WHOS HAS A CYST WITH FLUID AND TISSUE COMPLEX AND IT CAME OUT BENIGN??

as most of my friends know surgery tues - in hosp mon to see anesteologist nurse, etc. getting all the plumbing out.
complex cysts   just got off the phone withmy gyn/onc in honolulu top inhis field in the country - thee best in told.
im confused aboutthe complex cyst its 7.2 fluid in it plus some tissue growing, he told me it can be benign - or it can be mal. they dont know until pathology he did say chances are onmy side its ok
i chickend out on my ca125 he waned me to do - too scared to take it but hes gonna have it done he said when i get there on monday, he said all my other blood work normal, all organs normal, no ct scan nec. i said wait, just remove the ovaries, he said you wanted a full hyster i booked the operating room and my team for that and told me recover from two overies is the same as taking my uterus as well...so i said lets do it all then........he still gave me a choice.....
please pray..........im a *)(*)* mess more today, tomorrow is my last daytill post op as we are flying to honolulu from maui on sunday, to rest up and get other things done......would love ot hear from somebody who has had this type of cyst/tumour/growth and it was ok
kathy

[sk2006a]

i don't have anything to share with you, except my prayers for you and good luck on your surgery!

[RavenLady]

Aloha Kathy,
     Things are movng fast for you now, that in itself is frightening, I know, but at our age, there is absolutly no point to the dreadful watchful wait the younger Cysters endure.  7.2 cm is not going anywhere.  We talked about that!  The Doc was absolutly honest with you, that's a good thing even if it is disturbng that all our pre-op tests are not conclusive, that's the problem with this beast, no way to tell before hand.  My cyst (turned out to be two benign tumors) was classified as simple and totally fluid filled on 1st US and a month later, same as yours, fluid with some solid components.  It is all pretty much by guess and by golly pre-op.  There are so many Cysters here who, post-op, can tell you about the disparities between the pre-op classification of our aliens and the reality post-op.  Be grateful that the watchful wait will be over for you Tuesday, as frightening as that is. It is what needs to happen now.  You can do this Kathy, Believe!  Your Friend & Cyster Always, Mary V.

[cirella]

Kathy, Your posts sound so panicky.  I'm sorry you are so scared.  I don't know why we automatically think it's the worst.  I know I did, too.  It doesn't help that the doctors have a kind of matter of fact attitude about it, either.  But, they DO see these things all the time and probably 90% of the time they are correct.  The truth is that they just cannot tell for sure until they go in for a look and do what they are professionally trained to do, which is to evaluate and act accordingly.  Trust God that He has put these skilled people to care for you.

The weeks before my surgery I worked myself up pretty well but, then, the day or two beforehand I had this strange peace about me.  On the day of the surgery I told myself that today is the day I find out what it is...no more, no less.  This enabled me to just wait and I knew that no matter what it turned out to be I would take it one day at a time.  

I had a cyst on my right ovary that was complex in matter.  It was filled with old blood and once biopsied was found to be benign and endometriosis.  My ovary was shot and my doctor took it out, too. There are a couple of cysts on my left ovary that the doctor thought looked like normal cysts that occur during ovulation.  I think it's a watch and wait for those, though.  I have had pain on the left side only for a long time, never my right where the bad cyst was.  

Take it one day at a time.  I wish you well.
Lori

[toadster]

OH GIRLS..........GOT A LUMP INMY THROAT AND AN ACHING HEART AS I READ YOUR LOVING WORDS.  HOW CAN I THANK YOU.....THERE ARE NO WORDDS.  I DO FEEL ALONE WITH THIS AND INTELECTUALY I KNOW I MUST DO THIS AND FACE IT, AND NOT KNOWING AND NOT BEING ABLETO CONTROL ANYTHING IS GETTING BLIND SIDED.  THIS HAS ALL HAPPENED IN THE LAST 2 WEEKS - SO FAST AND SUCH A SHOCK.
I AM GRATEFUL IM IN ONE OF THE BEST HOSPITALS IN THE PACIFIC RIM AND HAVE THE BEST SURGEON ANYBODY COULD ASK FOR. MARY, YOU ARE SO RIGHT IT IS WHAT IT IS AND THINGS ARE MOVING FAST,
I WANT MY "MOM" THE LITTLE GIRL IN ME, BUT SHE IS AN OLD LADY IN CANADA ILL AND CANT FIX THE OWIES ANYMORE.  I AM AWAY FROM HOME IN CANADA, BUT KNOW I COULD NEVER HAVE THE BEST SUREGEON, HOSPITAL CARE OR THE FAST ACTION THERE SO I AM VERY FORTUNATE.
I SO WANT THIS TO BE OVER, YES MY EMTIONS ARE ON A ROLLERCOASTER,JUST THE WAY I AM I GUESS. THANK YOU CAN I WRITE MORE FOR SUPPORT TOMORROW OR SHOULD I JUST DEAL WITH THIS ON MY OWN.......
WITH LOVE TO YOU ALL
KATHY

