Need help finding out what to do next

[slangley77]

Hi. First of all, thank you so much for helping. I am desperate at this point. I chose Ovarian Cancer as the topic as it seems to fit a lot of my symptoms but I am in no way qualified to make self diagnosis. Below are the symptoms I have been having. I just started short term disability last week becuase the confusion and my memory are affecting my work and we (my Doctor of Internal Medicine and I) are not sure what is causing the symptoms I have. Before I list my symptoms, I would like to share my lab results for my hormones. I am 34 years old and have not been through menopause. These results were taken when I was on depo provera. I have recently decided to stop birth control to see if my body will start producing regular hormones but the depo provera was still in my body when these tests were taken.

Progesterone = .1 ng/mL (The range on the lab results shows anything from .1-.8 as post menopausal
Estrogens Total = 27  pg/mL (The range on the lab results shows anything under 40 as being post menopausal
LH = <.2 (This does not fall in any range on the lab results)
FSH = .4 mIU/mL (This does not fall in any range on the lab results)

Symptoms:
Severe Panic Attacks not triggered by anything in particular. They usually occurr when I am having a normal conversation with someone.
Memory loss
Confusion
Forgetfulness
Irritability
Uncontrolled Emotional Outbursts not triggered by anything in particular
Short Term memory loss
SEVERE pain in feet, lower back, hands and almost every joint in the morning. I have to take a percocet in the morning 30 minutes before getting out of bed because it is too painful if I do not) I take percocet also for three bulging discs in my back that cause sciatica.
Many friends have noticed slurred speech at times but I do not notice it.
Severe acid reflux/indigestion
Distended stomach at times
Ringing in the ears.
Frequent urinary tract infections.

My doctor and I decided it was best to stop the depo provera so I am getting off of birth control and we will wait and see what my hormones do at that point.

I went to the ER today to try to get some answers because I feel no one is taking me serious and they treated me as if I was crazy because I had 3 panic attacks while there. They did run a CT scan and it came back normal. The doctor did not seem to think my hormone levels were causing this and didnt' even think they were that abnormal. They even asked me if I was hearing voices in my head. I am not going crazy and I know there is a medical reason for this but no one seems to listen or be able to put it all together and I can't do it alone. I have scheduled an appointment with a GYN next week and will try a neurologist after that if I do not get answers there. Do you have any suggestions as to how I may find answers. I have dealt with depression and anxiety all of my life and this is totally different. I know it is not in my head and the pain in my feet is becoming disabling.

Emotionally, I am at my wits end. I cannot go on with this pain and emotional ups and downs. Please advise. I am desperate. I live alone and have my son 50% of the time and am scared I am going to get into an accident or something with him. I have run red lights with him and would not even have noticed it if he hadn't told me. I have missed turns to places I go every day. I walk around in a confused state at times. I do have to say that some days are good and there are no symptoms except for the pain. That occurs every day.

I am sorry for writing so much. I just want to list everything. I also need a diagnosis so I can continue the ST disability. At this moment there is no way I can work. My cognitive ability has declined so much that it takes me 2 days to do something that normallly takes me two minutes at work to figure out.

Thank you for your time.

Stacie

[slangley77]

Hi Linda,

Thank you so much for your response. I appreciate it. I made an appointment with my gynecologist and she doesn't seem concerned because I am getting off depo provera and she says that can cause these symptoms but I am not confident in that response. She didn't even do an exam. I have been to so many doctors and they just want to push me out the door. I do have family that I have been leaning on. Unfortunately they live far away but we are very close. Thank you for your concern and response. I hope you are doing well.


Stacie

[Lindamuir77]

Stacie.....you are doing all the right things with regard to your tests, but perhaps try to get an appt asap with a gynecological oncologist, if you haven't already.  You are having so many symptoms.......you are so young and you do sound scared.......just try to do one hour at a time...seek help from a prayerful person.  Ask your son's friends moms to watch im while you go to your appointments....try not to drive with him in the car.  How is your diet, and how are you sleeping?  Do you have a best friend?  I am praying for you to find a solution.
Linda

[slangley77]

I forgot to mention that the CT scan was of my brain, not ovaries.