carnoid/ovarian cyst

[kbell]

I am trying to get an diagnosis for a medical condition that no one seems to be able to figure out.  I have had "attacks" of extreme bronchospasm, abdominal cramps, diarrhea, and flushing for the past eighteen months.  These attacks have gotten much worse over time; and they are now quite predictable.  They seem to happen most about one week after I have my monthly cycle.  They usually happen after eating; and begin with the flushing of usually my upper body, but recently my whole body usually turns bright red.
I have had every teest in the book it seems- CT of abdomen, octreotide, blood work(chromogin a), and 24 hr urine for histamine, and 5hIAA.  Long story short no one has come up with any answers- and I am afraid one of these attacks is going to kill me.  The last time (4/4) I was hospitalized for 6 days- 3 days in the CCU.  I am scared!! The doctors have consistently found a cyst on my right ovary with each scan- no one seems overly concerned abot it- but I want it checked out!!  I am scheduled to see my OB/GYN on 5/7- any suggestions on what to suggest if he doesn't seem too worried?  Thanks for any help you could give me.  Kerry

[rmarie]

If you google Carcinoid syndrome, the mayo clinic has a site that states in rare instances the tumor that causes the syndrome can be found in the ovary.  See the GYN, and if he doesn't agree, find a GYN/Oncologist.  here is the link    Good luck, keep pushing

http://www.mayoclinic.com/health/carcinoid-syndrome/DS00690