hemorragic cysts and endometriosis

[crazyladi99]

I was reading something that someone wrote earlier in January.

Having pain in the right side than like labour contractions for hrs that are dibilitating.

Can u have hemorragic cysts if you have endometriosis.

I have had those pains and was diagnosed with endo, and have surgery in May to remove a 10cm cyst.  Could i possibly have cysts that didnt show up on the ultrasound?

Also could they be twisting? Would that show up on the ultrasound?

I havent had the pains since Jan 11th but had about 6 episodes from the end of nov till that time.  

Also I also was reading that having a bloated stomach and increased weight gain is a sign or symptom of Cancer.  There are times when i step on the scale in the morning and i am 140 than i would step on it hrs later and I would be 150, how is that possible? and is that a sign?

Maybe i am losing it here not sure.

Also my Dr told me that he is 95% certian that i have endo, and someone on here said that he has to go in and see before he can diagnose it and than someone else said that the ca-125 would also tell if i had it or not, so whats true?

I could go on all day if i could, i would just like to be prepared for the worst.  Any how just not sure what to think and everyone on here is pretty smart and has gone through so much that i respect what your opinions are even if you say i am crazy!!!! :)

[1god]

Hi

Seems like a great site.  I am trying to begin ivf but keep getting cysts.  I was clear after laproscopic and was planning on doing ivf and now just heard from my doctor that it looks like a have a hemorragic cysts on my ovary (my one good ovary) and we can't proceed.  I am doing acupuncture twice a week and have just started seeing a homeopathic doctor.

My question, does anyone know how to stop cysts from coming back.   Dietwise does anyone have any suggestions?

Anything would be greatly appreciated.  Thanks  1god

[Debdsk8gld]

Aleve is great for pain, but it causes scar tissue.  I had cosmetic surgery a year ago, and Aleve was a big no no!  So since Endo is scar tissue/adhesions I would stay away from aleve.

[Debdsk8gld]

I couldn't say for sure.  All I know is my GYN says to take ibuprofin, advil, aleve and stuff like that, and my cosmetic surgeon said not to take it because it thins your blood and causes scar tissue.  I only take Tylenol now.

[scram]

Hi there! I too was dx with endo 8 years ago and now dx with IBS. I am alwys bloated (look pregnant) and used to take Aleve among other NSAIDs to pain relief from endo. Does anyone know if the laproscopy I had for endo or the Aleve could have caused scar tissue which is now causing my bloating that never goes away? Thanks!

[crazyladi99]

thank you for all of your responses it helps out greatly.  JGmom the reason it isnt until May/June is because of waiting list.  I am not sure if its because i live in Canada but that is what i am assuming, we get free health care but the service has definitly gone out the window. They actually havent even called me for my appointment they just told me its going to be around May/June

[JGMom]

Hi - I had endo about about 17 yrs ago and going on for a few more years and had a endo cyst removed from my ovary 12 yrs ago.  The pain you describe is exactly how I felt.  It is debilitating - during your period especially, but also not.. it could be when I moved wrong or coughed etc.  If you have adhesions, that are also often associated w/ endo, these can cause pain too.  They didn't see my ovarian endometrioma for years (even though I was seeing a reproductive endocrinologist and had had many U/Ss), but I know it was there.  It finally got big enough so that my ovary wasn't just noted as enlarged, but it became more obviously not part of my ovary if you will.  I think they have to officially dx it by pathology (though the appearance alone should give the surgeon a good idea before pathology).  

Regarding your question about hemorrhagic cyst/emdo:  I currently have a cyst again on the left ovary.  I've had US/MRI/CT on this and these were interpreted both by the radiologists locally and outside (at Mayo).  Depending on who was reading the exact same films, the mass was described as a possible hemorrhagic cyst, endometrioma, cyst w/ debris, etc.  So there is only so much they can tell.  Your symptoms really do sound like endometriosis though - my money would be on your Dr's prediction.

Why are they waiting til May to take it out though?

For the pain of endo, there was nothing that worked for me like Aleve - taking a double hit right at the beginning of the pain made all the difference in the world.  Nothing else touched the pain.  

Best wishes

[CindiSue]

You know that aleave is great. It is best for my arthritis pain now that they took all the cox-2 drugs off the market. And you can get the generic Naproxen sodium pretty cheaply!  Cindi

[MickeyVicki]

No, Mary, I do not know of any particular blood test.  Having stated that, however, I do know that at least two of my relatives who suffer from the disease  had blood tests checking for factors including inflammation, and...oh, and  something else.  I know that one current theory  found in the fields of immunology and cancer is that there is a correlation between chronic inflammation and cancer.   Endometriosis is essentially a form of chronic inflammation in the abdomen (or wherever the implants are located) and endometriosis is believed to be one predisposing factor for ovarian cancer.

[MickeyVicki]

No, you are definitely not crazy.  In fact, you ask rather good questions and it is obvious that you are "doing your homework."
So, here goes my answer, for what it worth!  

Yes, it is true that to completely, 100% accurately diagnose endometriosis one must view the abdomen surgically - unless there are endometrial tissues that can be seen in other places (the nasal passages, for example) .  However, there are common symptoms of the disease that doctors use to make a diagnosis, hence your doctor's statement that he is 95% certain.  Also, endometriosis is just one of many conditions that can cause an elevated CA-125 level -- - BUT many women with endometriosis DO NOT have elevated CA-125 levels.  So, it is not a method of diagnosing either disease - cancer or endo.  

The weight gain during the day is possibly due to water retention.  When we lie down, the pressure is taken from our kidneys and they can produce urine more easily.  Therefore, after any voiding during the night or in the morning upon waking, those of us who retain water tend to be at our lightest weight. Then, the liquids we drink tend to be retained (not all of it, however) until we repeat the cycle all over again.   The liquids that we drink and the foods that we eat can also affect the amount of water that we do or do not retain.

Yes, with endometriosis you can still have different types of cysts, including hemorrhagic cysts.  You also have to remember that some cysts eventually resolve on their own, so you can have  one cyst one month, none the next, then an ovary 'full' of cysts the next month.  This fact accounts for the reason that with one month's cycle you experience pain,  but live with no pain at all the next cycle.

If you had ovarian torsion then it would have been visualized in the ultrasound, and  as time passed, you would eventually be in so much pain that you would have to visit the ER.