Ohhhh I'm so frustrated!!!!!! 1 year on chemo

[Alisa42]

My Mom has now been on chemo for one year SOLID.  She started her second line (Gezmar) in January 09 and has had 4 rounds.  She has her chemo every week for 2 weeks and then 1 week off.  Her numbers are moving so SLOW!!!!  This time her Ca125 only dropped 4 points.  She has never gone up but the drop is at a snails pace.  She is currently at 51.  I know my Mom is tired and she is so frustrated.  Ladies is this basically the nature of the beast?  Is remission rare for OVC?  Is it normal for these numbers to drop so slowly?  Alisa

[Alisa42]

While there are days when "the site" can be a bit scary, uncomfortable and sad;however there are MANY more days that it fills me with encouragemnet, love, sympathy and hope.  Many of you women, certainly Denyc and Marie have become my hiding place. Thank you ALL for taking the time to read my post and most appreciatively...responding.   Alisa

[VANative]

Hi Ladies,
Thank goodness for this site, because just when I'm starting to think I'm losing my mind, I come here, and know I'm not alone.
It has been similar for my Mom too, no remission, and on chemo since October again with no results until just recently and it too is very slow.  On a positive note, I have heard of many, many ladies that keep the disease from progressing by staying on chemo and they live quality lives. I understand and hope it will be that way for my Mom...but it really makes me mad.  
I am amazed at her strength and the strength of all the women on this site! What an inspiration you all are.    Alisa and Denyc, I'm sorry you all and your Moms are going through this too, but I do find some peace in knowing I'm not alone in my feelings!!  I pray for their recovery and a cure!  Janice

[jane65]

I know how frustrating this is, my oncologist has told me that I will be on chemo for the rest of my life. My current chemo has kept my cancer stable, and my CA125 at 10.9 so I can't complain.
Of course I'd like a remission, and hope for one, but if the cancer doesn't spread, that's great.
To the daughters who wrote, your Mom's are blessed to have such loving caring girls.

Good health to all of you, and yes we're praying for a cure.
Jane

[SimplyStar]

All I can say is , just keep fighting, we don't know what is just around the corner, maybe that cure that we all pray for.  I really feel that they are getting close now, all it is going to take is just one lucky break for some if not all of you.  I continue to pray nightly for this,  the Angels are with us and I feel they keep saying, fight on girls. It is a rough road to travel, but there is a rainbow at the end.

[marie3B]

I know a few lucky ones with long, full remissions.  In my ovca support group 2 of my friends have kept the beast away for years. I wish it was the case for more of us.  I never had a remission, but was considered stable for a while.  I wish your mom could get a break from chemo.  Our bodies need a break from the poisons.  My new poison is giving me a real scare.  Marie

[Oregondaughter]

Alyssa,

I have no answers.  You know that I'm in the same boat with my mom, you're just ahead of us a few months.  I'll look forward to reading the responses, maybe it will help me too.  Hang in there.  It is so hard not knowing what to expect, what is "normal", where this thing will go.  Most of the time, I just don't know how to be.  I'm spending time with my mom, I'm taking care of my kids and their crazy schedules, but I feel so out of sorts most of the time.  I wish I could just snap out of it.   At least her numbers are low.  My mom keeps shooting up, currently at 500 something.  But really, if the numbers are off they are off.  If she is still in chemo that is so hard.  I will continue to pray that your mom gets a breather soon.  

It's weird, I haven't been on this website for a while, and there you are with a new post.  Blessings to you and your family.  I wish we were both on a different path.

Denyc