OVARIAN CANCER COMMUNITY
Sertoli-Leydig Ovarian Cancer

Sertoli-Leydig Ovarian Cancer

I was diagnosed on 11/30/09 with a stromal tumor, more specifically called Sertoli-Leydig, which is a rare type of ovarian cancer.  It is Stage 1B.  I had a total hysterectomy on 11/20/09 and DaVinci Robotic surgery to remove lymph nodes for biopsy on 12/11/09.  The lymph nodes came back negative (yay).  At first I was told I would probably need 3 sessions of chemo.  I went to the chemo oncologist on 12/28/09 and he called today after reviewing my chart/records.  He said that since the tumor was confined to my right ovary and no other cancer was found that he doesn't think I need chemo.  I am happy about this, but also wonder what the future holds.  I have an appointment with him in 2 weeks and have a lot of questions to make sure he and I are in agreement on everything that has happened.  Is there anyone else who has had this type of tumor?  I'm still scared, as this is all so new to me.  I do want this tumor to be looked at by a second pathologist.  He had at first said it was benign.  5 days later it was changed to the aforementioned.  Just looking for thoughts from others.  Suggestions?  
Thanks,
Kim
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I had a stage 1 (I don't remember it having a letter) Sertoli-Leydig cell tumor 3 1/2 years ago, when I was 16. They removed my right ovary, using the laproscopic DaVinci robot as well. And my lymph nodes came back negative too! My doctors said from the beginning that if the surrounding lymph nodes came back negative, I wouldn't need chemo. And from my understanding, since the Sertoli-Leydig cell tumor is encapsulated by the ovarian walls, it's unlikely for it to spread outside of the ovary, except for during the surgery. So I didn't have chemo, and I have had no recurrences or anything like that. I remember how alone (and scared and really angry) I felt when I was going through this. It happened fast for me too. I was diagnosed at the beginning of August 2006 and the tumor was out by the end of the month. Not to say that it was easy by any means or that I don't think about it all the time, but the hospital parts were over fast. I got blood work done every 3 or 4 months the first year, and now I get it done every 6 months. Hope this helps!
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