I am 3 years post treatment, a long remission. I have been having some vague pain in the pelvic area, and had some urinary frequency for a few days, seems to be getting better. But still, there are some twinges in several spots, including on top of my pubic bone. As it so happened, I had my check-up yesterday. The tumor marker is good and within my normal range (9-14), and he couldn't feel anything but ordered a CT scan - will have it Wednesday.
I guess the tumor marker is not always preceding recurrence? It was always a good indicator for me - 1000 at time of diagnosis, dropping to 70 after first treatment and to below 35 after the second treatment and staying there for three years.
I am worried. I feel that the longer I am clean of the signs of cancer, the more likely it is that I will be struck down at any appointment. It's such a crazy disease to live with it.
It is wonderful to hear about a three year remission! As far as catching a recurrence goes, it can be many things that lead a doctor to suspect one. It sounds as if your doctor is on top of it. Mine was discovered by a CT Scan. I see that you are having one next week. Try not to worry. Let us know what results you get from the CT. I hope you will not have to go through all of it again. But, it sounds as if your cancer is very receptive to the chemo treatments. That is a good thing!
It is so wonderful your CA has stayed low over these past years. My CA started to rise after a month post treatment and it went up then put on tamoxifen and it went down and that stopped working and it went up .. bits at a time until it hit 105 this month. The roller coaster has kept me out of chemo for over 2 years. This past PET/CT showed some spots and the CA had a 25 point jump .. so I am able to start Carboplatin with Taxotere on Monday since I had the long transmission. I now OH SO WELL the feeling of a weight hanging over your head while in "remission". I don't think our family and friends "get it" ... but I kept waiting for this to happen. I am, however, not relieved that it has come to this, just hopeful I can pull off another couple of years.
The fact that your CA has stayed low bodes very well for a good CA125. (My MD prefers PET/CT).
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