Thanks Gail.. The biggest problem is that I don't know. He did not bother to explain to me. All he said that there is a cyst and earged ovary and test it for CA125. And left of course.. I wish he would tell me more.. I am terrified of course.. I am in process of planning a family and now this happened.. :((
First and foremost, it is completely normal to be in panic mode. This is new territory for you, and they all use big words and give you just enough information to make you look like a deer in headlights.
You are right that a CA 125 is not very accurate, and CANNOT diagnose ovarian cancer. It is used one of the tools, however, to give your doc more guidance in how to proceed. If it is elevated, it still doesn't mean cancer. Even a benign mass (or even a resipratory illness) will raise a CA 125. One of my doctors once told me if you shook HIM up and down, then tested HIS CA 125, it would probably be elevated. But, it might spur him to schedule a CT scan for a better look.
If you read through some of the previous posts, you'll notice a common theme in them. That is, if there is even the slightest possibility cancer is there, then please see a Gynecological Oncologist. They are specially trained to deal with cancer of the female reproductive system and can perform optimal debuking in surgery (which is remove all visible traces of cancer from the mass to the tissues surrounding it). I don't say that to scare you even more, I just want you to be aware there is a specialist out there who can give you the best chance at getting it done correctly.
Not sure I gave you any answers, but I do hope you get the answers you need from your doctor and you can get this process going as quickly as possible. Good luck to you, and come back and let us know what you find out.
Gail