This forum is for questions and support regarding ovarian cancer issues, such as: Biopsy, Chemotherapy, Clinical Trials, Genetics, Hysterectomy, Immunotherapy, Ovarian Cancer Types, Radiation Therapy, Risk Factors, Screening, Staging, Surgery.
Yesterday i saw my Gyno and she said I had a golf ball size mass on the top right of my vaginal cuff. I had a hysterectomy in 1986 and salpingo-oophorectomy in 1996. She said I could have ovarian cancer. I am 47 years old.
Tomorrow she is doing a ultrasound, and a CA-125, creatine and bun, amylase, b-12 and lipid panel and LDH is being done. What will the Ultrasound tell me.
What comes next? Will they have to remove the growth and will I lose the top portion of my vagina? Will I have to have surgery for them to be able to tell if its cancer?
it must be very stressful
it would be unusual for ovarian cancer to present as a vaginal mass
more commonly ovarian cancer presents with fluid in the abdomen whihc is called ascites
why did you have a hysterectomy?
do you know if your cervix was removed?
have you been on estrogen replacement therapy?
in my experience the most common vaginal "masses" after a distant history of having a hysterectomy turn out to be normal cervical remnants
other possibilities if you have been on estrogen include cysts of endometriosis
but ultimately, you need a pap smear and some xrays to sort this out
also you should try to get hold of the operative note from your surgery plus the pathology report to see if you had endoemtriosis.
please let us know what the test results are
I had a hysterectomy due to severe endometriosis. Cervix was removed. And I have been on Premarin and then Estradiol for 24 years. I had a hysterectomy when I was 23 years old and 32 years old when I had a bilateral salpingo oophorectomy. I am 47 years old now.
I have had a normal pap smear every year and just had one done Monday-waiting on results also just had a ultrasound done today-also waiting results, and a CA-125, creatine and bun, amylase, b-12 and lipid panel and LDH was done yesterday.
During transvaginal today there was pain when she pushed the wand towards the right, but no pain on the left.
Thank you for the additional information
with the history of endometriosis and estrogen use, you may indeed have an endometrioma
You may require surgery to remove it. If so, that is complex surgery and should be done by a gyn oncology surgeon.
If this really looks like an endometrioma, ask your doctor about a trial of lupron to shrink it.
please let us know what happens
My doctor couldn't even be bothered to call, she had her office lady call and couldn't even answer my questions. This is what she said " there appears to be a cyst" and she wants a CT done but wants to wait for bloodwork to get back first which is the CA-125 and amylase and creatine and LDH and Lipids. And will talk to me at my appt on Monday.
I asked her how big it was, she couldn't answer, I asked her where it was located and she couldn't answer.
CA-125 elevated. Ultrasound showed 2 masses. Getting CT scan done Wednesday and had Chest x-ray and EKG and bloodwork done today. Gynecologist said she was going to talk to gyn/oncologist today for opinion on ultrasound.
This is what my GYN wrote in her notes, contradicts what she told my daughter and I today.
Needs Ct/Abd pelvis for further detailed description of mass. Will order with fu on Sat. Tumor markers elevated but LD done instead of LDH-will reorder. D/w pt extensively @ this visit that secondary to her medical hx that she needed medical clearance prior to surgery. Also secondary to surgical hx of adhesions advised pt that she would need to go to OR potentially with Gyn Onc. depending on her CT results. Also advised pt that I would not recommend laparoscopy with her adhesive disease history and advised of increased risks of injury with surgery secondary to her adhesions and advised vertical incision. Pt to rtc in Sat for futher discussion of results and tx plan. Pt also advised @ this visit that the "mass" in her pelvis may truly represent intestinal adhesions not an actual pelvic mass.
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