I think there is a trial going on for the this in Bethesda, Maryland ... Sharon (Bohan) is checking into it, I believe.
Judy
PS: I do not carry the gene ... but YEA for those that do .. finally, something promising.
Is this only for women with the mutation? My Mom had the genetic test and it came out negative for mutation. From what I remember there are two genetic tests for this mutation. Her first test was negative and the geneticist said most likely the second, more complicated test, would be negative as well. Please advise.
thanks
Fiana
Please tell us more! This is very exciting for those of us battling this disease. What side effects did you have? Are you still involved with the Trial? What is the status? Any additional information would be greatly appreciated. Were you dx in 2002? Wow!
I'm wondering if we can go to the UK to get access to this drug????