[leeloulee]

Hi Kathy
I just wanted to send you some more support and happy thoughts

I totally understand your fear and high anxiety

I too felt the same 4 weeks ago at 36 I have just had 2 huge cyst removed one ovary went all the way to my lung I had a total hyst and then they found cancer in my uterus so I start radiation on my lymp nodes next week as they were not able to remove them .

If I had not of had those cysts Kathy the cancer would not have been found
there is always a silver lining it just takes some people longer to see it

Life can be really bad but when you wake up and things are on the mend and they will mend Kathy you will be ok what with so many people here thinking about you how could you not be.

Deep breath listen to some music ring your favourite people eat what ever you fancy just dont waste this time evry day is so precious so smile better yet smile at some one they may not tell you but it could mean the world too them .

I guess im raving but its just me good luck kathy your not alone
Leelou

[AnotherKatie]

Hi There Toadster,
Of course you can ALWAYS write, we have ALL been there... I was a total hysteric!  As per your subject line, I had a large complex cyst and it was benign.  I was terrified too.  (I also had massive fibroids, severe anemia, only one ovary, some uterine changes, etc.)  Doctors just refuse to say either "It's benign" or "It's not benign" until the tissue is examined closely after removal.  It's just their way of handling these events.
Now, one thing I can tell you is that ... it is not a great idea to remove organs that are healthy, in that I mean, if your other ovary is healthy and your uterus is healthy, I would lean in favor of keeping them.  We tend to PANIC and scream "Get it out!" but in hindsight I think too many women are having organs removed "just in case they become cancerous", which I believe is wrong and a bit of overkill.  They are not chopping off men's parts for the same reasons!!!  Cysts, even complex cysts, can and do resolve on their own, although, I personally would always have a complex one removed.  Some women on this site have had them monitored for a few months and the cysts have disappeared.
My surgically induced menopause (in February) has been very tough to handle.  There are a lot of things to consider...not just hot flashes.  Do your research and try not to panic and as a result make too quick a decision.  Your uterus holds up a lot of internal organs, such as your bladder.  I now deal with stress incontinence, which I didn't have at all before, and a myriad of other things... vaginal dryness, low energy, weight gain, insomnia, reduced libido, etc.  I am on bioidentical hormones which are helping but they just can't replace what you lose.
Best of luck to you, again, I sure feel your fear, but try to make the right decision for your future .....DO NOT PANIC.  
Katie (in Alberta :)

[toadster]

