Please REad for me

[skin matters]

hello I have been reading some posts. Im 46  (history): 3 massive tumors removed between ages of 20(Dermoid) then Fibroids(36), Uterus removed in 1996 due to extremely painful periods lasing up to 2 weeks. Half of one ovary gone, used to have endometriosis also. Only females cancers in family (sibling Uterine Cancer) Grandmother Breast Cancer), Ive also had 2 large breast tumors removed (benign).
Ive been feeling quite ill this year, extreme fatigue, then in last month bowel/bladder problems, Urologist said bladder is fine, had Colonoscopy done (because both parents have had polyps since thier 40s) it was fine. I started having cramps (female) just like the old days (I have no uterus),scan (ct) done showed spot near or on ovary year ago), just had Vaginal sonogram last week (showed 3 cysts), left Tube which is HUGE he keeps saying is fluid filled (this thing looks monserous) so right now BOTH sides are hurting ever day. HE ordered CT scan again it was done last Friday (still no results), NO C-125) blood work done (think thats the name), Im sweatin massivly having severe hot flashes(GP blood test said no menopause yet), the pain last night was so severe in Tube it went all the way down groin and leg and I was sweating profusly.

My OBGYN did say he would do a Laparoscopy on me to check around if CT doesnt show growth in that spot they saw a year ago or I would suppose if it DOES show growth. I feel like garbage.

FYI (Im almost criticly ill from rare Brain and Cord disease) already .
thanks alot
J

[sdp4314]

Good grief, you poor thing.  I was just reading your posts and you've been through so much already. About that CT Scan, I personally would let your gyn go in and take a look.  Your symptoms are similar to what I had prior to my surgery.  I had a complex cyst (benign) and massive adhesions that had covered my intestines, kidney and ovaries.  Everything is out and cleaned up and I am as good as new in that department. Sorry to ramble, it's just that a "spot" can cause lots of problems, plus you need to find out what the "spot" is.  You could have scar tissue/adhesions too as they don't show up that well in scans sometimes.  As much pain as you are in, I'd let them go in and see what's going on.  Have you seen a gyn/oncologist?  

Shawn

[skin matters]

well my OBGYN called and left message while we were out tonight. He is still not sure if my symptoms are caused nuerologicly or what, but the CT scan did show the spot that was there a year ago (next to Ovary) is still there, last year I know it was at least a couple Cenimeters in size, he didnt say it was smaller so Im assuming its same size as was or larger.

symptoms: severe rectum /vaginal pain (pressure), but I also have Nuerogenic bladder. Bloating after EVERY meal with gas but none of the stomache meds we have tried are doing anything (no reflux feeling, but nasuea. Colonoscopy was clean. Terrible CRAMPS, I have no uterus since 1996 and have only half of one of my ovaries on one side.

ULTRASOUND he did last week showed a COUPLE of ovarian spots that look like cysts and One fallopian tube is humungeous.

Im sweating bullits daily.
Cancers female wise (Uterus and Breast-Grandmother and Sister)

He wanst me to call him next week and discuss what to do (he offered to take a Laproscopic look inside) offer still holds.

Im clinicly in bad shape health wise, I have an ENOrMOUS Tumor on spine (tethered) that neesd to come out since patholgy was too mixed by Biopsies) I have a shoulder that is TORN and needs surgery (Im more than happy to wait on that one).

If it were you (yes I KNOW you are not doctors) but I repesct your opinions for all you also ahv gone through.

My past (huge Fibroids, massive Dermoid)uterus gone, Hormonal blood test (right at edge of Menopause), Im 46 1/2

HELP!!!!! this added suffering is harder than you know on me, I told him last week I didnt want to die suffering more than I already am, sorry to be so blunt! but those are the facts and Im still here for now thankfully.

Much much hugs
Skin Matters

[Gatsby]

I really think that you should seek a 2nd opinion with a gyn/onc.  They are specialists in women's gyn issues and have seen it all.  I think that a gyn/onc could work with your dr. and get to the bottom of this.  Please keep us posted.  You are in my thoughts and prayers.  Godspeed
~Tascha

[skin matters]

thankyou Much /Sharon, Im sorrry you too are waitting for answers (hugs), BOTHy ou laides THANKYOU!!!, I diddnt even want to write but by today I justt needed to tell ONE person at least. Yes sharon I have eto take my Pain meds already at nightt for my nuerlogical Pain that is 24/7 6-7 level of pain (on Pain scales), IM NOt much of a pill taker. I HAVe plates screws in head and spine Shunt, and a massive sized TUmor on spine that was supposed to have surgery last montth (that waas just an addded perk to my life (smile). I DONt feel sorryr for msyelf I feel well aware of the Phsyicall STate Im in with progressions, but NO one sohould have to sufffer this type pain when tHey are already fightitng for thier life, I wouldnt let my Dogs livee this way (I adore my 2 poochess they are tiny ,adopted and the sweetest and They really Cheer me up!.

I Had a nice BAked potatoe for dinnner and some garlic breadd with melted cheese, it was nicee since I hadnet eaten all day (I HAve to mainly have shakes and soft foods )

FEeels good to talk to otherss going tyhrouhg these things. BLess your hearts for writing me.

J

[shazzybow]

sorry to hear you're having such a terrible time, the pain sounds dreadful. do you get any painkillers for it? i was also wondering how long you have to wait before yoe get your next scan? i have found that its this constant waiting without any answers that's the worst. let us know how you get on, thinking of you, all the best, sharon.

[skin matters]

thankyou again (smiles), one of my bestfreinds is a 2 time Ovarian cancer survivor, shes also ran in triathalons and has been a nurse for about 25 years now (pediatric) she went on to adopt 4 children, hence we met 11 years ago and we both had survived thus far our serious health issues and today we are both still here on earth, if anyone knows a good OBGYN Onocologist it will be her, I will ask her about this (I havent even told her of my latest female issues becuase of some family issues shes been having  but I promise I will.

I honestly dont know alot about symptoms of serious female issues (such as cancer) except for when my sibling had her uterine cancer so I had no problem having mine removed with tumors and had already had 2 kids (via csection) Im still amazed I was able to have them at all!!!, God BLess miracles.

Im bloated and nauseas, prevacid isnt working, my lower back is just killin, I told my OB both these things. Im so tiny due to my severe Dysphagia that its easy to see it on me.

MANY hugs to all of you with your own health worries, I relate more than you know and send you my Hope and love and Peace tonight.

J

[skin matters]

thankyou Mickey Vicki, its hard position for me as I spend 99% of my doctor visits with Nuerosurgeons, pulomonary and GP, I love my OBGYN as far as compassionate , I feel hes so consumed with my nuero stuff he donest want to worry me or help me in other things that CAN go wrong , that have nothing to do with my other health issues. I practicly begged him last week to please not let me suffer, that I didnt want to die suffering like this and if he oucl just make the female pain go away I could at least be at peace for a while. I told him Im having so much pain in my rectum and vagina (sorry for the explisatives) like they are going to fall out, and that this is having extreme affect on my Autonomic Dysreflexia, I sat there and balled likea baby, he did say he would promise to help me even if it meant going in and taking a look around my female organs.

I feel helpless at this point. sorry bad weekend, Im one Tough as nails gal so for me to beg someone to help is hard, but I live in so much pain already that adding this pain is out of control for me even.

thanks for lettting me vent today I appreciate your writingg me, jsut helps to know Im not alone.

Peace and Hugss
J

[MickeyVicki]

Personally, I think that you are way overdue in getting a new doctor.  Just how long does he intend to let you suffer?