papillary mesothelioma

[Leonaiz]

I had a biopsy of the ovaries taken when I underwent surgery
to remove all my female organs.  The pathologist diagnosis was "papillary mesothelioma" which in my eyes is a death sentence.  Three weeks later and a second opinion from pathologists at UT Southwestern which contradicted their findings and said the ovaries were benign.  My question is how can your Dr tell you that you have such a thing and make you worry for all those weeks and then come to find out the diagnosis was incorrect.  Do you know what living hell I went through during that time waiting for the other pathologist to go over my slides?  Would it not have been better to tell me the pathologists don't agree (there were two) and send me on to the gynocologic oncologist for further explaination? I am relieved to now know that I am not dying from mesothelioma and only have a 14% chance (maybe less depending on treatment outcome))for reoccurance of my endometrial cancer within 2 years. I am very HAPPY with this...

[rmarie]

If I didn't have my orginal surgery done by a Gyn/Onc and had a mixed pathology, I would go for a second opinion from a Gyn/Onc.  The pathologists won't send you, and if your surgeon hasn't suggested it, tell him you want the referral.  Who is treating your endometrial ca?

[Leonaiz]

The original surgery was done by an Ob/Gyn; the two pathologists did not agree on what was found on the ovaries is why I ended up going to UT/Southwestern to see Dr David Miller who had his pathologists read the slides with (thankfully) a completely different outcome; they said that I did not have mesothelioma and in fact the ovaries were benign.  Dr Miller is sending me to Onc/Radiologist next week to see what treatment program I might benefit from to reduce the odds of the endometrial cancer coming back.  Also, Dr Miller is going to order a CT after completely healing from my surgery as he did not feel he could get around my incision to biopsy the pelvic lymph nodes via lapriscopy at this time.  He regrets that my original surgeon did not do it while he was doing the hysterectomy.  I learned a valuable lesson in regard to any cancer diagnosis, go straight to an oncologist!  If I would have actually had a second cancer and had to go through a second surgery because the first Dr did not biopsy the lymph nodes I would NOT have been happy.  At this time no major surgery is in the picture and I hope it stays that way...