OH THANK YOU .....WHERE ARE U IN AL? My litte brother is in Ed.
HOW NICE TO HEAR FROM YOU AND WHAT HAPPENED WITH YOU..ITS NINE THIRTY AT NIGHT IM ALONE AND THOUGHTS ARE RACING AS I SIT AND WAIT.  I DONT KNOW IF I COULD GET THRU THIS WITHOUT YOU GIRS, HONESTLY.  IT IS SO DAMN SCARY - THE WHOLE THING. I READ AND RE-READ YOUR ADVICE, I STILL CAN SAY JUST TAKE THE OVARY IF THERE IS NO OTHER SURPRISES IN THERE, MY UTERUS IS HEALTHY AS IS MY RIGHT OVARY..AND EVERYTHING ELSE IN THERE EXCEPT THE L. OVARY -ITS GOTTA GO. I KNOW WHAT YOU ARE SAYING ABOUT THE ENTIRE SURGERY,EVERYBODY SORT OF HAS A DIFF.APPROACH, THIS DR. IS NOT THE TYPE TO TAKE IT ALL OUT HE OFFERED THE LAPAOROSCOPY EEN AFTER THE BAD REPORT ON THAT WEIRD LOOKING CYST. YOU ARE RIGHT I PANICKED RIGHT IN HIS OFFICE AND SAID GET IT ALL OUT!!!!!!!
THEY SAID WOMEN MY AGE 52, AND OLDER CAN DEVELOP MORE PROBLEMS LATER DOWN THE ROAD WITH THE HEALTY OVARY AND THEY GO IN AGAIN AND HE SAID WITH YOUR EXTREME ANXIETY LEVEL WHICH HE UNDERSTOOD, SAID ANY CHANCE OF MORE SHOWING UP ARE NIL.....
I SEE HIM MONDAY JUST THE DAY BEFORE, NOW I AM SO CONFUSED, I DONT KNOW WHAT TO DO OR THINK. AS I POSTED, HE SAID I BOOKED FOR 2 HRS FOR YOUR HYSTER. BECAUSE OF MY CHOICE I LOOKED AT HIM THE OTHER DAY ANDSAID WHAT IS BEST, HE SAID MOST LIKELY ALL OF IT OUT, BUT ITS STILL YOUR CALL. THE RADIOLOGIST WAS ALL EXCITD, HE LOOKED AT ME AND SAID GET IT ALL OUT ASAP.......WELL
JEEPERS CREEPERS WHATS A GIRL TO DO OR THINK...........
IM JUST BLOODY WELL LOST..............TOADSTER  HELP...........

[toadster]

ohhh you are so incrediblke with your comforting words i wish so much you were here right beside me, in the hospital, recovery, the whole thing.  The virtual team will be with me,
how do you think of all of these things, the boquet of lovely red roses "for a blue lady" remember that song ????? AND FROM MY CYSTERS. WHOM I ADORE. I ONLY HOPE I CAN RETURN THE SUPPORT WHEN THIS WHOLE BLOODY MESS IS OVER WITH. DONT MEAN TO CURSE, IN CANADA, IT ISNT A SWEAR WORD!!!!  just feels good to say it among other things right now!  I WANT GOD IN THAT OPERATNG ROOM, BETWEEN THE SURGEON AND GOD, BOTH OF THEM WORKING TOGETHER, I DO NOT WANT ANYTHING NO BAD NEWS BEARS!!  OH LISTEN TO ME, IM ALMOST EMBARRASED BUT TO FEARFUL AT THE MOMENT TO REALLY CARE...YOU KNOW???  I WILL PROBABLY JUST NEED SOME SUPPORT TOMORROW AS WELL, THE KIDS JUST ARE SORT OF OUT THERE, I THINK MY DAUGHTER IS SCARED.....AND I KNOW MY MUM WORRIES BUT IS PUTTING UP A POSITIVE FRONT AS SHE ALWAYS HAS.  I DONT HAVE TIME FOR THIS DAMN DISEASE.  BUT HAVING SAID THAT........I GUESS WE COULD WRITE BOOKS ABOUT FEELINGS, THOUGHTS, ACTIONS, ON ALL OF THIS AND LOOK AT THE COURAGE YOU ALL HAVE.  I AM STRONG IN SO MANY WAYS......AND A FIGHTER WHEN I HAVE TO BE, JUST SEEMS IT HASNT KICKED IN YET.   STAR, YOU ARE A WONDER TO BEHOLD..........I LOVE YOUR WORDS AND TEARS OF ENCOURAGEMENT FLOWED..............NEED A HUG, GIRLS, KATHY

[SimplyStar]

I will be in the operating room with you .  You just won't know me, All the nurses wear masks there you know. God is the only one not wearing a mask, because he will keep breathing the breath of life into you. You will just think it is the anesthetic you are breathing. You just won't care that you are laying naked before an audience, or listening to the jokes they sometimes tell to break up the tension. Tell that surgeon that an "old nurse" from Iowa is looking over his shoulder. I should tell you this story about me.  I don't eat liver, heart, kidney or even natural casing saugage.  My hubby loved them all, he was a butcher, I cooked them for him, but only would handle them with rubber gloves.  Too many years  in operating and delivery rooms.

