Aa
Aa
A
A
A
Close
Avatar universal

OHVIRA Syndrome

Exactly one year ago this month, my husband and I were informed that our then 11 year old daughter was born with a transverse vaginal septum or OHVIRA Syndrome.  Last summer she was suffering from severe abdominal pain which resulted in her specialist performing a procedure called a LAM (laparoscopy assisted menstruation) on her to drain the residual blood out of her uterus.  Over the Easter weekend of this year, she was down and out again with this severe abdominal pain, and again resulted in her having to be drained.  She is now 12 soon to be 13 and is still too young to have the reconstruction surgery performed.  My question is:  How do you function or deal with this as a family?  She is devastated that she has this condition.  What can we do, as her parent, to support her and help her through this, more than what we are doing currently?


This discussion is related to "Transverse Vaginal Septum"--Am I the ONLY one?.
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
We live in Canada and she is under the care of the Head Pediatric Gynocologist in the province.  I have done my research on the WEB and I agree that talking to some one other than mom or dad, which she isn't comfortable talking to dad about the situation anyways, wouldn't hurt.  Thanks for the support.
Helpful - 0
155056 tn?1333638688
I wish I could offer some words of wisdom, but I can't.  I know nothing about this syndrome, and any information that I could offer I would get off the internet, and I am certain you have done your research.    Are you in the United States?  Have you reached out to some of the bigger hospitals like John Hopkins in Baltimore?  You can often send copies of reports, etc via email.
Is your daughter seeing a therapist?  I think that it is important for her to have someone that she can talk to, someone objective and removed from the situation.  Wouldn't hurt mom and day either.
Hugs to you all.
Pam
Helpful - 0
Have an Answer?

You are reading content posted in the Ovarian Cancer Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Learn how to spot the warning signs of this “silent killer.”
Diet and digestion have more to do with cancer prevention than you may realize
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.