you. I am sorry that you are not feeling well and dealing with the chemo. Know that I think of you so much and hope that things will get better.
Chris
Love, Mary
Teresa
Love,
Gail
We haven't "met" yet. I am fairly new to the forum, but I had been lurking for quite some time, so I am very familiar with your story. I am sorry about your recurrence and am very hopeful that the surgeon will be able to get all of the tumor. I find it amazing how many of us ovarian cancer survivors have gallbladder disease.
Lauren
I am glad that you will get a break. I wish the tumor was gone, but hopefully, the surgeon can get it. Let us know when the surgery is planned. Enjoy your break and the ice cream as soon as you can eat it. Many hugs, Colleen
I understand how much you're looking forward to a break from chemo, I know you'll make the most of every day.
I wish you the best of luck with the surgery and I hope they get that tumor out along with the gall bladder.
Enjoy the next 6 weeks and occupy your mind with things that bring you pleasure.
Jane
Love,
Shron
I can only imagine how good it will be to get back to feeling "normal" again. You have had such a horrible time with this chemo, so not having it will be good for your spirit and your body since it wasn't working anyway. I wish you well with your surgery and hopefully he can get that tumor out at the same time. I have a similar tumor around or behind or somewhere by my liver. It did not respond to Carbo/taxotere, so am trying topotecan. I'll know if it's working in about a month.
Enjoy your family, have a swim, and make the most of your "freedom".
(( hugs ))
Judy
Please let us know when the surgery is scheduled. I wrote the approximate date on my calendar so I'll be checking up on you. Rest up.
irene
Here's hoping that tumor will soon be a thing of the past. Enjoy the break.. you deserve some "down time"..
Keep us posted ,
Love, Sandy