Post hysterectomy Ovarian Tumors/ endometrial complication?

[pavemikig]

After years of moderate Endometriosis- and Due to severe anemia, I had a hysterectomy in 2002. I was diagnosed with Thyroid cancer a year later, followed with I-131 treatment, and a recurrence and a second I 131 treatment. Due to A history of PE's. My dr and I chose to leave the ovaries at the time of the hyterectomy. In 2005, My INR went out of control, and thru a full body CT scan, they discovered a tumor larger than a grapefruit encompassing my left ovary. 7 hours of surgery, removing the tumor/L ovary and a mass of adhesions which had fused many of my organs together...My oncologist has followed me closely.
In March, I started with some *just not right* symptoms, the fullness...and they found 2 tumors on the R ovary. due to a lack of insurance...I waited until this month...when A hospitalization from an MRSA flare in my lungs gave me a pneumonia....I left with severe pain and bruising in my lower right Quadrant.
The ultrasounds (Trans vag and reg)  show a Right Adnexal "mass" up to 8.6 cm in size. Showed no definitive internal bloodflow and suggested a Hypovascular andnexal or ovarian neoplasm.
The US report was Complex right Hemipelvic/adnexal area mass.
A CT was ordered to follow up: results: Complex relatively Hyperdense mass in the right adnexa, anteriorly located and displacing the bladder. Size is over 8 cm.in diameter. The radiologist report says it is almost impossible to tell if this more associated with the rectus abdominus muscle as the R ovary is not clearly visible. He leaves it with a possible severe hematoma,, but recommends f/u with my oncol and an immed consult with a GYN....
I am a relatively informed patient...but there are just too many possibilities and confusion. PLEASE, any advice, guidance...between my cancer history and endometrial status...I don't know whether to be scared or try to wait out the pain...HELP!
Thanks...chelle

[Annekathryn Goodman, M.D.]

Hi There Chelle
you need to have those ovaries completely removed. Another option if you are not a surgical candidate to try go on a course of lupron to see if the mass shrinks

dear pavemikig
you need a laparoscopy to get a diagnosis. If endometriomas then depending on your age and fertility interests, they can be treated with resection or lupron.  If you have completed child bearing, a full removal of the uterus , ovaries, and fallopian tubes will completed treat severe endometriosis

[pavemikig]

I went in for the appt with the GYN my oncol got me set up with.
Immediately on Physical (external exam) - he expressed concern we were dealing with much more than the radioligist had seen
On internal exam, he said the mass was much larger. I have blood in the urine, and there are several masses- one enveloping the remaining ovary, and one he believes to be a very large endometiroma
and another mass near the rear of the abdomen, back by the rectum, so they can't tell until they go in what we will be dealing with.

Ok....this was not what I was expecting...ANYone, ANY advice, support-?? Dr's I am just trying to prepare for the *what If*'s....Thank you

[pavemikig]

Thank you for your reassurance.  2 days before your reply, I was finally able to get into see a gyn here in town.
He started an external exam, and then during the internal, said there were more masses and they were larger than the CT led us to believe, He said, although I am a terrible surgical candidate, He really felt this needed to be dealt with fast and surgically. So he has put a team together, including my oncologist...and The mass and the ovary are coming out by Nov 12.
I'm a little nervous about the *Instant menopause* that is headed my way...but the complex mass that has taken over and caused me this pain, will be gone soon...but everyone is serious about getting this done and doing it fast!!
Thank you for your help and reassurance! Truly, Chelle

[Annekathryn Goodman, M.D.]

Dear Chelle
sounds like a perfect plan.
please let us know how your surgery goes
best wishes