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Hysterectomy complications

I had a total abdomen hysterectomy July 17 2014.  After surgery I blew up like a balloon all over.  I was so distended I couldn't move.  Next day my palms were white and was told I was bleeding internally.  I got four blood transfusions.  Then I was given another catheter and LASIK because I now had fluid on my lungs and my oxygen was low and had trouble breathing.  Then I had degenerative heart failure and had a heart moniter for 3 or 4 days.  I was unable to eat and had no bowel movement yet.  I was in so much pain I could barely move or walk.  I had terrible pain in my lower back and it hurt to lay in bed.  My incision looked great besides a bruise above it about 2 inches in diameter.  
I still couldn't eat or poop and would dry heave water which was so painful because I was still so distended .  It hurt so much and I have a high pain tolerance, still could barely move.  I was finally released eleven days later when I was able to eat.  I was admitted again because of my pain and unable to barely walk or eat .  I was told It was just gas and and to eat soft food and was released.  Five days later I was in so much pain and dry heaving and went numb.  I thought I was dying and to be quite honest I wanted to.  Emergency admitted me this time because I they thought I might have an infection.  I was given antibiotics for 3 days and finally an enema worked and I passed a lot of black liquid. I was released when I was able to walk,  shower and  eat some food without throwing up   It took me at least a week to gain my appetite and a desire to eat and drink.  I was a little anorexic for a 'foody' and was concerned.  The Dr prescribed an estrogen patch which I've worn every day since.  He was concerned I had a blood disorder and have many blood tests and  alll appears normal....I am able to exercise now but I'm very lethargic and depressed.  I have no libido. I have a lot of pain in my left knee and both hands for no apparent reason,   I weighed 123 lbs the day of surgery and 109 when I finally left the hospital.  I have gained back 3-5 lbs.  
I would like to know your opinion.  When will I feel myself again, if ever? I was always very healthy, exercised and a non smoker.  My son died of Hepatoblastoma at age  2 1/2.
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667078 tn?1316000935
Wow what a bad story. I am sorry you went through all that.They discharged me after 6 days and I was not eating. I never saw my doctor again after the surgery. He was in a rock band touring and making a movie.They had me eat 6 small meals a day to get me back eating. Your body gets used to not eating. But then you become failure to thrive and that is not good.


It took me a year to get my appetite back. But I also went straight into chemo. I had gas for weeks. I also had bad diarrhea. My libido never came back. Sex is also painful for me, But I can't take hormones.They told me I I needed a blood transfusion but they would not give it to me. I changed doctors and hospitals and the first thing they did was hospitalize me. Give me fluids, get me eating, and two units of blood.

Alex
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Avatar universal
I am sorry for your horrific complications! It sure sounds like your surgeon was negligent. I developed the opposite problem (severe diarrhea) post-hysterectomy. I lost my libido too as well as my energy and motivation along with many other issues :(  

The patch did not work well for me. I had a long list of hormone deficiency symptoms, the worst being suicidal depression and fragmented sleep. Maybe the patch is not a good fit for you or isn't a high enough dose. Or maybe you need a different brand patch. If the patch isn't working well, you could try a gel or pill.

Hope you find something that helps soon.
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