[toadster]

OH YOU ARE FUNNEEE! first grin i have had all day....DONT YOU EVER GO TO BED????  about your hubby the butcher eating allthe "Organs"!!!  THAT IS TOO MUCH.......LOVE YOUR HUMOUR MINE IS VERY SIMILAR.....I CERTAILY WILL TELL DR.TERADA AOUT MY ANGEL IN IOWA - AND I WILL USE AND I AM VERY SERIOUS MY REATIVE IMAGING AS THEY WHEEL ME IN EVEN THO I HAVE NOT SEEN YOU FACE TO FACE MY MIND WILL BE FOCUSED ON YOU BEING THERE - WHY DO WE MET THE MOST BEAUTFUL PEOPLE ON THIS PLANET WHEN IT HAS TO BE SOMETIMES AT A SCARY TIME- MAYBE BECAUSE WE ARE SUPPOSED TO. I VEYR STRONGLY BELIEVE IN EVERYTHING, TIMING, NO SUCH THING AS COINCIDENCES EITHER.   HEY...YOU GOT A DATE WHEN YOU ARE NEXT IN WHISTLER, I WOULD LOOOOOVE TO INVITE OYU TO MY HOME ITS HALF AN HOUR FLIGHT FROM VANCOUVER - ITS ON A 180- MILE LAKE THE CITY I LIVE IN CALLED KELOWNA - CHECK IT OUT ON THEINTERNET. ITS THE FT. LAUDERDALE OF CANADA, THE HAWAII OF CANADA HAVE TO SAY ONE OF THE MOST BEAUTIFUL PLACES ON EARTH AND THE SKIING, IS TO DIE FOR - OUR SKI RESORT CALLED BIG WHITE, KELOWNA BC IS ALSO ON THE INTERNET AND PEOPLE THE WORLD OVER COME TO BE THERE EVEN INTHE SUMMER ITS GODS COUNTRY AND ITS HOME.
MY SON JUST CALLED, HE JUST GOT HOME FROM WORK, TRYING TO REASSURE ME, HE WILL VISIT ME IN HONOLULU HE IS GOIING OVER THERE FOR A ROCK CONCERT - HOW LONG DO U THINK I WILL BE INTHE HOSPITAL FOR.....ALSO I KNOW ITS A PERSONAL DECISOION, WHAT ARE YOUR THOUGHTS ONJUST TAKING THE ONE OVARY....EVEN THO I PANICKED AND SAID TAKE IT ALL AND THE DR. SORT OF NODDED.....I JUST WANT YOUR THOUGHTS ON IT..........LOVE YOU AND BY THE WAY
TELL YOUR DARLING DAUGHTER WHO IS GOING OT HAVE A WONDERFUL XMAS SHE IS A LUCKY LUCKY GAL TO HAVE A MOM LIKE YOU, BUT THEN I AM VERY SURE SHE ALREADY KNOWS THAT.....WITH WARM THOUGHTS AND I CANNOT FOR THE LIFE OF ME THANK YOU JUST STAY WITH ME STAR.....THATS ALL I ASK.              A BIG HUG AND EMBRACE KATHY

[SimplyStar]

Kathy:   This coming Tuesday will be your day to shine. Keep telling yourself that all will be fine. Relax dear and try to spend these few days pre-op doing the good things you enjoy. You have a great surgeon, loving family and a host of "cysters" that care about you. We will all be in the "virtual" operating room with you during your surgery. I will help out there where I can.  Do the sponge count, wipe the Docs forehead, and whisper in your ear, that "alls well that ends well". When you get back to your room look for a "virtual" bouquet of red roses from all of us. Next time I go to Whistler to baby sit while my kids ski maybe I will look you up. I did alot of watching on a web site from BC, the eagle nests, and the eggs, this summer.

[AnotherKatie]

Hi, How are you holding up today?

Listen, we have a nice little MSN group that we set up.  This is the address

http://groups.msn.com/BulgeBattlingBattalionCysters/welcome.msnw?&pps=k

(I hope I did this correctly).  It is private and lots of fun.  You ladies are welcome to join....

I have the funniest story to tell you about Kelowna! I am not going to post it here, but if you can figure out the other site I will!

