I received my CA 125 results today

Hi cysters!
My gyn called today with my CA 125 results. I promised myself that I wouldn't get elated or depressed over the results as the results give a high percentage of false positives and false negatives. BUT, I can't help be thrilled that the test came back at 14! Yeah!! I know it isn't over until the surgery is done and the path report is back, but it does make me breathe a little easier.
It also made me think all day long about pursuing or doing more research on preserving my ovaries if possible. My doctor had said no way, that they both had to go, but I'm seeing two new doctors within the next few weeks, and I'm going to ask! Have any of you kept part of your ovaries after removal of cysts?
I've named my ovaries - the left one is "FU" and the right one is "BAR" (Fudged up beyond all recognition). I know "BAR" will probably have to go, the cysts/tumors are inside and it's enlarged, but "FU" only has a very small (its only .5 cm!) lesion in it. So, I'm on a "Save Little Fu" mission. Maybe it's a lost cause, or will lead to future complications, but I am interested in finding out what I can. (My research did turn up the fact that Robin birds have only one ovary - how ironic is that?!) The thought of surgical menopause at 43 seems drastic to me right now. Maybe I'm just feeling too optimistic after my results, thinking I can take on doctors, keep my ovaries, and hey, while I'm at it, conquer the world. Sigh.
Or, maybe I'm just having a hormone surge from FU and BAR.
Robin

[AnotherKatie]

Ohhhh Robin... I am on an ovarian rant right now, watch out.  Dear Wee Fu definitely needs a chance at life!  First I gotta say YEAH! on the CA125 test, be happy, what the heck! YES ask other doctors.  Now some of the ladies on here have suffered with Ovarian Remnant Syndrome, and it sounded nasty, so you'd have to talk to them too.  I love that Fubar thing by the way.  .5 cm is soooo tiny, Gee Whiz.

YES YOU CAN take on doctors, keep your ovaries, well Fu anyway maybe and conquer the world!  You Go Girl (and Fu)
Love, Katie (who still needs a drink)

[birdbath]

Hi Katie!
Thanks for the feedback, I'm going to take it to heart. I just searched back through the posts and found yours regarding the hysterectomy. I must have missed it before. Your frustration must be huge right now. Yes, it's great that your cysts and everything were benign (thank God), but YOU, not the doctors, have to cope with everything else that goes along with the procedure and it's after-effects. You seem to young to have been in menopause before the surgery, so guess this threw you right into the surgical menopause scene. I am screaming right along with you, I really am. Did the doctors feel like they couldn't just do the cyst removal without taking the whole ovary? Were your cysts on the ovary or inside? Sorry for the questions, I wish this site had a way to pull up all posts from just you as opposed to searching through the hundreds of comments. Were your cysts large or small? What kind of cysts did they turn out to be? I'm so glad that you don't have cancer, but I'm truly sorry that you've been through so much. I'm going to print out your story and read it to myself before every doctor appointment. It's hard for us to know what to do, we're not medical professionals, but we all deserve respect and consideration of our wishes. Hang in there, I'll be thinking of (and fighting for) you. Robin

[Gatsby]

Good news again this morning!  This just makes my day ( and yours too!)  We will wait with you.  Godspeed
~Tascha

[Spicegirl]

Good morning Robin - Good for you for getting more advice.  I really feel the more you know, the better chance of the right decision, which of course is only yours.  I am having a complex mass removed next Thursday - I only have one ovary left and my gyn feels strongly about trying to save it - he really doesn't want to induce menopause - You and I are close in age - I'm 44.  I certainly don't plan on having more children, but the thought of medically induced menopause really stinks.  He has indicated he will do his best to save it, but of course will only know once he's in there.  
Good luck with your next two doctors appointments.  Spice (Patty)

[Raynbow]

That's great news! I just hope that subcentimeter Fu goes back  in the crater he came from! Ha!! You're names were funny!
Take care,
(((Raynbow

[AnotherKatie]

Thanks for the writing.  My ovary was called large and measured 4.5 x 4.5 x 1.8 cm.  The hemorrhagic corpus luteum cyst was inside the ovary and measured 1.8 x 0.3 x 1.0 cm.  It was described as complex on the US, which worried me.  I've had many cysts (simple I assume) over the years and they have gone away on their own.
I didn't even have a fibroid apparently.  Guess they don't like a hard, enlarged uterus, but I was kinda fond of it.
I had NO menopause symptoms before... but I sure do now.  Is blinding rage one of them perhaps??? Apparently he couldn't just take out the cyst.  I suspect several factors, one of them being that I am 48 so who needs those parts now?
What is so hard about this is, I trusted my GP and the surgeon he sent me to.  OK they would have taken my uterus anyway, as they took the last ovary, but, how could they say I had a fibroid and I didn't?  I have never heard of this.  A nurse friend told me she thought the best diagnostic would have been an MRI.  I'd be dead of old age before I got one though!
Just be careful Robin.... and get a second and third opinion!
Thanks for your words, Katie

[Moosiebjm]

Good news!  Might I ask though, what are the dimensions of what is going on in Bar?  If this was posted somewhere, sorry, didn't see it and I'm too hormonally challenged at the moment to go on a search. . . :)

Katie:  "Is blinding rage one of them perhaps???"  Too funny, but that would have to be a definite YEEEESSSS!!!!  With the way my stuff has been bouncing, I've had to work real hard to not loose it.  I joked yesterday with my mom.  We had some frustraton yesterday first at her dentist, then at the pharmacy (I've had to take over care of my mom, four strokes before she was 60, she's almost 69 now and has lived with me since Nov of 2000 and my #$%$#@^ sister is of no assistance whatsoever. . .) anyway, I joked that there are strangers in my life right now that have no idea how close to having their heads part with their bodies they came. . .

Anyway Bird - why would a .5 cm containing ovary need to come out?  Love hugs and God bless, Barb