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Ovarian Cysts and Factor 5 leiden

Hello and thank your so  much for your time.
I am a 38 and I had a hysterectomy when I 25 due to complications from pregnancy. At the time both fallopian tubes and ovaries were left because of my age. Since then but at different times both tubes and left ovary were removed because large cysts. My remaining rt ovary has had cysts and Dr. has been watching it for years. Sometimes these cysts have become over 6 cm. Because of not wanting to have my last ovary removed I have asked what other things can I do. I was placed on birth control. Which did calm the cysts down. Later on I was placed on a different med which put me into a medical menopause which caused me to gain 15 in 90 days so I stopped taking that. Last year I found out that I have factor 5 and my GYN has explained that I can't take any type of hormone in fear a blood clot may happen. After having another trans-vaginal ultersound my ovary still has a 4 cm cysts. CA-125 was 9 which in fine. At what point do I have this last ovary removed. My breasts are extremely tender 3 out of the 4 weeks each month. I have lots of pain with this ovary. Can these cysts turn into cancer if not removed? What do I do about hormones if I have this removed?
Thankyou so much for your time.
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Avatar universal
thankyou all for the good info;)
Helpful - 0
108861 tn?1227246048
Hi 3Fun!
     I have lived with cystic ovaries since I hit puberty and that was long ago.  I am glad you have them watched as I always have.  However, I never had a functional one get much larger than 3cm before resolving on its own.  I had alot more trouble with them rupturing with about three days of teeth grinding pain before I had my kids.  I still have the occasional painful ovulation (usually the week after if it ruptures) but not like when I was in my twenties and early thirties.  It does not sound like yours has let up any!  Don't blame you for considering the surgery and you are wise to ask about the hormone options.  I dropped an email to Mary53 as she is our resident subject matter experts on bioidentical, may or may not be an option so look for her post.
     I had 2 B9 tumors on my left ovary and had it and the dermod and brennor tumors removed with it.  I am 48 and opted to risk keeping the remaining ovary but it is a risk.  My point is that even though I have a long history of "functional" cysts the other kind that are not going anywhere and although they are usually benign, vigilance is wise.  Makes a tough call for you though!  MV
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Avatar universal
I had a total abd. hysterectomy last month. Pathology showed twisted thrombosed veins in my fallopian tube. Pathology thought I needed to be tested for FactorV because of it, turns out I don't show genetic tendecies for it.
My doctor has told me that hormones are too risky and hasn't put me on anything.  I am having frequent hot flashes and I hope they subside soon... if not I may go to my gyn. and ask for a low dose.  There are plenty of women out there who've had their ovaries removed who don't have to take hormones.  If I never get on them I could live with my issues, but time will tell I guess.

sippy :)
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Avatar universal
Actually, the fact that you have chronically cystic ovaries somewhat reduces the chances of your developing ovarian cancer.  However, you do  have 'health' problems due to this condition.

I will share with you something that some of the best doctors have shared with me. (Not all of them my own doctors, mind you, as some of them I have simply encountered through my work!)  Their basic theory is that when a optionally treated medical condition interfers with your life, how you wish to live it and what you wish to do, then it is time to address the condition.  Examples are when to have cataracts removed, when to have a hysterectomy to stop endometriosis, when to have torn cartilage removed from a knee, or even when to have a joint replacement.

If your condition is becoming unbearable to you, and you can no longer do the things that make your life enjoyable, then it is time to truly address the issue.  Otherwise, if you can manage without the surgery, then perhaps you can wait it out for menopause.

I do suggest talking with  your doctor, perhaps even getting a second opinion, before making any decisions.
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