Hang in there,
Love from Katie

[RavenLady]

Hey Kathy, I off to help my youngest sister move but will be on later, hope to run into you then, so glad you met Katie!  She's one of my major pals, what is it about you Canadian Gals!  Guess being from Minnesota we make great Cysters!  MV (your Angel & Pal!)

[urbangal]

Can't figure out that other site..is there some trick?
Mary

[urbangal]

Good Morning Kathy! I Hope you are feeling stronger today. I want yo to know that I too will be thinking of you at 2pm pacific on Tuesday. Take our support and FEEL IT> I too felt very alone in the week before surgery with a sick daughter,mom and husband and no relatives here. It is tough but you know what? All we ever really have is ourselves in the end and YOU CAN DO IT!! You will be stronger for it..ok ok I know I was a crying coward before surgery but I made it and trust me I am the biggest most huge scaredy cat you could possibly meet...I know you will be ok..You need to release control to God..Just release it and try TRY REAL HARD to relax for the next 2 days.Just say to yourself I am not going to panic(as someone said your wasting a good panic!)until I know I have to.And right now you don't have to yet. Where are you staying in HNL or are you at the hospital SUN and MON night? If not HNL is really vibrant and happening so take your DH out go for dinner and watch that beautiful hawaii sunset(I can see it clearly!).Just TRY..go shopping..get the hair done KEEP BUSY for the next 2 days..Do you go to church or pray? Start..it will help I promise ..it will help you from going over the edge..And simplystar is right ..God won't abandon you.
Mary

[SimplyStar]

God does hold us in his arms.  I know because my son with Downs was on life support for 11 days and I went to God and asked him to hold Chris and he did. Chris recovered when all thought he would not. But I knew he would because of my faith. There is nothing that heals anger, pain, stress better than a little talk with God. Just let it all go and give yourself to him.

[AnotherKatie]

OK... hmmmm.... I will try and get somebody to post who knows more than I do!  Did you copy and paste the link, I think that's all you do, then you follow the prompts and ask to be invited in and the ever brilliant Mid clears ya for entry!!!  I remember it took me several tries to figure it out, I am easily frustrated though!!  It's WELL worth it though, the gals are great!
Check back here later  :)

[toadster]

WELL THANK YOU ALL FOR YOUR UNCONDTIONAL SUPPORT - HAD A RESTLESS NIGHT AND WOKE TO YOU KNOW THE DREAD FEELING....
EACH DAY NOW SEEMS TO BE HARDER THE CLOSER IT GETS.   MY MIND JUST DOES NOT WANT TO  DO ALTHE THINGS YOU GIRLS HAVE SUGGESTED
ITS LIKE ANIGHTMARE TO ME NOW....3 WEKS AGO FURTHEREST THIG FROM MY MIND and now here we are

I DONT FEEL I HAVE ANY STRENGTH TODAY MENTAL OR PHYSICALLY.....its raining here for the ext 5 days, miserable so I cant relaly ocupy my self - I CANOT HELP BUT BE CONSUMED AND LISA MY DAUGHTER DOESNT NOW HOW TO HANDLE THIS...KEEPING HER DISTANCE ABIT, I HAD TO CALL HER WE AR SOOOOOOOOOOO CLOSE,
AND SHE IS VERYQUIET, NOT KNOWIN GWHAT TO SAY SHES 25 ON THE 19TH OF THIS MONTH AND AS U KNOW PREGNANT TOO.   SHE SAYS MOM IT ISNT CANER I JUST KNOW IT I JUST DO........MARY YOU KNOW HOW ARE FEARS ARE THERE -  I JUST HAVE TO TRY TO GET THRU THESE LAST DAYS AND IM WALKING THRU A THICK FOG GAWD ITS DAMN HELL IM SORRY IT JUST IS AND IM TRYING SO HARD BUT FOR SOME REASONMY ANXIETY LEVEL IS OVER THE TOP.   ;LOVE YOU WILL BE HOME ALL DAY
KATHY

[toadster]

mONDAY i SEE THE DOC ONE MORE TIME AT NOON, THEN GO OVER TO QUEENS MEDICAL CENTER TO DO THE ANESTEIC STUFF, WIT H  THE NURSE TCH.

