Ovarian cancer discussion groups

[marsha40]

Hello,

I am new here.  I have been reading the latest postings concerning what this site is about and it does appear to me that most of the women here, thankfully, do not have ovca.  I was diagnosed with ovarian cancer in 2005 and am now being treated for a recurrence.  I did not look for support during my initial treatment but find that I need it now.  I am looking for an active ovca discussion group.  I found the one one the acs site but it does not appear to be very active.  Can anyone recommend another site?

Thanks very much and all the best to all.

P.S.  I remember when after surgery I was discussing some mood swings with my ob/gyn.  He said, well, it could be due to the castration.  Hearing that word was like being slapped in the face.  It may be the correct medical term, but it was adding insult to injury.

[Tybear]

Hi Marsha! I'm 27yrs old - I was diagnosed with IIIc last September 30th and finished chemo Feb of this year. I am so sorry for your recurrance. That is my biggest fear as I'm sure it was yours as well. You beat it once and you will do it again. Are you having taxol/carbo this time? I am all to aware that I will have to face this disease at some point again, and while I didn't initially have a support group the first time, I will rely heavily on the women here when it comes back. How did you know it had returned? Had your CA125 gone up or did you just feel it? I hope you stick around here - I would like to hear your story.
Becky

[dian07]

Hello there Marsha....dian here and I finished my carbo/taxol treatments last September 13th...I am 9 months out and getting checked every three months....my port is flushed every 6-8 weeks...man oh man..I think hearing the words "recurrance" just might be worse than hearing the original "malignant"....geeze....how are you doing?  I would need additional support (outside my family that is) if I found myself in your shoes....tell me what's going on....my e-mail  ***@****    ...I can hook you up with others too....there is a site some of us go to have real time chats...if you are interested we might be able to set a time to meet with others who have ovc or have had ovc just to chat....please do let me know what's up, how you're doing, what you are doing, how you were diagnosed..etc....I am 56, one of us is only 27 and the others are all over the place in age, experience and knowledge....you don't need to find another site....we are here!
Peace.
dian

[fungirl]

Welcome to the site.  Eventhough most of us do not have ovca, there are some that do.  You will find so much love and support here.  I pray that you stick around and give us a chance.  I alos pray that your cancer goes into remission again.  It must be so upsetting and frustrating for you, but please know that we are here for you.  Kasie

[Gatsby]

Welcome to the site.  I am so sorry to hear about the recurrance.  I hope that your current treatment helps and you go back into remission.  As for the use of the word "castration" I understand your dislike of it's use.  The same goes for everyone here on the site.  It is an ugly term with very negative conotations.  I myself only have 10% of an ovary left and am scheduled for my hysterectomy on June 27th.  You will find so much love and support here.  You are in my thoughts and prayers.  Godspeed
~Tascha

[newlifegal]

Hi Marsha, I am another ovca survivor.  I was also diagnosed in 2005, finishing tx in November.  I would like to offer you my support as I'm sure the others in the 1% club would as well.  Like you, I didn't take part in any support groups when initially diagnosed, my reason being that I was too fearful of what I would read.  Now that I'm further along in the process, I find it very empowering to be a part of a group that can share experiences and learn from one another.  I am so sorry to hear about your recurrence; that very word strikes fear in me but I know since I'm an advanced stage that sooner of later I will likely have to face it again.  Please feel free to join in our discussions; you are most welcome here and you will find most of the women to be very warm and caring.

Christa

[Gina21]

Hi Marsha - I just finished going through chemo for a recurrence back in Nov 2004. I was originally diagnosed as Stage IIIC in Sept 2002 (at 46 years old), went through the 6 rounds of Carbo/Taxol and got to enjoy remission until Nov 04.

Just like you, I did not participate in a support group when I was diagnosed. I understand how you feel....you will also find other women on this site who have experienced the same. Just like Dian mentioned, we would love to know your story and are here to help you in any way possible. Please keep in touch - you can ask us whatever questions you may have or if you just need to vent....we are here for you!

You are in my thoughts and prayers --- Gina