TUES AT NOON I CHECK IN THE ANESTEHSOLIGIST COMES TO TALK WITH ME HALF HR BEFORE, THEN AWAY WE GO........I AM PRAYING..........MY FRIENDS BACK HOME ARE, YOU MY SUPPORT SYSTEM ALL ARE, WHY IS IT STRANGERS BUT NOT SEEM TO GIVE US MORE THAN OURKIDS.....I FEEL SORT OF ABANDONDED BY THEM BUT IM N OVERDRIVE THINKING IM LITERALLY DIAGNOSED..........YOU KNOW HWAT I MEAN.
I WONDER IF MY CHANCES OF BENIGN ARE STILL HIGH............ALMOST AFRAID TO ASK THE DOC THEY DONT SEEM TO SAY MUH THEE SPECIALISTS DO THEY ALTHOUGH iM SURE THEY HAVE A DARN GOOD IDEA FROM THE ULTRASOUND....I MIGHT WANT TO READ IT BEFORE SURGERY, DO OYU THINK I SHOULD OR JUST NOT GO THRE???

anY SUGESTIONS????
tOADERS

[urbangal]

Hey kathy..hang tight..almost there.Your kids probably don't know how to handle yr anxiety.I say this because my hubby couldn't handle mine either.Problem for them is that you like me had already diagnosed ourselves and they don't get it because they think 'just wait to see'. In the case of my hubby all my tests were good so he just took that at face value and couln't understand why none of the tests releived me. Don't worry,if something were really wrong they'd all be there in a heartbeat,i'm sure.AS for reading the u/s report,why bother at the moment? In 2 days you'll know and do you really need that right before surgery?
Maryxxoo

[mamadabomba]

Hi
I am new to this site yesterday. I am so glad I found it. I too am having surgery Tuesday Dec 5th! I know your frustration. I had the ca125 test but it came back normal. However, my  one ovary is growing into some other things. I had a hyst 4 years ago! I think you and I will be waiting together for the pathology report. It will be the longest wait huh? Good luck to you and I will be watching for your news.  Shirl

[toadster]

YOU ARE RIGHT IM NOT LOOK AT THE REPORT...WHY!!!!!!!
trying to play dr. is all im doing, trying to be in control.....
OF WHAT!!!
oh MY SWEET GIRL.....JUST HAD ANOTHER LONG TALK WITH A DEAR RIEND IN NELSON, B.C. WHO HAS KNOWN ME FOREVER.   IT IS A COMFORT AND YEP, LIKE YOU THESE LAST FEW DAYS ARE AN ETERNITY
EVERYBODY AROND ME IS SO POSITIVE IT WILL BE ALL FINE....
IM TAKING THE LAP TOP WITH ME SO HOPEFULL I AN TYPE FROM THE HOSPITAL.   DO U REMEMBER IF YOUR CYST HAD NORMAL DOPPLER FLOW - MINE DOES AND IM TOLD THATS GOOD ESPECIALLY IF THERE IS SOME TISSUE GROWING THERE NO SOLID MASS FLUID AND TISSUE AND SMALL AMOUNT O FBLOOD. NICE EH????
SHIRL.......WELCOME TO THE BOARD, ITS INCREDIBLE....AND WHEREVER YOU LIVE PEOPLE ARE SO SUPPORTIVE AND UNDERSTANDING.
WRITE ANYTIME.WE ALL LOOK AFTER EACH OTHER.   WHAT IS YOUR CYSTS CLASSED AS AND HOW BIG?  has your do suggested anything to you ????????????
WELL ITS TEA TIME AND REFLECTION TIME MAN TH WEATHER IS CRAPPY HERE TODAY, MAYBE GOD IS AROUND THOUGH.......IM OKAY IN THIS MOMENT IN TIME FOR NOW.  I DONT LIKE THE NIGHTS MARY.....
HOPE ONE MORE POST OR TWO ILEAVE TOMORROW AM AT 11 THIRTY SO WILL CHECK BACK AND I WILL BE UP LATE AS IM NOT SLEEPING ANYWAY
THANK YOU MY FRIEND................AND SHIRL........YOU WRITE AND ASK ANYTIME

MISS OF THE WALL GIRL
PS YOU ARE RIGHT ON ABOUT THE KIDS/...THANKS LOVE.